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A
CORNOCOUPIA WITH THANKSGIVING GOODIES
A
LIGHT-FILLED CHANUKAH
and the
MERRIEST
OF CHRISTMASES!!
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tation on orthotics for polios.
of
the Volusia Hand Clinic will talk on carpal tunnel syndrome.
*************************************
CONTENTS
From Barbara
Improving
Communication with
Our
Doctors
Doctor’s Appointment?
“Goodbye,
Mom!”
Apples
Pack More Punch
Mystery
Ride
Focus
on Eyes
Heart
Health: What You
Need
to Know
God
is Watching
Stroke
Awareness Month
I
Got Polio When I Was….
We
Must Stop This Immediately
***************************************
FROM
BARBARA
Just
a quick update on the carpal tunnel surgery I had back in September. It’s coming along, but slower than I thought
it would. The tips of all my fingers,
with the exception of the pinky, are still somewhat numb. The middle finger is still number than the
others, but not as bad as when first operated on. Hopefully, it will keep improving.
***************************************
The following article was sent to us
by one of our
PANANA CANAL CRUISE
By Betty VanGieson
We live in one of Del Webb's
Sporty Mini Travel scooter which is 22 1/4 inches wide. Just
made it through the door with a half inch to spare on each side. I drove
past the bed to a nice open area near the desk and TV to park and we went
out to sit on our deck. When our room steward came in to check if
everything was OK, he was extremely surprised at seeing a scooter sitting in the
room. He went over everything with us and explained about the mandatory
After two days at sea, we arrived in
We took a tour of the island.
Something in the shape of a pear grows on the tree. Later a single cashew
grows from the "pear". The cashew gets all its nourishment from the
"pear" not from the tree as it grows. Along the way we saw lots
of what looked like small children's play houses made of what looks like
granite with steep roofs with lots of vases filled with flowers in them near
the churches. Our driver explained to us that although a few people are
buried, most people are placed in these "houses" when they die.
They do not believe in cremation or embalming their dead and everyone is
"buried" standing up.
The next day were at sea. The following day we arrived at the
first set of three locks at the
The Coral Princess had
a clearance of two feet on each side of the ship and about seventeen feet in
the front and back when we were in a lock .
Eight "mules" kept our ship straight in the lock. A mule looks
like a small train engine. Each is attached to the ship with ropes.
The purpose of the "mules" is to keep the ship absolutely straight
when going through the locks. The slightest error one way or the other
would damage the locks. They are called mules because when the
After another day at
sea, we docked at
After another day at
sea we docked at
After another day at
sea, our next port was
Another
day at sea and then Cabo San Lucas. This time we took a tender. They
took my husband and me down one level from everyone else, in a handicapped
elevator. From there I could roll right on onto the dock. The sea was calm and
I was able to take the step down to sit in a seat. They then lifted pieces from near the opening
top make a solid platform over the inside steps and loaded my scooter
there. On coming back there were two of us in scooters. I was loaded next
to last, and
then they again formed the platform. The other person in the scooter was lifted
on board sitting in her scooter and then they loaded my scooter. Upon arriving
at the ship, my scooter was unloaded and then
they unloaded her in her scooter and unfolded the platform. Some
people sitting behind me started to push their way forward. The crew told
them in no uncertain terms that they had to wait. We had two foot swells
and the crew was fantastic in getting me off, including holding on to me until
I was seated and had my power on. They then let my husband off.
Everyone else was held until we were long gone. Unless the seas are very
rough, taking a tender is a breeze.
After another day at sea, we arrived in
Some things to
think about when traveling. If you use power, take an extension cord as
there are only two electrical outlets - one in the bathroom and one over the desk.
Check if your chair
or scooter is small enough to be placed in the bins below a bus. The bus
driver will not take the seat off your scooter, etc. so have someone with you
who can do this. The bus driver will assist this person in lifting your
equipment in and out of the bins under the bus. You must be able to get
up the steps on the bus, but the driver will give you a boost. All the drivers
we encountered were very strong, however we only took
trips that were labeled handicapped accessible.
***************************************
Reprinted with permission of author, Dr. Henry D. Holland, reprinted from PPRG
of SE Wisconsin, June 2006, reprinted from Triad PPG Newsletter, The Seagull, April 2006.
Improving
Communication
with Our Doctors
by Henry D. Holland, MD
Why am I qualified to offer these suggestions? I have had the experience of being a patient
many times in my life.
I have used a ventilator since I had a permanent tracheostomy in 1970.
This treatment resulted from the damage initially caused by polio in
1950. I have an intensified interest in
post-polio syndrome because I have experienced its effects since about 1990.
I have been a physician
since 1966, and my specialty is psychiatry.
I am currently a clini
cal professor at the
Most
physicians follow the medical model, which is generally based on the scientific
method. The thorough physician would get
a complete history from you and possibly members of your family, perform a
physical examination, try to obtain copies of previous medical records from
other medical sources, and would get laboratory and other objective tests. Routine tests usually include a complete
blood count, blood chemistries including electrolytes, liver enzymes, kidney
screening tests, cholesterol, and others.
A chest X-ray and thyroid function studies might also be included.
I
think it is essential and extremely important to have a doctor who will listen
to you. As a patient I think it is
equally important for you to present your history of polio and post-polio
syndrome symptoms in a concise manner and as objectively as possible. I recommend that you answer the physician’s
questions in a similar manner. If your
doctor seems hurried, that is a distinct disadvantage for both you and him/her. It is a good idea to write some notes so you
remember to tell the doctor about the onset of symptoms, when the symptoms
seemed to progress, and what you have done that seemed
to increase the symptoms or decrease the symptoms.
Most
physicians will formulate a possible or differential diagnosis based on the
history and the physical exam even before the objective test results are
known. In some cases, treatment may be
started at that time. After the results
of the objective tests are known, often the diagnosis can be made.
The
diagnosis of post-polio syndrome is one of exclusion. The usual symptoms – weakness, fatigue, and
pain – are very similar to other conditions.
Therefore, your physician must exclude these other possible disorders as
an explanation for your symptoms. The
most important initial factor is to make sure that your physician knows of the
history of polio in your life.
My
initial diagnosis in 1991 was a self-diagnosis.
A neurologist and a pulmonary doctor did not think that I had post-polio
syndrome, but I am not sure that they knew much about it. Fortunately my primary care (internal
medicine) doctor was willing to listen to what I had to say. He was also willing to read the articles that
I brought him. Admittedly, I had an
advantage because, as a physician, my opinions and observations were not
immediately dismissed.
As
a patient, you can become frustrated early on in the diagnostic process. Hopefully your physician will be honest and
not defensive and will admit if he/she knows little about the disorder. This is likely a good sign that the physician
is willing to learn. If you can afford
it, give your doctor either Managing
Post-Polio Syndrome (1998) by
I
often hear that polio is not taught anymore in medical schools. I think that this is an inaccurate
perception. Infectious diseases,
including polio, are taught in accredited medical schools despite the
possibility that an American physician may never see an actual case.
I
have never seen a case of leprosy, bubonic plague, elephantiasis, or yellow
fever. However, I studied and was
quizzed on all of these diseases.
Post-Polio
Syndrome is probably taught less because this disorder is a “syndrome.” A syndrome is a group of symptoms that
collectively indicate or characterize a disease, a psychological disorder, or
another abnormal condition. The causes
of some syndromes are known and others are not known. When the cause of a syndrome is not clearly
known, the teaching emphasis would be on recognition. As treatment may vary or change, a precise
treatment plan may be suggested but with reservation. This is the case with post-polio
syndrome. For example, how much exercise
is enough or how much exercise is too much?
The treatment of post-polio syndrome is more individualized and less
empirical than known disease processes.
The
average physician may never have a case of post-polio syndrome cross his/her
office threshold. If a case does, that
physician may focus on other causes before considering the diagnosis, assuming
that he/she knows about post-polio syndrome and assuming you told him/her your
polio history.
Communicate
honestly about the severity of your symptoms.
Many polio survivors minimize the severity and dysfunction of their
symptoms. Don’t hesitate to tell your
story with complete disclosure of how bad you are feeling or hurting. It is important for you to communicate with
clarity and emphasis about what has changed and what you are experiencing. You could simply complain of fatigue, pain,
and weakness, but if you explain how the fatigue, etc., is limiting, then your
doctor will begin to understand. For
example, if you report that walking up a flight of steps is no longer possible
without resting or extreme effort, you are more objective in your description
than simply reporting fatigue. You, as a polio survivor, understand what you
are experiencing. If the doctor has a
genuine ability to emphathize, he/she may also be
able to understand. However, the doctor
may worry about missing something that is more treatable than post-polio
syndrome, such as a malignancy, multiple sclerosis and other CNS diseases, HIV,
or any other disease that might present with a complaint of fatigue, pain, or
weakness.
The
successful doctor/patient relationship depends in part on a feeling of comfort
between the two personalities involved.
The patient wants help with a problem and trusts the doctor to use
his/her expertise in solving the problem.
The doctor’s goal is to diagnose correctly the patient’s problem and
initiate the appropriate treatment promptly.
This
process will be more rewarding if the doctor and the patient have mutual
respect, are not competitive, and both are capable of listening with attention
and interest. IF a doctor does not seem
interested, finding another doctor would be wise. If the doctor admits unfamiliarity with
post-polio syndrome and is not interested in learning more, then that doctor
should refer you to a colleague who is both more knowledgeable and more
interested.
The
best outcome is to find a doctor who knows about post-polio syndrome or is
willing to learn, is a good listener, is not obviously hurried, respects all of
his/her patients, and takes a genuine interest in you as a patient with a
problem and as a person. You will know
when you have found a doctor with whom you can relate.
***************************************
FECPPSG Editor’s Note:- After Dr. Holland’s article (above), I felt this was most
apropos. It appeared in the Daytona
Beach News Journal “Medical Guide” issue of
Doctor’s Appointment?
Be Prepared
By Lynda Shrager
New York Times News Service
Have you ever left your doctor’s
appointment and realized you forgot to mention a symptom, ask a question or say
you didn’t fully understand the instructions?
If we are lucky, we get about 15 minutes of actual face time with our
doctor, and remembering everything that needs to be discussed is difficult. Therefore, being well prepared for an
appointment makes the office visit more productive and increases the potential
for a more effective outcome. Use these
tips to prepare for your doctor’s visit.
DETERMINE YOUR GOALS
·
Is
this a well visit or preventive checkup?
·
Are
you looking for a diagnosis, a name for what you have?
·
Do
you want to establish a treatment plan, either a modification of what you’re
already doing or a new one?
·
Do
you want to discuss the prognosis: What
will happen to you, what will the future likely bring?
·
Are
you looking for reassurance, help with feelings, fatigue or depression?
GATHER YOUR MEDICAL INFORMATION
·
Prepare
a detailed medical history of your own health and that of your immediate blood
relatives.
·
Create
a list of current medications – prescription, over-the-counter, natural and
herbal – with dose and frequency.
·
If
the doctor orders tests to be completed prior to your appointment, call ahead
to ensure the office has the results. If
you need to bring the actual X-rays, MRIs or other
films to your appointment, determine where they are and make plans to pick them
up in advance.
LIST ALL YOUR SYMPTOMS
·
Keep
a diary of when symptoms start, what triggers them, how often they occur, how
long they last and what seems to alleviate them.
·
What
do they feel like or look like (if appropriate)? For example:
achy, burning, stabbing, dull, stiff, tingly, sore, annoying, crushing,
red, swollen, oozing (you get the picture).
·
How
severe is the pain? Use a scale of 1 to
10, with 1 being barely a problem and 10 feeling as if you need to go to the
hospital.
Determine what referrals or pre-authorizations you may need
from your health insurer.
CREATE A LIST OF CONTACT INFORMATION
·
Include
name and phone numbers for emergency contacts.
·
List
all other doctors who treat you and why, plus their phone and fax numbers, and
office address.
·
Include
pharmacy name, phone and fax.
LIST SPECIFIC AND DIRECT QUESTIONS
·
What
kind of diagnostic tests do I need?
·
What
exactly is my disease or condition?
·
What
are my options for treatment?
HAVE A PLAN FOR DOCUMENTING WHAT YOU LEARN – LEAVE A SPACE
AFTER YOUR QUESTIONS TO JOT DOWN NOTES:
·
Bring
an advocate to take notes, so you can focus on what is being said.
·
If
an advocate is not available, ask permission to tape record the doctor’s
responses (especially if this is a second opinion or specialist).
EMPOWER YOURSELF
·
Do
research so you have a better understanding of some medical terms the doctor
might use. If you are having hip pain,
prepare by learning a little bit about the hip joint.
***************************************
The following is an e-mail sent to
me by one of our members, Gary Fredericks of
“Goodbye, Mom!”
A guy shopping in a supermarket noticed a little old lady
following him around. If he stopped, she stopped. Furthermore she kept staring
at him.
She finally overtook him at the checkout, and she turned to
him and said, "I hope I haven't made you feel ill at ease; it's just that
you look so much like my late son." He answered, "That's okay."
"I know it's silly, but if you'd call out "Good
bye, Mom" as I leave the store, it would make me feel so happy." She
then went through the checkout, and as she was on her way out of the store, the
man called out, "Goodbye, Mother." The little old lady waved and
smiled back at him. Pleased that he had brought a little sunshine into
someone's day, he went to pay for his groceries.
"That comes to $121.85," said the clerk. "How
come so much... I only bought 5 items. "The clerk replied, "Yeah, but
your Mother said you'd pay for her things, too."
Motto: Do not trust all little Old Ladies
FECPPSG Editor’s Note:- Gee, wish I had thought of that….
***************************************
Reprinted from
Apples
pack more punch
An apple a day also may keep away
memory loss, asthma, cancer, diabetes, heart disease, stroke and tooth
loss. Crisp, new details:
■ Cancer. An Italian study showed that eating at least
an apple a day cut risk of cancer of the mouth and pharynx by 21%; esophagus,
25%; colon, 20%; breast, 18%; ovaries, 15%; prostate, 9%.
■ Asthma.
Apples are rich in an antioxidant called apigenin
that, in animal tests in
■ Diabetes. Harvard investigators found that
women who ate an apple a day were 28% less likely to develop type 2 diabetes
than women who ate none.
■ Heart.
Eating apples may help stifle blood clots and plaque in arteries, which
lead to heart disease. Example: Eating two more apples or 1 ˝ cups of 100%
apple juice a day slowed changes in bad LDL cholesterol that contribute to
artery-clogging plaque, says University of Califor- nia-Davis research.
And European studies suggest less fatal heart disease and 40% fewer
strokes in apple eaters.
■ Teeth.
Harvard epidemiologists say men who stopped eating apples were more apt
to lose their teeth.
TIPS:-
■ Eat the skin – it can
have 6 times more antioxidants than the flesh.
■ Red Delicious is tops
in antioxidants.
Contact Jean
Carper at stopagingnow.com. Scientific sources are at usaweekend.com
FECPPSG
Editor’s Note:-
Guess I have to start eating more apples and I really prefer Granny
Smith apples to Red Delicious….
***************************************
MYSTERY RIDE
By Barbara Goldstein
Many of you have said that
you like when I tell you about my “adventures” so, here’s another one.
Several of my friends
and I belong to a social group called “Friendship Force.” It is a worldwide organization. One of the benefits (and why we joined) is
that they plan one or two day trips within reasonable rates.
Well, middle of October
we went on a MYSTERY TRAIN RIDE. Of
course this meant that we wouldn’t know where we were going until we got
there. Actually, when we got on the bus,
the “tour” leader handed out a sheet basically telling us what we would be
doing and going on each day, EXCEPT where the actual Mystery Train would be
taking us.
I’ll
start with getting me and my scooter onto the bus. The new charter buses seem to have very
little or no trouble getting the scooter into the luggage compartment. I have an Electric Mobility Rascal and the
front tiller is able to be brought down to the level of the seat and the
backrest can be brought forward too.
This makes it extremely easy for the bus driver to get the scooter into
the bus. I had more trouble getting into
the bus then my scooter did. The first
step was slightly higher than I could raise my good leg to get on – however,
with a little bit of help from the tour leader I was able to do it. Whenever I go on one of these buses (and I’ve
gone on several trips) they reserve a front row seat for me so that I don’t
have to walk too far into the bus. This
is appreciated by me as these front seats also have extra leg room, which we
usually need.
Of course we made
several stops the first day and I had to get off (and back on) the bus several
times. The bus driver made sure that he
took the scooter out for me and set it up as soon as he was able to once we
reached our destination(s).
The first day’s long
drive (from
That night we went on
the Mystery Train ride and it was absolutely fantastic. My scooter was able to get onto the train but
I had to get off it and walk into the actual dining car which was only a two-step
walk.
The following morning,
after breakfast, we once more got onto the bus and went to the
I had been to the Hard
Rock Casino in
Our bus ride back to
Daytona went smoothly and I’m looking forward to doing many more of these one
or two-day trips. My next “excursion” is
my cruise right after Thanksgiving and I will, of course, tell you all about it
in the January/February newsletter.
***************************************
Reprinted from
Focus
on eyes
Here’s why even small changes
affect your quality of sight.
Within the same week, my 15-year-old
daughter was fitted for glasses, and my father underwent surgery for
cataracts. Although their specific
problems are quite different, the interventions both had will distinctly improve
the quality of their lives. Those of us
with normal eyesight may have a hard time relating, but we all know the eyes
are wonderful and complex organs. In
fact, a significant portion of our brain function is required just to interpret
the information our eyes provide.
Even
small changes in our eyes can affect how we see. Although there are many causes of vision
problems, the most common one is a change in refraction, or the way light
enters the eye. As light enters the eye
through a round, smooth cornea, it is bent, or refracted, and sent through the
clear lens and toward the back of the eye (the retina). The bent light rays focus directly on the
retina, which pro-cesses and sends information to the
brain, where it is interpreted as sight.
If not properly bent, the light rays focus either in front of or behind
the retina. As a result, the retina’s
ability to process information is compromised, and the brain interprets a
blurred image.
Optometrists
and ophthalmologists use glasses to correct these refractive problems. When properly prescribed, eyeglasses make up
for the error in refraction from the cornea to give us clear vision. Fortunately, recent surgical advances have
made altering the structure of the eye (such as the cornea and the lens)
possible to correct refraction problems, reducing or even eliminating the need
for glasses.
3 Major Types of
Refraction Problems
■ Nearsightedness.
“Myopia” occurs when the focal point of the refractive images fall in
front of the retina instead of directly on it.
Those with myopia can see objects that are near clearly; distant objects
are blurred.
■ Farsigntedness. “Hyperopia”
occurs when the focal point of the images falls behind the retina. People with hyperopia
see distant objects clearly, but near objects are blurred.
■ Astigmatism. This condition occurs if the
cornea’s shape is irregular, causing light rays to scatter through the lens
toward the retina. Consequently, light
focuses on several focal points in the eye instead of one. Astigmatism often occurs along with either
farsightedness or nearsightedness.
People with astigmatism have difficulty seeing fine detail close-up or at
a distance. Correction requires glasses
that bend light rays at various angles over the misshapen cornea.
***************************************
Reprinted from Elder Update, May/June
2006, Health and Wellness
Heart Health:
What You Need to Know
Although heart disease is sometimes thought of as a “man’s
disease, it is the leasing cause of death for both women and men in the United
States, with women comprising 51 percent of the total heart disease deaths.
While heart disease is the number one killer of women, only
13 percent of women in a 2003 survey by the Centers for Disease Control were
aware that this is their greatest health problem. Here, the term “heart disease” refers to the
broadest category of “diseases of the heart,” which includes acute rheumatic
fever, chronic rheumatic heart disease, hypertensive heart disease, coronary
heart disease, pulmonary heart disease, congestive heart failure, and any other
heart condition or disease.
Studies among people with heart disease have shown that
lowering high blood cholesterol and high blood pressure can reduce the risk of
dying of heart disease, having a nonfatal heart attack, and needing bypass
surgery or angioplasty.
Studies among people without heart disease have shown that
lowering high blood cholesterol and high blood pressure can reduce the risk of
developing heart disease.
Facts About Women and Heart Disease
Heart disease is often perceived as an “older woman’s
disease,” and it is the leading cause of death among women age 65 and
older. However, heart disease is the
third leading cause of death among women age 25-44 years of age and the second
leading cause of death among women aged 45-64 years. Additionally, in 2002, death rates for heart
disease were higher among black women than among white women.
There is a range of risk for heart disease depending on family and personal health history and