FLORIDA  EAST  COAST  POST-POLIO  SUPPORT  GROUP   -   Vol. 13   #2

             12 Eclipse Trail  /  Ormond  Beach,  FL  32174  /  386  676-2435

        E-Mail:-  bgold@iag.net   --   Web Site:-  home.iag.net/~bgold/polio.htm

SEPTEMBER / OCTOBER   2005

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WISHING   EVERYONE

 

A   RESTFULL LABOR DAY

A SHANA TOVAH (HAPPY NEW YEAR)

TO ALL OUR JEWISH MEMBERS AND FRIENDS

-  and  -

A CANDY FILLED  HOLLOWEEN

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MEETING  NOTICE

 

September 18th, 2005  --   Dr. David Dysart (Ph.D), “The Polio Legacy: One

Mother and her Child’s Story.” David will answer the question of whether

Polio can be passed to the infant through the pregnancy of the mother.   

November 20th, 2005 --  Speaker from Hill & Ponton, law firm will discuss Social

          Security Disability

January 15th,  2006  --  NEW  YEAR’S  LUNCHEON

 

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CONTENTS

 

My Adventures                                         

Fight back against salt overload             

Emotional Eating                                      

Living with Post-Polio                              

Strategies for Living in Peace with Polio

Dues                                                         

Upcoming Conferences                          

Hotel Key Information                              

Credit Card Death…                                

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MY ADVENTURES

 

Well, my adventures this time start off with trips to various “parks” – My grandson, Joseph, came to spend some time with me and we decided to go to Daytona USA, right here in town, so that was an easy drive.  We took the tour, by shuttle, around the track – I was able to ride up their ramped shuttle with my scooter.  The simulated NASCAR rides that my grandson went on, were somewhat accessible – that is, if you could walk onto them.  As I am really not a thrill rider I opted not to go on any of them.  We did spend an enjoyable 3 hours at the attraction.

          The next day, the day before the actual shuttle launch, we took a drive to the Kennedy Space Center at Cape Canaveral.  There, again, we took a bus tour – this one having a ramp lift that I had to back up to get the scooter in – they then tied the scooter down after I moved to a regular bus seat.  The tour has two stops – you get off at each stop, explore the items there as long as you want, then get onto another bus. ALL the buses at the Space Center are kneeling buses and wheelchair/ scooter accessible.  We were treated as VIP’s at most of the show exhibits there – putting us in first (as soon as they spotted my scooter) and making sure we were comfortable.  We arrived at the Space Center at 11:00 am and didn’t leave until 5:30 pm – leaving at that time only because “grandma” was tired, Joseph could have continued for another hour or two.  Believe it or not, you could even get around their souvenir shops without too much trouble.

          Don’t know where I’ll take Joseph the next time he comes to visit, but, hopefully, we will enjoy it as much as we did Daytona USA and the Kennedy Space Center.

 

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Reprinted from Daytona Beach News-Journal, USA Weekend, June 24-26, 2005

 

EATSMART

By Jean Carper

Fight back against

salt overload

         

Sure, you can take the salt shaker off the table.  It’s tougher to get rid of salt overloads in the processed foods that account for as much as 80% of the sodium, we consume.

          Today, more companies offer low-salt and “no salt added” alternatives.  Choosing those, plus other low-sodium foods, can help lower blood pressure, as well as the risk of stroke, heart disease, kidney disease, diabetes, cataracts, brittle bones, stomach cancer and dementia.

          Too much salt now accounts for nearly 150,000 premature deaths a year, says the Center for Science in the Public Interest, a consumer advocacy group that has sued the FDA to make it crack down on sodium in foods.  Government guide-lines limit sodium to 2,300 milligrams a day (about 1 teaspoon) for adults under age 45, and 1,500mg daily for African Americans, older adults, and those with high blood pressure.  Most Americans eat 3,500mg to 4,500mg a day.

 

HOW TO SHAKE SODIUM

  Always check food labels for sodium content.  Compare brands.

  Buy no-salt-added foods.

  Rinse canned beans and tuna to remove some of the salt.

  Restrict bacon, ham, hot dogs, cold cuts, smoked salted fish, sauerkraut, pickles and processed cheese.

  Eat fresh vegetables.  They’re naturally low in sodium and high in potassium.  Bonus:  Potassium forces the kidneys to excrete more sodium.

 

~*~*~*~*~*~

 

SALT-BUSTING CHOICES

 

Tomato Sauce:  Cut 345mg per 1/4 cup

Use “no salt added” canned (15mg), not regular caned (360mg).

 

Corn kernels:  Cut 284mg per 1/2 cup

Use frozen, unsalted (2mg), not canned (286mg).

 

Cereal:  Cut 200mg per ounce

Use Oats (0mg), not corn flakes (200mg).

 

Peanuts:  Cut 228mg per ounce

Use unsalted dry-roasted (2mg), not salted dry-roasted (230mg).

 

Cheese:  Cut 245mg per ounce

Use cheddar (176mg), not processed American (421).

 

Popcorn:  Cut at least 50mg per cut

Use air-popped (0mg), not regular micro-wave (50mg or more).

 

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The following article was presented at the Post-Polio Health International’s Ninth International Conference on Post-Polio Health and Ventilator-Assisted Living, June 2-4, 2005.

 

EMOTIONAL EATING:

“What is Emotional Eating?”

“What Can We Do About It?”

Linda Bieniek, CEAP

La Grange, Illinois

 

“Emotional Eating” is the use of food to dull the

 pain underlying an important emotional need.

 

          Some people use alcohol, drugs, sex, money, gambling, work, and even TV, to avoid and numb their feelings.  Overeating, binging, and compulsive eating are ways of using food for similar pur-poses.  Regardless of which behavior we feel a compulsion to turn to, we need to explore these sensitive subjects with compassion and curiosity.  Criticism or shame will only contribute to a cycle that leads to emotional eating.  Instead, this paper offers several strategies and resources for beginning to explore the underlying needs of emotional eating in creative and fruitful ways.

 

Lightening Our Loads!

Most of us realize that emotional eating can add distress to any existing chronic health conditions.  However, sometimes we need evidence of how our bodies are affected before we reach out for the support we need to take action.  For example, gaining weight from emotional eating may…

·        Add pressure to our diaphragm, interfering with our breathing.

·        Limit our mobility and/or functioning.

·        Increase pressure to our joints, causing pain and wearing them out.

·        Place more stress on our heart, resulting in shortness of breath.

·        Create or exacerbate sleeping problems, such as sleep apnea.

·        Decrease our energy levels, possibly contributing to depression.

 

What Can We Do About It?

 

“The only way out of the feelings,

is through them.”

 

          Our bodies hold our physical, emotional, psychological, spiritual, and sexual wounds.  Emotional eating is one of the ways that our wounded parts express their need for our help.  We need open minds and kind hearts to support us in exploring our feelings.  Each step requires patience and a deep appreciation of our needs for safety, support, and hope.

 

Pay attention to our body’s sensations.  We can learn from our bodies.  Listening to our hungry feelings can lead us to insights.  The feeling of a compulsion to eat is one way that our bodies may gain our attention.  Expressing gratitude  for our body and its messages is important.  Appreciation encourages truthful revelations of our real needs.  For example, using a Gestalt approach, we could ask our “inner wisdom”:  “What is my body trying to tell me?”  Possible responses may include:  “Notice Me!” or “Don’t keep pushing me.”  We gain clarity by continuing to dialogue with our body.  For example, we could then ask:  “What do you want me to notice?”

 

          Author Geneen Roth has said:  You can take any avenue into your heart and soul.  Just start with the physical.  The physical is a reflection of the deepest part of yourself…”  In her book, Feeding the Hungry Heart she provides an example of dialoguing with our problems on pages 44-48.

 

Learn skills that create safety and support before searching for an understanding of emotional eating and solutions.  Internal and external safety, often described as a sense of security or trust, is of foremost importance before exploring our behaviors and feelings.  For this reason, we need to learn skills for “pacing” our explorations and for “staying grounded” in reality.  They will contribute to digesting new insights without “feeling overwhelmed” – a common trigger that can result in emotional eating.

 

          Being “grounded” means being focused in reality rather than distracted by thoughts, fears, or activities.  One way we can get grounded is to press our feet flat on the ground, if we are able.  Otherwise, we can visualize our bodies connected to the earth in an appealing way (e.g., by gardening, sitting under a tree).  Taking a few deep breaths will add to our ability to connect with our body’s sensations or to our intuition.  Imagining having a choir of supporters surround us – good, affirming, trustworthy people – will contribute to a sense of safety.  Deep breathing, stretching, visualizing, expressing positive intentions, and using forms of the Expressive Therapies and/or Energy Therapies are options for calming anxiety and connecting with our body.  A Treatment Approach Options chart is at www.post-polio.org/ipn/ppn18-4A.html.

 

Identify one external trigger at a time to gain insights.  Since emotional eating typically is an unconscious reaction rooted in good intentions (e.g., protection, com-fort, connection), we to apply our curiosity and play private detective to uncover what truly causes us to overeat, binge or eat compulsively.  In this context, a “trigger” is as an external event or sensory experience that produces a feeling, sensation, thought, behavior, or memory which can set off the cycle of compulsivity.  Typically, the trigger sequence outlined below can occur in split seconds:

  We see, hear, smell, taste, feel, think or experience something;

  We unconsciously or consciously are reminded of something – an experience, a feeling, trauma, loss, person, disappointment, etc.;

  We experience reactions:  a body sensation such as discomfort; a thought such as “Oh, not that!”; or a feeling such as fear.

  We turn to food to avoid or control our feelings.

 

          For example, upon hearing a certain song, “Jim” thought about a past relation-ship that left him heartbroken.  Instead of allowing his grief over his unresolved hurt to surface, he ate ice cream and cake and watched TV.  Eating comfort food and watching TV were his ways of dissociating from his feelings.

 

          We may identify our own “triggers” by noticing our eating patterns and then asking ourselves “What happened just before I overate?” and “What did I notice, hear, smell, think, taste, and/or feel in my body before I binged on cookies?”  If we continue backtracking with these questions, we may discover a series of triggers that contributed to a particular emotional eating pattern.

 

Most importantly, we need to remember that our responses to our emotional needs are rooted in “good intentions.” 

Before moving into the next section about the “Parts” approach, clarifying some distinctions may help.  “Triggers” are external – what happens outside of us – whereas “Parts” are internal characteristics of our Core Self.  We each have a variety of “Parts” of our personalities: a kind part, an angry part, a competent part, a communicative part, a quiet part, etc.  When a “trigger” stirs up an internal reaction – often unconsciously – that reaction may stem from an old unresolved feeling or experience that we can identify as a “Part” of us.  This simple description introduces us to a model that has proven very effective with individuals who have struggled to change their emotional eating patterns.

 

Consider the “Parts” approach to identify and respond to our emotional needs.  The “Parts” approach is one option for pursuing the next level of self-exploration and uncovering feelings that are closer to our hearts.  Several versions of this approach exist.  In the Internal Family Systems model, known as IFS, each aspect of our personalities and our behaviors may represent a “Part.”  Identifying the positive intentions and benefits of an “Emotional Eating Part” can provide us with valuable insights.  These clues, in turn, enable us to find an affirming response to our feelings or beliefs instead of choosing to pursue the feeling of a compulsion to eat.

 

          Our “emotional needs” are “Parts” of our Core Self.  “Protective Parts” may use food to suppress or to substitute for emotional needs such as security/safety, nourishment, or affection.  For example, the “lonely part” of us may turn to eating, but really needs human contact.  In another situation, a “Part” that hungers for more food, may actually long for a purpose in life – signs of spiritual undernourish-ment.  The following personality issues include examples of individuals’ “emotional needs” or “Parts.”

 

An individual who DESIRES intimacy and sexuality, and also FEARS these needs may eat when…

  craving support, connections with others, or a sense of belonging

  desiring a certain person’s love or attention yet reluctant to reach out

 

A person with unrealistic expectations may eat when…

  becoming disillusioned about the future

  lacking acceptance of his/her limitations

 

A person that seeks independence yet NEEDS and WANTS people to depend on may eat when…

            needing help, yet resenting when people don’t offer their assistance

            remembering being excluded from social activities as a child.

 

REFERENCES and RESOURCES

Schwartz RC (2001). Introduction to the Internal Family Systems Model,  Oak Park IL:  Trailheads Publications and (1995). INTERNAL Family Systems Therapy, New York:  Guilford Press.

 

Stone H and Stone S. (1989).  Embracing Our Selves:  The Voice Dialogue Manual.  Nataraj L., Elisabeth.  (1987).  Listen to the Hunger:  Why We Overeat.  New York, NY: Harper Row.

 

Sonder, B. (1993).  Eating Disorders:  When Food Turns Against You.  NY, NY:  Franklin Watts.

 

Explore resources and treatment approaches that teach us nourishing ways of responding to our bodies, beliefs, emotions, and experiences.  The good news is that therapeutic approaches and resources in the 21st century are far more effective than ever before.  Emotional eating is a complex, multi-dimensional subject.  Seeking assistance is a courageous step in breaking its cycle.  Most importantly, we need to work with a professional who has vast experience, an enormous range of skills, and deep sensitivity to how our past experiences may affect our responses in therapy.  When we develop a safe, trusting relationship with a competent professional we can make significant progress.

 

          The following lists identify books, treatment options, and professionals.  These can help us create shifts in our minds, bodies, emotions, and behaviors.  My hope is that each of us will learn what we truly hunger for and will find the inner strength and support to embrace our deepest emotional needs.

The Best of Health!

 

ADDITIONAL REFERENCES and RESOURCES

Geneen Roth’s workshops and books, especially:  Breaking Free from Compulsive Eating (p. 142-146); Feeding the Hungry Heart (p. 44-48); When Food is Love (p. 23-25; 200-201), and her Guide-lines.  www.geneenroth.com  408.685.8601.  (Not Therapy)

 

Dayton, T. (1997).  Heartwounds:  The Impact of Unresolved Trauma and Grief on Relationships.  Deerfield Beach, FL:  Health Communications, Inc.

 

Hollis, J. (1985).  FAT is a Family Affair.  Mpls, MN:  Hazeldon.

 

Finney, L.  (1995).  Reach for joy:  How to find the right therapist and therapy for you.  Freedom, California:  The Crossing Press.

 

Louden, J. (2000) The Comfort Queen’s Guide to Life.  Harmony Books.   (Delightful!)

 

Napier, N. (1993).  Getting through the day:  Strategies for adults hurt as children.  New York, NY:  W.W. Norton & Co.  (Describes grounding, pacing, containment skills.)

 

Olkin, R. (1999).  What psychotherapists should know about disability.  NY, NY:  Guilford Press.

 

Rutledge, T. (2002).  Embracing Fear.  New York, NY:  Harper Collins Publishers.

 

SARK. (2005).  Make Your Creative Dreams Real:  A Plan for Procrastinators, Perfectionists, Busy People, and People Who Would Rather Sleep All Day.  New York, NY:  Simon and Schuster.

 

Whitfield, C. (1993).  Boundaries and Relationships:  Knowing, Protecting and Enjoying the Self.  Deerfield Beach, FL:  Health Communications, Inc.

 

Zukav, G. (2001).  The Heart of the Soul:  Emotional Awareness.  NY, NY:  Simon and Schuster.

 

TREATMENT APPROACHES and PROFESSIONALS

Bieniek, L. (2003) Treatment Approach Options. Polio Network News, 19(1).9-11.

  www.post-polio.org/pn/ppn18-4A.html.

 

Internal Family Systems Mode:  Center for Self Leadership, P.C., P.O. Box 3969, Oak Park, IL 60303   (708) 383-2659. IFSCSL@aol.com, www.selfleadership.org:  workshops, training programs, conferences, books, tapes/CDs, practitioners.

www.schoolforliving.org  

 

Judy Steele, MTP, Dynamind Practitioner, Tapas Acupressure Tech-nique (TAT), NLP (Neuro-LinguisticProgram-ming).  Judy.steele@earthlink.net   612.590.3139.

 

Trauma Recovery and Eating Disorder Programs:  www.riveroakshospital.com/newsite/programs.htm  Dan Glaser, BCSW, Director.  800.366.1740.

www.castlewoodtc.com  Castlewood Treatment Center.  636.386.6611.  Mark Schwartz, Sc.D., Lori Galperin, LCSW, St. Louis, MO  1.888.822.8938

www.mccallumplace.com  McCallum on the Park.  1.800.828.8158.  Practitioner Referrals.

Linda Bieniek, CEAP

14 S. Ashland # 402

La Grange, Illinois  60525-2370

708-354-3640, LindaBieniek@msn.com

 

FECPPSG Editor’s Note:-  Linda says that if we have questions or concerns, we could send them to her at LindaBieniek@msn.com, or mail them to 14 S. Ashland Ave, #402, La Grange, IL 60525-2370 along with our contact information.  She asks for our patience in getting responses.   

 

Both Linda and I encourage you to join Post-Polio Health International (PHI).  While our organization is regional, PHI is international and offers extensive information, ideas, and contacts about physical, emotional, social, and spiritual health issues that complements our newsletter. If you are interested in obtaining program books and/or tapes of the 3-day international conference sessions  including the one on Emotional Eating or in becoming a member of PHI, log onto www.post-polio.org or call 314-534-0475.

 

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The following article was sent to me by an Indian post-polio survivor that I met at the 1999 St. Louis conference.  Neena and I have been keeping in touch ever since.  This is her story about …

 

LIVING WITH POST-POLIO

By Neena Bhandari

 

It was a meek October morning in 1967, only a month away from my third birthday, I had worn my frilled frock and white laced shoes to go and receive the triple polio vaccine. As I sang and danced along the way, making it difficult for my maternal grandfather to keep pace, little did I know that it was the last time I would be walking by myself.

 

Later that night, I remember my grandmother cuddling my tiny body burning with high fever as I complained of acute pain in my legs. She had carried me to the bathroom, where my legs collapsed.

 

In the days that followed, many more children like me began pouring into the Sawai Man Singh (SMS) hospital in Jaipur (Rajasthan).  It was two weeks before the outbreak was diagnosed as `Poliomyelitis’. The word didn’t mean much to me then and I certainly didn’t realise the implications it would have for a life just beginning.

 

The 1960s was a period when the mass epidemics of polio that had gripped mostly the industrialised countries for over 30 years were finally being brought under control with the introduction of effective vaccines. In India, Dr Albert Sabin’s Oral Polio Vaccine (OPV - a live attenuated polio virus) was imported from the erstwhile Soviet Union.

 

It seems there was a snag: the cold chain, critical for maintaining the potency of OPV in transport, was very poor. Some claimed the vaccine administered to us had already expired. Others said it had been left exposed to the sun at the airport; but this argument was dismissed on the grounds that the vaccine loses its potency when exposed to heat – neither harming nor doing any good.

 

In India, awareness about polio in the late 1960s was so low that no action was taken and this life-shattering illness was allowed to fade into oblivion. The Indian health authorities classified it as a polio epidemic, which had infected the children involved before the vaccine was administered.

 

While children of my age played, I spent my days at the hospital doing physiotherapy and hydrotherapy. My doctors became my playmates and the kittens born in the ward’s huge ventilators were a pleasant distraction from the painful exercises.

 

After a year of confinement, I started school and that’s when the harsh reality dawned:  I couldn’t run or go on the swing like other children, who constantly called me names and teased. Throughout my growing up years, wearing the long, rigid steel calipers and heavy boots - one bigger than the other to compensate the shortening in one leg - I was unable to use the Indian toilets. Western style toilets were few. I tried to control the bladder for hours at school, in trains and at public places.

 

The straight leg in the caliper made going to a film, sitting on a scooter, traveling on a bus, a nightmare. It made things really difficult for my family, especially my maternal grandmother with whom I spent most of my childhood. She tried every possible cure from daily physiotherapy to faith healers and rubbing the stinking fresh sheep’s milk.

 

As the 19th century British Prime Minister Benjamin Disraeli once said, “There is no education like adversity”, I adapted to the situation, learning to skip for long distances on the good leg, playing basketball, marching with the school band playing the flute and spent the time indoors reading, writing and learning the various arts and music.

 

Unlike the thousands of other polio-affected children in India, I was fortunate to have a family that supported my desire to be independent. I went to a boarding school and coped well with friends and nuns always ready to help with stairs and long queues for washing and bathing.

 

During college I realised, how important it was to be financially independent even for an able middle class girl to defer an arranged marriage. Straight after graduation, I joined The Times of India as a trainee journalist and soon discovered how physically demanding the profession was.

 

It was not until 1998 when we moved to the UK that I became aware of the many polio support groups like the British Polio Fellowship in London. It was a whole new world, which provided a platform to discuss the many anxieties and medical interventions that become necessary as one grows old with polio.

 

My greatest joy was to be able to walk and do what I wanted without stares and glares from the people around. It was a relief to find disabled-friendly buses and the Underground, which offered concession tickets. Even the famous black London cabs had special disabled fares. It made public places, libraries and superstores accessible.

 

On days when I would slip on the black ice, there was always help available. And I was no longer restricted to a bench in the park as there was an electrically-operated buggy to take the old and disabled around in Hyde Park.

 

Two years later, when I presented a paper at the Eighth International Post-Polio & Independent Living conference at St Louis, Missouri, I spoke on the role played by family and community in shaping the lives of polio patients to an audience that, in sharp contrast, had led a very individualistic and independent high-tech lifestyle.

 

Assessing my muscles and activity chart, Dr Jacquelin Perry, one of the first women orthopaedic surgeons in the US had said, “Slow down or you will be on a wheelchair in 10 years time”. I found her words rather harsh then, but four years later, I can see the truth in what she said as my muscles weaken and pain increases.

 

Chance brought us to Australia, a country where sport is a religion and it is not a place for the disabled. People’s reactions to my disability here have both shocked and surprised me. Questions like “If I could pass my infection to the others” have been frequently asked despite nearly 44,000 post polio survivors living in this country.

 

Societies in the west are grappling with ageing polio patients and young doctors who have not dealt with a single fresh polio case. Most doctors are not trained to recognise Post Polio Syndrome (PPS) or late effects of polio and are reluctant to treat it as a new condition. and Australia is no exception.

 

While polio survivors initially recovered and made the most of life with disability, today many of us are battling with profound fatigue, increasing muscle weakness, joint and muscle pain, increased sensitivity to cold temperatures and sleeping, breathing or swallowing difficulties linked to PPS.

 

The main advocates for increased medical and government attention to PPS have been the grassroots groups of polio survivors and we have a few in Australia too. However, it is very difficult to find a doctor, a physiotherapist and an orthotist at the same place who would understand your case and I have yet to find a comfortable caliper, which I wear for 12 to 14 hours daily.

 

As we advance into the 21st century, cure for polio is still a cherished dream. However, there is prevention, lighter and more effective calipers or braces, provision of electric scooters and power operated chairs, alternative medicine systems, legal benefits, new legislations, disabled friendly public places and a stronger than ever worldwide campaign to globally eradicate polio by 2005.

 

Governments across the world need to invest in medical and health care for ageing polio patients and to you my friend on the street -- a limp makes me no different.

The end.

 

FECPPSG EDITOR’S NOTE:-  I have not changed a word of this article.  Some of the spellings are as the English spell them – they are not typos.

 

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The following article was presented at the Post-Polio Health International’s Ninth International Conference on Post-Polio Health and Ventilator-Assisted Living, June 2-4, 2005.

 

SPIRITUAL HEALTH:

Strategies for Living in

Peace with Polio

Robert Ronald, S.J.

Taipei, Taiwan ROC

 

1.  TWO ENEMIES to peace with polio:

·        PHYSICAL:  Functional losses, pain, limitations, fatigue, restricted A.D.L.

·        NON-PHYSICAL:  Frustration, discontent, fear, sadness, anger, low self-esteem.

 

2.  PHYSICAL WAR:  To counter the physical effects, using tactics of the doctors, therapists, dieticians, and other experts.

 

3.  NON-PHYSICAL WAR: To counter non-physical effects. By mental tactics of attitudes, beliefs, convictions, determination.

 

4.  PEACE:

     (a)  Freedom from noise, anxiety.

(b)  Freedom from war or ending of war.

 

5.  PEACE WITH POLIO:

     (a)  Freedom from anxiety while struggling with polio.

- or -

     (b)  Freedom because of nothing more to fear.  Finding ways to maintain inner peace in spite of war with the physical effects.

 

6.  INNER PEACE:  State of mind, emotional stability, calmness, contentment, and realization of self-worth.

 

7.  STRATEGY ONE:  Keep your hand on the helm, doing what you can.

 

8.  WHAT ARE YOU?  A drifting cloud? A dead piece of driftwood?  Or a ship at sea with rudder and motor power?

 

9.  BEING CAPTAIN of your ship does not make you captain of the waves.  But how you handle the ship alters the passage through the storm.  The best way to die is to go on living as well as you can.

 

10.  STRATEGY TWO:  Make peace with your limitations.  Just as peace with others only comes when both parties finally accept their differences and agree to live with them, so:  Peace with limitations only comes when you acknowledge them, adjust to what you cannot change, and improve what you can.

 

11. FOCUSING ON LOSSES brings mourning, anger, unrest, despair.  Limitations are only seen as terrible calamities.

 

12. FOCUSING ON WHAT REMAINS gives hope, keeps you active.  Limitations become just inconveniences to live with.

 

13. ACCEPTING DISABILITY should mean refusing to be defined by your limitations, determining not to let them stand in your way, and reaffirming life and commitment to living as fully as possible.

 

14.  LIVING IN PEACE WITH POLIO is countering the regret for what you lost with gratitude for having had it.  And eagerness to find new things to be grateful for in facing the challenges your limitations present.

 

15.  STRATEGY THREE:  Make peace with your God.  Don’t abandon faith in the spiritual or belief in the value of life.  It is possible to face the difficulties of life with dignity and constancy without a strong philosophy of life, a rule of conduct, or a valued purpose of some kind.

 

16.  FOR THOSE WHO BELIEVE IN GOD life has a value that is independent of health, strength, or status.  And life has destiny beyond the vicissitudes of the present.

 

17.  THE ONLY THING GOD ASKS is for us to do our best with what we have, in whatever circumstances we find ourselves.

 

18.  WHY ME, LORD?  WHY NOT ME?  Am I so special, that I should be immune to the diseases and accidents that befall the rest of mankind?  Or that God should remove from me every inconvenience or danger?

 

19.  GOD DOES NOT GUARANTEE that the “good” will not suffer!  Only that the good will eventually come out of suffering.  God doesn’t mind when we get angry with Him.  It shows we still believe.  He is still there to help and comfort us.


20.  MY MOTHER’S ADVICE:  When everything goes wrong:

(a)     Count to 10 before you speak.

(b)     Quietly assess the situation before you act.

(c)     Pray.  Not telling God what to do, just mentioning your need, then sitting back and waiting to be surprised.  God’s idea of what’s best for us is often quite different from ours.

(d)     Then get up and keep going.

 

21.  STRATEGY FOUR:  Don’t abandon faith in yourself.  Make peace with yourself.  The value of your life is not measured by how many pounds you can lift or things you can buy, or the power you have over others, or by your successes or failures, and doesn’t depend on what others think of you.

 

22.  ONLY ONE STANDARD COUNTS:  How true you are to yourself; how closely you adhere to principles of right and wrong; how hard you try to do what you should; how well you make amends for offenses; how well you treat enemies as well as friends; how much you resist inclinations to give up; to hate; to harm, or to take what is not yours.

 

23.  BUT DOGGONE IT!  We violate our peace due to our anger, greed, and weakness.  Make peace with your guilt.  Don’t deny it.  Accept the consequences.  Make amends.  The memory will remain but peace will return.

 

24.  WHEN YOU LOOK IN A MIRROR don’t see only your flaws or only your polio.  You have flaws, but you are not the flaws.  See yourself as a diamond.  A diamond covered with dirt does not shine.  A diamond in the dark does not sparkle.  An uncut diamond is a worthless rock to the untrained eye.  But it is still a diamond.  You are a diamond in disguise.  If others don’s see that, it’s their mistake, not yours.  The value of a package is measured by its contents not by the wrappings.  Don’t look so hard at what you admire in others that you fail to see what there is to admire in your self.

 

25.  SOME PEOPLE DON’T LIKE THEM-SELVES.  They wish that they were someone else, or somewhere else, or stronger, or had more brains, or more money or more success.  So anxious about what they wish they had, they fail to enjoy what they do have.

 

26.  THE HAPPIEST PERSON I KNOW is mentally retarded and can do very little, but he knows how to enjoy every moment without any envy or regret.  He grew up in a family that loves and respects him, so he respects himself.  He is a peace with himself.

 

27.  THE UNHAPPIEST PERSON I KNOW is also mentally retarded and can do a lot.  But she grew up in a family that was ashamed of her and rejected her for being defective.  So she despises herself.  To be unhappy with herself is all she ever learned.

 

28.  STRATEGY FIVE:  stay at peace with others.  It’s hard to be at peace with someone who refuses to be at peace with you.  Everyone wants peace on his/her own terms.  You have to find some common ground that is good for both of you and big enough to be shared.  But sometimes, however, peace with yourself requires standing up for what is right even if it means fighting.

 

29.  PEACE is finding a way to agree with someone who doesn’t agree with you, a kind word to someone unkind to you, shaking hands with those you’d rather sock.

 

30.  PEACE is being kind when others aren’t holding on even when others let go:  not dominating over those weaker than you, but bending down to raise them up.

 

31.  ONLY YOU CAN CREATE YOUR PEACE, by doing the right thing, at the right time, making the most of whatever happens.

 

32.  THE PROBLEM IS we often won’t know what the right thing is.  And there isn’t time to wait for tomorrow’s hindsight.  We just have to do the best we can.  Peace is not making the right decisions.  It is making the decisions we think are right.  Peace is making the best of the decisions we do make even when they turn out wrong.

 

33.  PEACE is taking time to sit back and enjoy what is happening aout you.  Not waiting for your ship to come in, but going out to find it.  Peace is enjoying the grass on your side of the fence.  Not having the whole pie, but being content with the piece you have.  Peace is meant to be shared.  True peace radiates.  There is a glow about a person who is at peace with himself.  It shines even in the darkness of failure or rejection.

 

34.     THESE ARE MY STRATEGIES, WHAT ARE YOURS??  LET’S SHARE.

 

Robert Ronald, SJ

Kuangchi Program Service (retired)

Taipei, Taiwan ROC

rjronald@yahoo.com

 

FECPPSG Editor’s Note:- I met Father Ronald at the first Post-Polio Conference I attended back in 1989. 

 

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DUES FOR 2005:-  Please take a look at your mailing label  -  on it you’ll see the month and year we received your 2004 dues, i.e., 01/2004 means it was received in January 2004, so your 2005 dues was due in January 2005. If your mailing label has the year first and then the month, i.e., 2004/01 it means that you indicated to us in January 2004 that you wanted to receive the newsletter but paid no dues.  That’s OK as we still believe that anyone who wants information should receive it – but we do need you to return the tear sheet with either the “Dues” box checked or the “Keep me on the Mailing List” box checked.

                Your dues covers the supplies we need to send out the information packets to all inquiring about Post-Polio Syndrome, any other correspondence we do, and postage for publicity and for the out-of-country (25) newsletters that we send out.  We network with approximately 60 other support groups throughout the United States, Canada, Australia and New Zealand – some 40 of these reciprocate by sending us their newsletters.  We receive as many dues checks from our out-of-state members as we do from our Florida members.  So, please check your mailing label and return the tear sheet if your date is due.  We really need your support now more than ever.  Just to keep you advised, in addition to the previously mentioned countries, our newsletter goes to England, France, Germany, Israel, Mexico, Norway. Panama, Portugal, Lebanon, South Africa, Sweden, Taiwan and Wales.

~*~*~*~*~*~*~

WHEN YOU MOVE  PLEASE be sure to send us your new address.  Sometimes the post-office will return the newsletter to us with a “forwarding period expired” notice on the front with your new address but most of the time they are just returned to us with “address unknown” on it.  SO, if you want to continue receiving the newsletter it is UP TO YOU to make sure we have your new address.

 

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CALENDAR WATCH

 

September 24, 2005 – N Central Fl PPSG, “Managing Post Polio – You Can Do It!  We Can Help!” Speakers:-  Gudni Thorsteinsson, MD, Mayo Clinic, Jacksonville, FL and Selma Calmes, MD, Anesthesiologist, Oliveview-UCLA Medical Cntr, Sylmar, CA. Ramada Inn (352-732-3132), off of I-75, use code “Managing Post Polio” for $62/night fee made before August 30. Registration Fee $17.50 before Sept 10 ($27.50 after).  Send Registration check to:  N Central FL PPSG, 7180  SW  182nd Court, Dunnellon, FL  34432.  For more information call 352-489-1731.

NOTE:-  Sorry the hotel date has gone by… however, if you want a registration form, either e-mail me or call me (Barbara – 386-676-2435) and will mail it out to you as soon as I hear from you.

~*~*~*~*~*~*~*~

FECPPSG Editor’s Note:-  Dr. Gudni Thorsteinsson has been at our own support group meetings and our 2000 Conference  - we all know that he is quite knowledgeable about PPS.  Dr. Selma Calmes was one of the presenters at the recent Polio Health Intl conference I attended (in fact it is her anesthesia articles that we send you if you need to give information to your surgeon or anesthesiologist) and also an excellent speaker with knowledge of PPS.  Both doctors are also polio survivors.

 

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The following item has been e-mailed to us by several of our support group members as well as friends of mine.


HOTEL KEY INFORMATION

 

You know how when you check out of a hotel that uses the credit-card-type
room key, the clerk often will ask if you have your key(s) to turn in...or there
is a box or slot on the Reception counter in which to put them? It's good for
the hotel because they save money by re-using those cards. But, it's not good
for you, as revealed below.


From the California Bureau of Investigation:


"Southern California law enforcement professionals assigned to detect new threats
to personal security issues, recently discovered what type of information is embedded in the credit card type hotel room keys used throughout the industry.


Although room keys differ from hotel to hotel, a key obtained from a well known hotel chain that was being used for a regional Identity Theft Presentation was found to contain the following the information:

a.. Customers (your) name

b.. Customers partial home address

c.. Hotel room number

d.. Check in date and check out date

e.. Customer's (your) credit card number and expiration date!


When you turn them in to the front desk your personal information is there for any employee to access by simply scanning the card in the  hotel scanner.  An employee can take a hand full of cards home and using a scanning device, access the information onto a laptop computer and go shopping at your expense.


Simply put, hotels do not erase the information on these cards until an employee re-issues the card to the next hotel guest.  At that time, the new guest's information is electronically “over-written” on the card and the previous guest’s information is erased in the overwriting process. But until the card is rewritten for the next guest, it usually is kept in a drawer at the front desk with YOUR INFORMATION ON IT !!!!


The bottom line is:  Keep the cards, take them home with you, or destroy them.  NEVER/EVER leave them behind in the room or room wastebasket, and NEVER turn them in to the front desk when you check out of a room. They will not charge you for the card (it's illegal) and you'll be sure you are not leaving a lot of valuable personal information on it that could be easily lifted off with any simple scanning device card reader.


For the same reason, if you arrive at the airport and discover you still have the card key in your pocket, do not toss it in an airport trash basket.  Take it home and destroy it by cutting it up, especially through the electronic information strip!

Information courtesy of:

Pasadena Police Department

 

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More e-mail sent to us…..

CREDIT CARD DEATH…

Be sure to cancel your credit cards before you die, just in case. This is priceless, and so easy to see happening, customer service being what it is today.


A lady died this past January, and Citibank billed her for February and March for their annual service charges on her credit card, and then added late fees and interest on the monthly charge. The balance had been $0.00, now is somewhere around $60.00.


A family member placed a call to Citibank:  Family Member: "I am calling to tell you that she died in January."


Citibank: "The account was never closed and the late fees and charges still apply.”


Family Member: "Maybe, you should turn it over to collections."


Citibank: "Since it is two months past due, it already has been."


Family Member: “So, what will they do when they find out she is dead?"


Citibank: "Either report her account to the frauds division or report her to the credit bureau, maybe both!"


Family Member: "Do you think God will be mad at her?


Citibank:  "Excuse me?"


Family Member: "Did you just get what I was telling you the part about her being dead?"


Citibank: "Sir, you'll have to speak to my supervisor."

 

Supervisor gets on the phone:

 

Family Member: "I'm calling to tell you, she died in January."


Citibank: "The account was never closed and the late fees and charges still apply.”


Family Member: "You mean you want to collect from her estate.”


Citibank: (Stammer) " Are you her lawyer?"


Family Member: "No, I'm her great-nephew." (Lawyer info given)


Citibank: "Could you fax us a certificate of death?"


Family Member: "Sure." (fax number is given)


After they get the fax:

Citibank: "Our system just isn't setup for death. I don't know what more I can do to help."


Family Member: "Well, if you figure it out, great! If not, you could just keep billing her. I don't

think she will pay.”


Citibank: "Well, the late fees and charges do still apply."


Family Member: "Would you like her new billing address?"


Citibank: " That might help."


Family Member: "
Odessa Memorial Cemetery, Highway 129, Plot Number 69."


Citibank: "Sir, that's a cemetery!"


Family Member: "What do you do with dead people on your planet?"

 

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FLORIDA EAST COAST POST-POLIO SUPPORT GROUP

12 ECLIPSE TRAIL

ORMOND BEACH, FL 32174-4936

386  676-2435            e-mail:- bgold@iag.net

 

       

DATE:                Sunday, September 18th, 2005

TIME:                 1:00 – 4:00 PM

PLACE:              Red Lobster Restaurant

                             International Speedway Boulevard

                            Right off I-95 – Exit 261– Daytona Beach, FL

                             (head EAST for about 1/4 mile)

 

PROGRAM:-         Dr. David Dysart (Ph.D), “The Polio Legacy: One Mother

and her Child’s Story.” See story in March/April 2005

newsletter.  

 

 

For further information call:-  Barbara  386-676-2435

 

==============================================================

 

2005 DUES/MAILING LIST

____ Dues Enclosed                                                            ____ Keep me on mailing list

 

If sending dues, please make Check ($5.00) Payable to and Mail to:-

FLORIDA  EAST  COAST  POST-POLIO  SUPPORT  GROUP

12  Eclipse Trail,  Ormond  Beach,  FL  32174-4936

 

NAME:- __________________________________________________________

 

ADDRESS:- _______________________________________________________

 

E-MAIL ADDRESS:-__________________________ FAX #:- _______________

 

TELEPHONE NO:- Home _______________________ Office ________________

 

Date of Birth:-_________________   Wedding  Anniversary:- ________________

 

Name and Date of Birth of Spouse:-_____________________________________

 

Support Group I belong to:- __________________________________________

 

09/2005

 

************************************


FLORIDA  EAST  COAST  POST-POLIO  SUPPORT  GROUP

12  Eclipse  Trail  /  Ormond  BeachFL  32174

 386-676-2435  /  e-mail  address:  bgold@iag.net

 

DATE:                Sunday, September 18th, 2005

TIME:                 1:00 – 4:00 PM

PLACE:              Red Lobster Restaurant

                             International Speedway Boulevard

                             Right off I-95 – Exit 261– Daytona Beach, FL

                             (head EAST for about 1/4 mile)

 

 

PROGRAM:-     Guest Speaker:-   --   Dr. David Dysart (Ph.D),

“The Polio Legacy: One Mother and her Child’s Story.” David

will answer the question of whether Polio can be passed to the

infant through the pregnancy of the mother.   

 

                                                                       

Cost of the Luncheon is $10.00 all inclusive.   As usual we will have a choice of several different menu items.

 

Please send in your reservation tear sheet and check

no later than September 14, 2005

 

Any questions call Barbara at 386-676-2435.

 

===================================================================

 

R E S E R V A T I O N   F O R M

September 18,  2005 Luncheon Meeting

  

Name:- _______________________________  Phone No.:- _________________

 

Number of People Coming:- _________ Number in Wheelchair(s):-  ___________

 

Amount of Check Enclosed:-  ________________  @ $10.00 per person

 

Make check payable to and mail same to:

FLORIDA EAST COAST POST-POLIO SUPPORT GROUP

12 Eclipse Trail  --  Ormond Beach, FL  32174

09/2005