FLORIDA  EAST  COAST  POST-POLIO  SUPPORT  GROUP   -   Vol. 13   #3

             12 Eclipse Trail  /  Ormond  Beach,  FL  32174  /  386  676-2435

        E-Mail:-  bgold@iag.net   --   Web Site:-  home.iag.net/~bgold/polio.htm

NOVEMBER/DECEMBER   2005

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WISHING  ALL OUR FRIENDS

A CORNOCOUPIA WITH THANKSGIVING GOODIES

A LIGHT-FILLED CHANUKAH

and the

MERRIEST OF CHRISTMASES!!

 

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MEETING  NOTICE

 

November 20th, 2005 --  An Attorney from the law offices of Hill & Ponton

 will talk about Social Security Problems and the Prescription Drug Plan.

January 15th,  2006                     NEW  YEAR’S  LUNCHEON

March 19th, 2006                         To be announced

May 21st, 2006                            To be announced

September 17th, 2006                To be announced

November 19th, 2006                 To be announced

 

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CONTENTS


 

My “Adventures”

Expired Drugs – Toss Them

Information about Generic Drugs

Keys Locked in Your Car?

Research 1 – What is Being Done?

                                                          What Needs to be Done?

Telemarketers

FYI – ICE 

A Clarification of Non-Paralytic Polio 

No More Excuses

Gonna Be a Bear

Feed Your Heart

Odd Shoes

Anesthesia and Post-Polio Today

Credit Reports – Be the First to Know

Just a Smiler

Purging Polio

Minnesota’s Polio Case

Ain’t it da Truth

 

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“MY ADVENTURES”

 

Well, this time I really don’t have any “adventures” except to tell you what happened when I brought my car into the dealership to have the air-conditioning looked at.

          Everytime I take the minivan in for service I make sure to tell them that I have a left-sided gas pedal and ask if they want me to remove it.  I’m always told words to this effect – No, we all know you have the left sided gas pedal, so don’t worry about it.

          Well, that day after waiting to hear that the air-conditioning had been fixed, I received a call from the dealership that, somehow or another, the mechanic, when ready to drive the car out of the shop, somehow stepped on the pedal and crashed into two other cars being worked on in the repair bay.  One of these cars, it seems was on a lift soooooooo, the lifted tire wound up putting quite a dent into the roof, the rest of the damage (fortunately) was also on the outside of the car.  There were, maybe, two panels – the driver’s door and another one – that were without a dent of some kind.

          The dealership agreed it was all their fault and would take care of repairing it BUT first they had to contact their insurance company who, they said, would contact me.  After a two week period without hearing from anyone, I called the dealership – they gave me the telephone number of their insurance company, who I called and who then gave me the name of the adjustment company they use for repair estimates.  When I called that company the young lady who answered when I told her my name, said:  “Oh, that’s the file that we don’t know what happened to it – it’s somewhere in ‘la-la’ land.”  However, she did take all the information from me and promised that an adjuster/appraiser would be calling me either that day or the next.  Well, four days later, after I again called, the adjuster called me and said they had given him the wrong number for me.  Anyway, he came right over – checked over the minivan, taking numerous digital pictures of it, and told me I would have the estimate within a day or two.

          The next day the insurance company called to tell me they had the estimate and that it came to $7,063.24 and said that they would be sending me a Release to sign and a check made out for that sum.  She then faxed me over a copy of the adjuster/appraiser’s findings – three pages.

          I took the papers over to the dealership and the service advisor took me over to the Body Shop, to speak to the body advisor who would be in charge of repairing the damage.  This young man told me it would take approximately three (3) weeks (YES, 3 weeks) to repair it ONCE all the parts were ordered and received.  It seems they are allowed to work on a particular car only 5 hours a day and, according to the adjuster/appraiser, the minivan needed 87 hours of work….

          Now, of course, they said they would give me a car to use during that time.  But, as you know, I use a left-sided gas pedal, and after first shaking his head that he didn’t know if they could find one, I gave him the number of Van Get-a-ways to see if they could help out.  Well, seems they only have hand controls – so, still have a problem.  May be resolved by them giving me a “good will” allowance enabling me to fly to my son’s on Long Island for Thanksgiving.  Since this will be going out before then, will continue the saga in the January/February newsletter.

 

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Reprinted from USA Weekend, July 8-10, 2005

 

HealthSmart

By Dr. Tedd Mitchell

 

EXPIRED DRUGS:

TOSS ‘EM?

 

Dear Dr. Tedd:

Must I throw out any medication that’s past its expiration date?  If a drug expires on one day, does that really mean it’s no good the next day?

          BACK in 1979, a law was passed requiring drug manufacturers to print an expiration date on the bottle or package.  That date is generally two to three years from the date the drug was made.  The manufacturer guarantees that the medication (over-the-counter as well as prescription) will have its full potency and safety through that date – if left in the original, unopened package.

          Does that mean it starts to degrade, or break down, soon after that date?  Probably not.  It’s important not to confuse a drug’s expiration date with its shelf life.  As long as you don’t unseal the manufacturer’s container, a drug may be good far beyond its expiration date.

          We know this because back in 1985 the Air Force wound up with a stockpile of medications that were just about to expire.  Not wanting to throw away medicine (and money) unnecessarily, the Air Force asked the Food and Drug Administration to check the drugs for safety and effectiveness.  The FDA estimated that 80% of the medications would remain safe for nearly three years past their expiration date.

          Some people suspect that expiration dates have as much to do with marketing as science.  By dumping expired drugs and restocking, pharmacies and families keep the economic machinery of the manufacturers running.  Of course, folks in the pharmaceutical industry have a different view.  They say replacing medicines promotes public safety.  Indications for medications change, and labels need to be updated.  New drugs are developed that sometimes are more effective than the older ones.

          The American Medical Association wants more testing to see whether expiration dates can be lengthened.  The AMA also points out that the downside of expired drugs is lost effectiveness, not toxicity.  Many people believe that taking an old medication can be harmful, but the data just doesn’t support that.

 

PLAY IT SAFE:

SOME MEDICINES DON’T LAST

        Even though testing has been limited, I think it’s safe to say that using most medications for three years after their expiration date is all right, with a few caveats:

  Liquid or suspension medications.  These don’t retain their potency nearly as well as solid medications, so stick to the expiration date on the package.

  Lifesaving” medications.  Someone taking a medication for a severe cardiac arrhythmia probably shouldn’t rely on an older drug to do the trick.

  Medications bottled by the pharmacist.  Remember that expiration date guarantees come from the manufacturer and are based on unopened packages.  After a pharmacist breaks the seal, counts out pills and puts them in a pharmacy bottle, he places a new expiration date on that bottle.  It’s generally limited to about a year from the time the prescription is filled.  This is called the “beyond use” date.  So drugs you pick up from a pharmacy that are in one of the pharmacy’s bottles may not last quite as long, although the three year rule might still apply.  Ask your pharmacist.

          A TIP:  To improve the efficacy of the medications in your home, store them in a cool, dry spot; the refrigerator is probably best.  That will help ensure their long-term effectiveness.

FECPPSG Editor’s Note:-  I, for one, always ask either my pharmacist or doctor as the how long the particular drug retains its effectiveness.

 

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The following is reprinted from “Elder Update”, May-June 2005 – and most appropos after the previous article….

 

INFORMATION ABOUT GENERIC DRUGS

 

1.  What is a generic drug?

          A generic drug is a copy of a brand-name drug that is equivalent in drug in dosage, safety, strength, how it is taken, quality, performance and intended use.

 

2.  Are generic drugs as safe as brand-name drugs?

          Yes.  The Food and Drug Administration (FDA) requires that all drugs be safe and effective.  Since generics use the same active ingredients and are shown to work the same way in the body, they have the same risks and benefits as their brand-name counterparts.

 

3.  Are generic drugs as strong as brand-name drugs?

          Yes.  FDA requires generic drugs to have the same quality, strength, purity and stability as brand-name drugs.

 

4.  Do generic drugs take longer to work in the body?

          No.  Generic drugs work in the same way and in the same amount of time as brand-name drugs.

 

5.  Does every brand-name drug have a generic counterpart?

          No.  Brand-name drugs are generally given patent protection for 20 years from the date of submission of the patent.  This provides protection for the innovator who laid out the initial costs (including research, development and marketing expenses) to develop the new drug.  However, when the patent expires, other drug companies can introduce competitive generic versions, but only after they have been thoroughly tested by the manufacturer and approved by the FDA.

 

6.  What is the best source of information about generic drugs?

          Contact your physician, pharmacist, or insurance company for information on your generic drugs.  You can also visit the FDA web site at http://www.fda.gov/cder/ ogd/index.htm for more information.

Source:  U.S. Food and Drug Administration – http://www.fda.gov/cder/consumer-info/generics_ q&a.htm

 

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Keys Locked In Your Car????

 

Did you know this??


 If you lock your keys in the car and the spare keys are at home, call someone on your (or someone else's) cell phone.


Hold your cell phone about a foot from your car door and have the other person at your home press the unlock button of your key fob (clicker), holding it near the phone on their end. Your car doors will unlock. Saves someone from having to drive your keys to you.


 Distance is no object you could be hundreds of miles away, and if you can reach someone who has the other "remote" for your car, you can unlock the doors (or the trunk!).

 

FECPPSG Editor’s Note:-  The above article was sent to me by Professor Michael Kossove who has been an avid PPS advocate for the past 20 odd years.  Thanks, Mike…

 

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The following article was presented at the Post-Polio Health International’s Ninth International Conference on Post-Polio Health and Ventilator-Assisted Living, June 2-4, 2005.

 

 

RESEARCH 1: WHAT IS BEING DONE? WHAT NEEDS TO BE DONE?

Update on Modafinil Study

Olavo M. Vasconcelos, Md,

Rockville, MD

 

Post-Polio Syndrome (PPS) Fatigue:  The New Challenge 50 Years After the Salk Vaccine

          Post-Polio Syndrome (PPS) is the term used to describe the reemergence of symptoms decades after recovery from acute poliomyelitis.  Symptoms include increasing muscle weakness, pain, and atrophy, fatigue, breathing and swallowing difficulties, sleep disorders, and cold intolerance.  After starting, symptoms progress overtime and lead to gradual functional loss.  Usually, but not always, PPS symptoms begin after 15 or more years  of stable function that follows recovery from paralytic polio.

          Among the PPS symptoms, fatigue is the earliest and most disabling.  Because of fatigue, many polio survivors are forced to leave work or lose the ability to live independently.  The fatigue of PPS is not only debilitating, it affects the vast majority of polio survivor population.  Estimates show that 79% to 89% of patients with PPS suffer from fatigue.  A 1985 survey of 676 polio survivors showed that 91% of the sample experienced new or increased fatigue, with 41% claiming an interference of fatigue in performing work and 25% in self-care activities.  A questionnaire completed by 276 Norwegian subjects with PPS showed  that the prevalence of fatigue in PPS patients is significantly higher than in matched controls.

          The cause of fatigue in PPS patients is only vaguely understood.  It is thought that multiple domains of subjects’ function are involved.  In PPS patients, at least in part, fatigue is related to the gradual loss of individual nerve cells that make contact with other nerve cells (within the central nervous system), or with muscle fibers (within the peripheral nervous system).  This results in subsequent loss of nerve transmission to these circuits.  During the original polio infection, the poliovirus destroys nerve cells in the brain and spinal cord, particularly but not only, motor neurons.  Among other things, this can result in loss of muscle function, including weakness or paralysis.  However, to compensate for this loss, surviving neurons sprout out extra branches that are able to reestablish synapses (contacts), especially with orphaned muscle fibers that have lost their original nerve supply.  Because of this process of reinnervation the individual is able to regain function.  This is easily noticeable within the muscle system:  body muscles are able to work again, sometimes as well as before.  Ironically, these repaired circuits appear to wear down with aging.  Some researchers have suggested that PPS develops because these extra sprouts cannot “hold” forever, but instead get weaker over time due to “over-use”.  Eventually, the sprouts degen-erate, and function mediated by the neural contacts they have secured for years decline or disappears.  This explains why recovered muscles gradually weaken and loose bulk when PPS settles in.  An important lesson from the facts outlined above is that the fatigue faced by PPS patients is complex and involves multiple domains of function (emotional, intellectual, social, etc.) not simply the physical (muscular) dimension.

          Unfortunately, except for supportive care, effective pharmacological therapies for the fatigue of PPS remain elusive.  This problem remains as one of the most difficult new challenges faced by survivors of the last epidemics 50 years after the Salk vaccine.

          Attempts at symptomatic management of other PPS symptoms have not met with much success either.  In the past, several groups of researchers worked independently while investigating the origin of PPS and ways to reduce the burden of the incapacitating fatigue.  About half a dozen clinical trials directed to reduce fatigue, the most common and disabling problem faced by patient, were done but arrived at negative results.

          In year 2001 the PPS Program was funded.  The PPS Program is sponsored by the Uniformed Service University (USUHS) and administered under the auspices of the Henry M. Jackson Foundation (HMJ).  The mission of the PPS Program is to advance knowledge on the cause and treatment of post-polio syndrome.  To achieve this goal several independent studies are taking place, some in the form of clinical trials intended to test the effect of medications to reduce the symptom burden in PPS patients.

          Currently, the PPS Program is enrolling volunteers to participate in a clinical trial on PPS fatigue.  This study will test if a medication called modafinil (Provigil) can help reduce the fatigue of patients with post-polio syndrome.  This research is being done because, despite intense work, there still is no effective treatment for PPS fatigue, the most debilitating problem in persons with PPS.  The nature of PPS fatigue is poorly under-stood but a central element is likely.  This is supported by the damage caused by the poliovirus to neurons is supra spinal areas of the central nervous system, particularly the basal ganglia and reticular formation.  Drugs reducing fatigue in neurological conditions usually act by facilitating central catecholaminergic tone. The centrally-acting a-adremergic agonist modafinil may help lower fatigue in PPS subjects.  Modafinil has been used successfully to reduce fatigue in patients with other neurological disorders, including multiple sclerosis.  Other studies in our program are directed to investigate different aspects of PPS.  A second study (also actively enrolling) is looking at alterations in the brain and spinal cord of polio survivors that might help explain the development of PPS and the origin of PPS symptoms.  This one is not a treatment trial.  Instead, we are employing electrophysiology techniques and magnetic resonance to map possible residual abnormalities in the central nervous system induced by the poliovirus during the original infection.

          A third study is coming up soon.  This one will examine if cognitive problems that are common is survivors with PPS, by measuring the brain ability to concentrate, sustain attention, register and memorize information, etc., with the use of traditional neuropsychological tests.  These studies aim to advance knowledge in several different areas of PPS and hopefully, help us design and test therapeutic interventions that can be safely used to reduce disability in polio survivors.  For more information, please contact our research nurse coordinator, Ms. Kay Kelley, at 301-295-0231.

Olavo M. Vasconcelow, MD

Post-Polio Syndrome Program (PPSP)

Uniformed Services University (USUHS), Bethesda, MD

Henry M. Jackson Foundation (HJF), Rockville, MD

 

FECPPSG Editor’s Note:-  Although the conference was in June, I think that if you are interested in taking part in any of the studies, you can still call Ms. Kay Kelley as stated above.

          This article was slightly edited.

 

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The following was also e-mailed to me by one of our members, Lisa Haines, from PA.  Thanks, Lisa.  It’s another way to “get even” with telemarketers…

 

TELEMARKETERS

 

The phone rang as we were sitting down to dinner.  I answered it and was greeted with, "Is this William Wagenhoss?"


This didn't sound anything like my name, so I asked, "Who is calling?"

The telemarketer said he was with The Rubberband-Powered Freezer Company or something like that.  I asked him if he knew William personally and why was he was calling this number.  I then said, off to the side in a low voice, "Get really good pictures of the body and all the blood."

I turned back to the phone and advised the caller that he had called a murder scene and must stay on the line because we had already traced this call and he would be receiving a summons to appear at the local courthouse to testify in this murder case.

I questioned the caller at great length as to his name, address, phone number at home, at work, who he worked for, how he knew the dead guy and could he prove where he had been about one hour before he made this call.  The telemarketer was getting very concerned and his answers were given in a shaky voice.

I proceeded to tell him we had located his position at his work place and the police were entering the building to take him into custody.  At this point, I heard the phone fall and the scurrying of his running away.

My wife asked me as I returned to our table, why I had tears streaming down my face and so help me, I couldn't tell her for about fifteen minutes.  My food was cold, but oh-so-very enjoyable.

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E-mail is wonderful – the following was sent to us by several of our members as well as some of my non-polio friends….  It’s good advice.

 

FYI:- ICE

 

Paramedics will turn to a victim's cell phone for clues to that person's identity.  You can make their job much easier with a simple idea they are trying to get everyone to adopt: ICE –

 

ICE stands for In Case of Emergency.  If you add an entry in the contacts list in your cell phone under ICE, with the name and phone # of the person that the emergency services should call on your behalf, you can save them a lot of time and have your loved ones contacted quickly.  It only takes a few moments of your time to set up.


Paramedics know what ICE means and they look for it immediately!  ICE your cell phone now.

 

FECPPSG Editor’s Note:-  I just ICEd my cell phone.

 

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Reprinted from Polio Heroes of Tennessee, September 2005.

 

A CLARIFICATION OF

NON-PARALYTIC POLIO

By Ernest W. Johnson, MD

 

(Dr. Johnson is editor of the American Journal of Physical Medicine and Rehabilitation.  He is a well recognized expert on Post-Polio Syndrome.)  Reprinted from Polio Canada, Spring 2004.

 

For many years, most physicians have understood that non-paralytic is a loose clinical term implying that neither the patient nor the clinician-examiner reported functional weakness.  This determination was often made without the understanding that 50% of the motor units can be lost before a manual muscle grade of four occurs.  This means that many patients with acute polio were tabled non-paralytic incorrectly, but certainly in a well-meaning way.

When the polio virus is in the gastrointestinal tract of an individual and causes symptoms, the term abortive polio has been used.  This is the condition that confers immunity on the individual and also prevents the carrier state.  This is why the Sabin (attenuated, live poliovirus) vaccine prevents the invasion of the poliovirus into the central nervous system, but not the poliovirus from living in the gastrointestinal tract.

In those individuals whose immune systems, for whatever reason, permit the invasion of the central nervous system by the poliovirus, a population of anterior horn cells will die.  The number of these cells that die will determine whether the clinician will be able to identify paralysis.

          In the late 1950s, our electromyographic studies suggested that in all patients who experienced the invasion of the central nervous system by the virus, pain, meningismus, and positive spinal fluid findings revealed abnormal irritability (fibrillation and positive waves) in many muscles that were clinically “normal”.

          It should be absolutely understood that patients who were told that they had non-paralytic polio did, in reality, have polio which affected their anterior horn cells.  Now, 30 to 40 years later, these patients are potentially subject to all of the vagaries and insults to the body that affected other persons with post-polio syndrome.

 

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Reprinted from Polio Heroes of Tennessee, September 2005.  Reprinted from SPIRIT, PPSG, Southeastern, WI, June 2004.

 

NO MORE EXCUSES!

 

          A powerchair (not Manual) or scooter is not an instrument of torture.  (Although a manual chair can be!)  Using a powerchair or scooter will not make you look stupid – at least not as much as pretending you don’t need one while taking pain meds and stumbling around, falling down, requiring surgery on hands, elbows, shoulders, knees, etc.

          Using a powerchair or scooter will give you more energy because you won’t be using all your energy in trying to accomplish the impossible (i.e. – looking like you don’t need one).  Using a powerchair or scooter will  actually be more freeing.  You will have the freedom to go where ever you want, without having to have someone chained to you to push you here and there – and then go off to look at something else that interests them and leave you stranded.  (Been there, done that!)

          Using a powerchair or scooter will relieve the strain on overtaxed shoulder muscles and joints that were never meant to be walked on in the first place, thereby eliminating much of the unnecessary surgeries which, by the way, will not last unless you change the way you do things.  You may also find that you don’t need as much or any of the pain meds.

          Using a powerchair or scooter will show that you are winning the battle!  But you need to define your battles.  You already had polio.  No way to change that.  You are having post-polio sequelae.  Another done deal.  These are battles people frequently think that they need to fight against, but there is no way to win here.  It’s happening.  Live with it.  But the battle you can win is the battle for independence!  You can be your own person again.  It has been said, “Fight only the battles you can win”.  Living life on your own terms is possible only if you have the stamina, the balance, and the heart for it.  We all have the heart for it. . . we are polio survivors!  What we don’t have are the balance and the stamina.  A powerchair or scooter can help.

          Do you always walk to the grocery store 5 miles away?  Do you walk to work? To Church?  Of course not!  You use the technology available to you – a car or public transportation.  Do you mix your cake batter with a spoon?  Or do you use an electric mixer?  These are devices that help to make our lives easier. So are powerchairs and scooters.  You are not giving in. . . you’re stepping up to an easier way of doing things. And Boy! Are they ever fun!

          If you are thinking about it, it is probably past time to do it.  And the sooner you start using a power mobility aid, the longer you might retain the ability to walk and the easier it will be on your arms and shoulders in the long run.  I wish you well.

 

(PH of TN Editor’s Note:  This article was not authored by name.  I wish I had written it!  It sounds very much like words of Dr. A. C. Higgins, MD of Memphis, TN that I heard 18 years ago.  He always sprinkled seriousness with humor.  Whoever the author, Hats Off!!)

 

FECPPSG Editor’s Note:-  As most of you know, I use a scooter – in fact, I’m on my third Electric Mobility Rascal.  Whenever I see a polio (or other mobility impaired individual) that should be in a powerchair or scooter I cringe.  If I question them as to why they’re not using a powerchair or scooter, they’re answer is usually that they don’t need it – they aren’t that bad.  Hopefully, this article will help some realize that using such an aid will open many doors that have been closed to them – such as going to the mall, going to theme parks, taking a “walk” with the grandchildren….  Please, if you need a powerchair or scooter, look into getting one.

 

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Now that we are finally getting into the cooler weather, I thought I would reprint an e-mail I received a while ago and had inserted into a newsletter a year or two ago – however, it’s still appropriate. Soooo, here it is…

 

GONNA BE A BEAR

 

In this life I’m a woman.  In my next life I’d like to come back as a bear.  When you’re a bear, you get to hibernate.  You do nothing but sleep for six months.  I could deal with that.

Before you hibernate, you’re supposed to eat yourself stupid.  I could deal with that too.

When you’re a girl bear, you birth your children (who are the size of walnuts) while you’re sleeping and wake to partially grown, cute, cuddly cubs.  I could definitely deal with that.

If you’re a mama bear, everyone knows you mean business.  You swat anyone who bothers your cubs.  If your cubs get out of line, you swat them too.  I could deal with that.

          If you’re a bear, your mate EXPECTS you to wake up growling.  He EXPECTS that you will have hairy legs and excess body fat.

          YUP, gonna be a bear!!!

 

FECPPSG Editor’s Note:-  So, what do you think????  Oh, and thanks to Gary Fredericks for sending it to me last month.

 

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Reprinted from HealthSmartUSA Weekend, Sept 16-18, 2005

 

FEED YOUR HEART

by Dr. Tedd Mitchell

 

Trans fats are a main culprit in raising “bad” cholesterol, says a key study of women.

 

          What we know about the impact of diet on cholesterol has evolved over time.  This is best evidenced by the changes in the USDA food pyramid:  the guidelines now call for more liberal amounts of fats in the diet, while discouraging the consumption of specific fats associated with hardening of the arteries.

          Two of the biggest offenders are saturated fats and trans fats.  Both are associated with coronary heart disease and now are being targeted by nutritionists and the health care industry.  One reason for this is a study published in The New England Journal of Medicine in 1997 in which researchers looked at the type of fat intake in coronary heart disease in women.  In the study, saturated and trans fats “took the cake” (pun intended) when it came to heart disease.

          Let’s take a closer look at trans fats.  They are produced by partially hydrogenated vegetable oils, which make them into solid fats (such as margarine or shortening).  Some trans fats also are found naturally in foods.  A high intake of trans fats raises the LDL (the “bad” cholesterol), which in turn raises the risk for heart disease.

          Trans fats are used in many products, including candies, cookies, baked goods, fried foods, crackers and other processed foods made with partially hydrogenated vegetable oils – a rather extensive list.

          Unfortunately, some in the food industry understand the potential problem with trans fats in the diet; they’ve worked to reduce the amount in the products we buy.  Frito-Lay, for example, has made sweeping changes in many of its snack products, dramatically reducing the amount of trans fats.  In New York City, there’s a push by the health department for the city’s restaurants to stop serving foods containing trans fats.  More and more, those who make or serve products for public consumption are attempting to change the quality of what we put on our plates and in our mouths.

          But it’s not up to others to improve our health.  We are responsible for our own health.  It is up to us to bone up on the facts.  The first step in improving our diet is understanding more about it.  To keep your heart healthy, learn what raises cholesterol.  The new food guide pyramid can help you; visit mypyramid.gov for details.

          The knowledge that you gain from learning more about cholesterol can help you and your family.  The heart attack you prevent may be your own!

 

Contributing Editor TEDD MITCHELL, M.D., is medical director of the Wellness Program at the renowned Cooper Clinic in Dallas.

 

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THE GOOD FATS

Increase your intake of these fat sources:

                   nuts – vegetable oils – fish

 

THE BAD FATS

Limit these solid fats:

butter – shortening – margarine – lard

 

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ODD SHOES

 

Catherine  has a shoe service.  Do you need two different size shoes? Do you need split-size shoes? She has a free listing web site which also helps connect people with mutual shoe size needs at,   www.Mermade.homestead.com/pedpals. html. 

Her name is Catherine Beausoleil.....

   4476SymcoAvenue

   NorthPort,FL  34286 

 

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Anesthesia and Post-Polio Today

with Selma Harrison Calmes, M.D.

Reported by Mary Clarke Atwood

Editorial Assistance by Virginia Duboucheron and S.H. Calmes, M.D.

Rancho Los Amigos Post-Polio Support Group Newsletter - June 2005

This report is based upon Dr. Selma Calmes presentation to the Rancho Los  Amigos Post-Polio Support Group on June 26, 2004. Dr. Calmes -- a polio survivor -- is Chief of Anesthesia at Olive View-UCLA Medical Center.

 

Aspects of anesthesia included in this report are:

·        Requirements for Excellent

Anesthesia

·        Post-Polio and Anesthesia

Management

·        Types of anesthesia

·        What Should your Anesthesiologist Know or Do?

·        What Type of Anesthesia is Best?

·        Preparing for Surgery

·        Frequently Asked Questions

 

Requirements for Excellent Anesthesia

Excellent anesthesia for any patient depends upon the anesthesiologist under-standing the patient’s disease(s) and knowing how those diseases might affect anesthesia. The patient needs to be evaluated beforehand and an appropriate anesthesia plan for each operation and for each patient needs to be prepared in advance.

 

1) The Operation

Operations are performed for different reasons and each operation has various requirements for anesthesia. The anesthesiologist must be aware of these conditions and develop an appropriate plan for each patient having every operation; different anesthesia plans might be used for subsequent operations.

 

2) The Patient

The anesthesiologist needs to know the patient’s current health conditions and also his or her medical history to determine what the most serious problem is for that patient. The surgery patient may be a polio survivor and also have other diseases; post-polio may not be his or her most serious problem. Some polio survivors have already had multiple surgeries and exposures to anesthesia. There might have been an unfavorable experience that could play a role in what is planned.

 

There is also a psychic component that needs to be addressed: Patients who had polio may have negative feelings about being hospitalized.  Being admitted to a hospital and losing control again may bring back unpleasant memories of childhood hospitalization.

 

3) The Surgeon

The personalities of surgeons are varied. Most are calm, but some scream or throw instruments. This is very disruptive to the patient on the operating room table. So for certain surgeons, local anesthesia is not an appropriate choice. If local anesthesia is strongly recommended for the procedure, the anesthesia staff can occasionally negotiate for another surgeon -- someone who can be gentle, calm, and speak in a quiet tone of voice during the operation -- if local anesthesia is strongly indicated.

 

4) The Anesthesia Plan

Some anesthesiologists might be particularly good at one technique, so it might make sense to choose that method if it were a suitable choice. Conversely, the anesthesiologists might want to practice a new technique, or renew their skills on some technique they had not used for a while. The operation, the patient, and the surgeon are all considered in developing the plan for excellent anesthesia. There is also a back-up plan, possibly even two back-up plans in difficult situations, in case the first plan needed adjustments.

 

PPS and Anesthesia Management

Polio is a systemic disease. The poliovirus likes to live inside the spinal cord, especially in the anterior horn cells. These horn cells supply the motor nerves.

 

Traveling in the nearby intermediolateral columns are the nerves to the sympathetic and parasympathetic nervous system that make up the “autonomic” nervous system - the nervous system that controls how the bowel moves, how the stomach empties, how the legs respond to a cold environment. These nerves were often damaged during acute polio. These transformations were evident in a photo of a section of spinal cord.

 

Another photo, from 1870, the first picture of a cross-section of a spinal cord in a polio patient, showed how shrunken and destroyed one side became. In addition to the motor changes, the left side lower extremity paralysis showed that this patient would also have had changes in the autonomic nervous system. This is very important for anesthesia planning.

 

What is the Autonomic Nervous System?

The autonomic nervous system (ANS) is a regulatory structure that helps people adapt to changes in their environment. It adjusts or modifies some functions in response to stress. The ANS helps regulate:

  • blood vessels' size and blood pressure.
  • the heart's electrical activity and ability to contract.
  • the bronchium's (BRON'ke-um) diameter (and thus air flow) in the lungs.

The ANS also regulates the movement and work of the stomach, intestine and salivary glands, the secretion of insulin and the urinary and sexual functions. The ANS acts through a balance of its two components, the sympathetic nervous system and parasympathetic nervous system.

http://www.americanheart.org/presenter.jhtml?identifier=4463

 

Possible Surgery Problems from Autonomic Dysfunction:

1)     The stomach may not empty well (emptying is often delayed).

2)     Person may have reflux of stomach acid up into the esophagus and then into the lungs if the person cannot close the larynx to protect the lungs.

3)     Blood pressure may be low when the person is anesthetized.

4)     Pain sensitivity may be exaggerated, especially in the affected extremities.

 

These are everyday problems for anesthesiologists. There are many ways to deal with these problems if the anesthesiologist knows about the possibilities and plans for them.

 

Polio didn’t just affect the spinal cord; it was a systemic disease that went throughout the body. The body’s response to the original polio inflammation resulted in scarring and fibrosis, which changed things anatomically. Studies in the 1940s showed there were also lesions in the brain; its reticular activating system, which keeps us awake, was often affected anatomically. This is thought to explain some of the excessive tiredness that is seen in many people with post-polio. Several scientists have reported changes in the white and gray matter in the brain, observed in MRI studies of the brains of people with PPS. This confirms that the brain was indeed affected by polio in many people.

 

There are also lesions in the hypo-thalamus, which is very deep in the brain. That is the center where different hormones are secreted: corticoid-releasing hormones release cortisol (a stress hormone), ACTH stimulates the release of the stress hormones, and cortisol itself.  These are all thought to be decreased in many post-polio patients because of changes from the original disease. However this is extremely variable from person to person. Not every patient has this.

 

There is very good evidence that, during the original disease, there was damage done to the neuromuscular junction, where the nerves and muscles interact. This is probably why polio survivors are sensitive to injected muscle relaxants used for anesthesia. Nobody has really studied this in modern times; this information is all coming from past anatomic work.

 

Summary of Anatomic Defects:

1)     Loss of anterior horn cells would cause motor weakness so an extremity might be smaller.

2)     The intermediolateral column where the sympathetic nerves are traveling had “spill-over”, so many polio survivors don’t have a normal autonomic nervous system.

3)     The brain had changes in the reticular activating system that can affect wakefulness. So a person could be sensitive to the anesthetic agents that put patients to sleep.

4)     There is a question of whether polio survivors can release an adequate amount of stress hormones while undergoing surgery.

5)     The poliovirus may have damaged the neuromuscular junctions; so affected patients may well be sensitive to injected muscle relaxants used for anesthesia.

 

The Planned Operation

Anesthesia requirements may vary depending upon the surgeon and the operation. Some surgeries need a particular kind of anesthesia; others can be done with just sedation and don’t require general anesthesia.

 

A typical post-polio surgical patient may have:

1)     Anxiety about having anesthesia, possibly due to past experience or what he has read.

2)     Obesity

3)     Paralysis of extremities or perhaps contractures that could affect positioning on the operating room table.

4)     Pharyngeal and laryngeal muscle weakness, including voice change. This is appearing increasingly and is due to central changes from the original polio.

5)     Ventilatory muscle weakness (chest muscles and diaphragm).

6)     Autonomic dysfunction from sympa-thetic nervous system changes, including reflux.

7)     Sensitivity to anesthesia be-cause of central nervous system changes from acute polio.

8)     Possible increase in post-operative pain.

 

At the Seventh International Post-Polio Conference, Dr. Calmes stated that short-acting muscle relaxants are often used at the start of general anesthesia to help place a breathing tube. The new LMA (laryngeal mask airway) does not require muscle relaxants to place it. However, many post-polio patients are at risk for aspiration because they often have gastroesophageal reflux or hiatal hernia, and the LMA would not be safe for them. A breathing tube prevents aspiration, which can be a serious and possibly fatal complication.

 

The current recommendation is still to NOT use the LMA when there is the risk of aspiration – unless it is a life-threatening situation and is needed to save a life.  

 

Types of Anesthesia

Many drugs are available for use in anesthesia. Some are liquids that are vaporized and inhaled by the patient; many others are injected. For an average case the anesthesiologist might have seven or eight syringes of different drugs ready and could possibly need more. There are three basic types of anesthesia:

1)     General (completely asleep)

Muscle relaxants are often used along with the inhaled and injected drugs so that less of the very potent and possibly harmful anesthetics are needed. The muscle relaxants are monitored by an electrical nerve stimulator box, which is connected by electrodes to a nerve in the arm, hand, face, or foot during surgery. When the nerve is stimulated there is a muscle response that can be measured. There are many things that can be learned by using this nerve stimulator. It can even be set up to produce a paper strip record of the reactions, including the strength of the contraction. When the muscle relaxant is injected, the strength of the contraction decreases. By using the nerve stimulator as a monitor and by using moderate doses of muscle relaxants, there is usually no problem with muscle relaxants in post-polio patients.  At the end of surgery the effect of the muscle relaxant is reversed and the muscle response is measured using the nerve stimulator to ensure that the patient has normal neuromuscular trans-mission.

 

Curare, an antique drug that is no longer used, was the muscle relaxant most focused on in the past as a problem for post-polio patients. Muscle relaxants are not contra-indicated for polio survivors, but they should be in the proper dose and their use should be monitored. The thing to remember is: The problem is not the specific drugs but it is the way they are used.

 

2)     Regional (only part of the body is anesthetized)

Dr. Calmes thinks this is a really great technique. Anesthetizing the spinal cord or the nerves blocks the signals (terrible pain) coming from the areas where the surgeon is working. This is very favorable for the body as it prevents the release of stress hormones.

 

Types of regional anesthesia:

·        Spinal

Local anesthesia is injected into the space around the spinal cord (subarachnoid space) and goes on the surfaces of the spinal cord and the nerves departing the spinal cord, causing anesthesia.  

 

·        Epidural

The local anesthesia is placed in a fat-filled space between some ligaments near the spinal cord.  The advantage of an epidural is that a tiny catheter can be inserted and repeat doses of the local anesthesia can be given. This epidural catheter can also be used for post-op pain control following painful surgeries; a narcotic such as morphine can be put in the catheter to achieve pain relief for 24 hours or more. This knowledge of the effect of placing narcotics in the epidural space is a result of research done because of drug abuse problems. It has a very sound scientific basis.

 

If a person has severe scoliosis it is sometimes difficult to get into the spinal and epidural areas, but it is often possible.

 

·        IV block of the arm

Hand and carpal tunnel surgery are often necessary for post-polio patients. A tourniquet is put on the upper part of the arm; the venous system is emptied below the tourniquet, and then the empty venous system is filled with dilute local anesthesia. This type of anesthesia does have some safety considerations, but an IV block of the arm is very effective and works well for simple hand surgery.

·        Other arm blocks

Other arm blocks can be done through the axilla and above and below the clavicle. Shoulder surgery anesthesia is usually done with a supraclavicular block, affecting the top part of the shoulder all the way down to the hand. The patient is also put to sleep. Blocking first means that less general anesthesia is needed. Post-op, the block can give pain relief for 24-48 hours.

This block can also move up and anesthetize the larynx and can also paralyze the diaphragm, an important muscle for respiration. It has even been reported in healthy people that vocal cord and diaphragmatic paralysis has occurred.

 

If a person with PPS is facing shoulder surgery, he or she needs to be sure that the vocal cords are normal before agreeing to one of these other arm blocks. An Ear-Nose-Throat specialist can easily determine this.

 

·        Ankle block

Many people who had polio need foot surgery. Local anesthetic injections can be made in the ankle for this surgery.

 

3) Monitored Anesthesia Care (MAC)

MAC involves simple IV sedation given by the anesthesiologist with local anesthetic given by the surgeon.  The anesthesiologist sedates, monitors  blood pressure, the EKG, oxygenation, and talks with the patient to be sure he or she is comfortable. The anesthesiologist needs to be there because things can go wrong and also because general anesthesia may be needed.

 

The process of anesthesia includes the pre-op evaluation and plan, intra-op, the recovery (during which some problems may arise for polio survivors), and the post-op visit or call by the anesthesiologist to learn how the patient experienced the anesthesia and his recovery.

 

Anesthesia Pre-op Evaluation Clinic

Many hospitals today have an anesthesia pre-op clinic.  At Olive View-UCLA Medical Center the anesthesia pre-op clinic is open daily. A specially trained nurse practitioner evaluates each patient according to a protocol; an anesthesiologist is also available to see the patient in case there is a question.  (Other hospitals use different kinds of staff for such a clinic.)  The orders are given for advance lab work, EKG if needed, chest x-ray if needed, etc. 

 

Usually patients are seen up to two weeks before surgery. This is very good for a post-polio patient because he or she might need a respiratory evaluation, e.g. pulmonary function tests. This scheduling allows time for the necessary tests to be completed before surgery. The anesthesiologist would have all the information by the time of the surgery.

 

What Should your Anesthesiologist Know or Do?

 

Pre-op:

1) Learn your history.

He or she needs to know if you were in an iron lung and if you need or needed other ventilatory assistance. Have you had a trachesostomy in the past? What is your laryngeal functioning? Do you have reflux? Do you have obstructive sleep apnea?

2) Do a brief physical exam.

At least listen to your heart and lungs and look at your mouth and neck.

3) Your needs and your preferences should be discussed.

4) There should be a plan for post-op pain control.

 

All of these pre-op things take time. There is an extreme shortage today of anesthesiologists, especially in the Los Angeles area, making preoperative evaluation difficult to get done.  The work priority is the operating room, not the clinic.

Post-polio surgery patients have to make themselves known ahead of time, generally through the surgeon. Make it clear that you are a special case, and that you need evaluation. If you cannot have this pre-op evaluation, move on to another hospital.

 

During Surgery:

1) If muscle relaxants are used, be cautious and monitor their effect.

2) Be careful when positioning because of contractures, etc.

Limbs that are small or are contracted don’t have normal bone strength, so occasionally these become fractured during positioning in the operating room. This possibility needs greater attention.

3) Expect autonomic dysfunctioning (possible low blood pressure, delayed stomach emptying, etc.)

 

These are everyday problems for an anesthesiologist but it helps to call them to the attention of the anesthesiologist.

 

Post-op:

During the recovery period:

1) Watch for signs of respiratory problems (the recovery room nurse usually does this and reports to the anesthesiologist)

2) Treat pain promptly

The patient needs to be a “squeaky wheel” about pain.

 

Later:

The anesthesiologist should make a post-op visit or call.

 

What Type of Anesthesia is Best?

1) It depends on the person’s health. If the patient had severe cardiac disease as well as PPS, another kind of anesthesia might be chosen due to the cardiac disease.

2) It will also depend on what type of operation is planned and who will be doing the surgery. The anesthesialogist chooses the drugs to be used.

3) Patient preference

The patient might have had a bad experience in the past with a spinal anesthetic for example, and might always want to be asleep.

 

No one type of anesthesia is best; have confidence it will be safe for you.

 

Preparing for Surgery

·        Be in the best possible health condition. If a person were extremely overweight, losing some weight would help a lot.

·        If you smoke, stop smoking for as long as you can before the operation. There is a distinct improvement in lung function, even if a person stops for 24 hours.

·        No colds, bronchitis, etc. (six weeks free of symptoms)

·        Arrange for help at home during the post-op period. Surgery is quite an assault on polio survivors and some assistance will be needed. Don’t be a martyr and try to do everything.

 

Frequently Asked Questions

Q 1: Should a post-polio patient have a spinal or epidural anesthetic?

A: The benefits of good spinal or epidural anesthetics are so great in many instances, that they should be considered for polio survivors. That recommendation could change as knowledge of the spinal cord increases.

 

Q 2: Do the injected muscle relaxants have any precautions or long-term effects before and during surgery?

A: No. The muscle relaxants used during surgery help make the patient’s muscles relax and a patient will not require as much of the more potent drugs. The effects of these drugs end by the conclusion of the case. The new muscle relaxant drugs in use today hydrolyze themselves (fall apart) over a certain period of time. At the end of the case reversal drugs are given to deal with any residual effect that might be there. If monitoring is taking place, and the dose is appropriate, there should be no problem using muscle relaxants in surgery.

 

Q 3: Will injected muscle relaxants used for surgery affect my breathing?

A: Muscle relaxants do affect breathing; the anesthesiologist is responsible for monitoring breathing and giving any assistance needed.

 

These drugs are often used to help place the breathing tube (the endotracheal tube) for surgery. This allows optimal conditions (open the mouth easily, see the larynx) without being deeply anesthetized. The breathing tube is a valuable safety measure.

 

Q 4: How can a person relate his fears and concerns about anesthesia without getting a paternalistic response?

A: There is still a huge amount of paternalism in medicine today. One thing that may help is that there are more women doctors today, so there may also be a maternal response to help you through this…not always, but sometimes.

 

Dr. Calmes urges every polio survivor to be a “squeaky wheel” as to what you need and what you expect. You have the right to ask for what you need. If you can’t get it, you need to move on.  If necessary, have the procedure done at a different hospital. In the Los Angeles area there are a number of very good hospitals.

 

Q 5: What should a person discuss with the anesthesiologist?

A: Ask if the nerve stimulator will be used to monitor the dose of muscle relaxants. Tell him or her you need a pulmonary function test evaluation. Discuss positioning.

 

Conclusion

All the anxiety about anesthesia for polio survivors should really end. 

The specialty of anesthesiology has been the leading advocate for patient safety by sophisticated monitoring, by analyzing data, better education, etc. Anesthesia today is extremely safe. Careful evaluation and planning need to be emphasized. If the anesthesialogist assesses the patient correctly and plans correctly, and if the patient is in the best possible physical shape preoperatively, there is not often a problem with anesthesia for polio survivors.

© Copyright 2005

Mary Clarke Atwood

Reprint permission must be obtained directly from

Rancho Los Amigos Post-Polio Support Group

RanchoPPSG@hotmail.com

Reprinted from the Rancho Los Amigos June 2005 newsletter with permission of Mary Clarke Atwood.   Thank you Mary.

 

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Reprinted from Elder Update, September/October 2005

 

Credit Reports –

Be the First to Know

Submitted by Charles H. Bronson

Florida Department of Agriculture and Consumer Services Commissioner

 

          What is a “credit report?”  A credit report contains information about your credit history, including a listing of all your credit cards, whether bills have been paid on time and whether you have been sued or filed for bankruptcy.  National consumer reporting agencies sell the information to credit card companies and other creditors, insurers, employers and businesses that use it to determine whether to approve an application for credit, insurance, loans and employment.  A poor credit history can result in rejection of credit or higher interest rates on a loan.

          Consistently examining your credit history is one of the most important things you can do as a consumer to protect your-self from identity theft.  It enables you to identify if someone else is using your identity to obtain credit cards or loans without your knowledge.

          Identity theft is not the only concern.  It is important to regularly review all your credit reports for any mistakes.  Businesses inspect your credit report/ history when they evaluate your applica-tions for credit, insurance, employment and even leases.  They can use it to give or deny you credit or insurance, provided you receive fair and equal treatment.  It is very important to ensure the information is accurate and up to date, especially before making a major purchase.

          A recent amendment to the federal Fair Credit Reporting Act (FCRA) requires each of the nationwide consumer reporting companies (Equifax, Experian and TransUnion) to provide you with a free copy of your credit report, at your request, once every 12 months.  The law has been phased in across the United States and on June 1, 2005, Florida residents became eligible to receive their free credit report.

          If you are a resident of Florida, you are eligible for one free report, each year, from each of the three major credit reporting agencies.  Not all creditors report to all three agencies and the agencies don’t share their data so your reports from Equifax, Experian and TransUnion could be different from each other.  Therefore, it’s a good idea to order one report from one of the three bureaus every four months so you can monitor all your reports throughout the year.

          When you order your report, you need to provide your name, address, Social Security number and date of birth.  To verify your identity, you may need to provide some information that only you would know, like the amount of your monthly mortgage payment or any outstanding loans you may have.  If you have moved in the last two years, you may have to provide your previous address.  Each credit bureau may ask you for different information because the information each has in your file may come from different sources.

 

Create and Maintain a Positive Credit History

·        Print clearly when applying for credit.

·        Consistently use your complete

name.  Providing complete, accurate and consistent identification on your credit applications helps set up your credit history correctly from the beginning.  It also minimizes the chance that your credit file will be incomplete or mixed with another consumer’s file.

·        Review your credit report 60 to 90

days before making a major purchase (such as a house or car).

·        Pay your bills on time.  Delinquent

payments and collections can have a major negative impact on a score.

·        Keep balances low on credit card

and other “revolving credit.”  High out-standing debt can affect a score.

·        Apply for and open new credit

accounts only as needed.

·        Just because you pay off a credit

Card is no reason to close your account.  One little known fact about the Credit to Debt Ratio is the reverse effect it has on your credit score.  If you pay off a credit card, and close the account, you are actually negatively impacting your credit score.

 

          To obtain a free copy of your credit report, visit www.annualcreditreport.com.  You can also order your report by calling toll-free 1-877-322-8228.

 

            The Florida Department of Agriculture and Consumer Services works for the consumer to prevent fraudulent, deceptive and unfair business practices and to provide information to help consumers avoid them.  To file a complaint or to get free information on consumer issues give us a call at 1-800-HELP-FLA (435-7352), or 850-488-2221.  You can also visit us online at www.800helpfla.com

.

 

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JUST A SMILER

 

          While I sat in the reception area of my doctor’s office, a woman rolled an elderly man in a wheelchair into the room.  As she went to the receptionist’s desk, the man sat there, alone and silent.

          Just as I was thinking I should make small talk with him, a little boy slipped off his mother’s lap and walked over to the wheelchair.  Placing his hand on the man’s, he said, “I know how you feel.  My mom makes me ride in the stroller too.”

 

FECPPSG Editor’s Note:-  As they say – you never know what’s going to come out of a youngster’s mouth….  Most of the time they are little pearls of wisdom.

 

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Reprinted from the Daytona Beach News-Journal, October 5, 2005

 

PURGING POLIO

Yemen tries wiping out disease – again!

 

By Paul Garwood, Associated Press

 

AZ ZUHRAN, Yemen Ahmed Ali Taher laid his granddaughter in the shade of a barn, held out her limp legs and pleaded for a miracle.

          In this dirt-poor region along the Red Sea, 1-year-old Ismaa is one of hundreds of Yemeni children struck down this year by polio --- four years after the country thought it had beaten the disease forever.

          Yemen got rid of polio once – for a period of four years after the last case was reported in 2001.  But since late February, more than 470 Yemeni children have been hit with the disease, more than one-third of the total 1,273 cases detected worldwide this year. 

          The Yemen cases all stem from an outbreak in Nigeria two years ago, which occurred after Islamic clerics urged

parents to boycott the vaccine for fear it was part of an American anti-Muslim plot.  The polio that then erupted in Nigeria spread first to Chad, then to nearby Sudan – and then into Saudi Arabia and Yemen.

          “The Islamic world took a real beating because of what the clerics did in northern Nigeria,” said Bruce Aylward, coordinator of the World Health Organization’s Global Polio Eradication Program.  In Yemen, health officials backed by WHO and UNICEF recently held the fifth nationwide vaccination round this year.  About 3.8 million children under age 5 received two drops of vaccine each.

FECPPSG Editor’s Note:-  In countries where so many children need vaccinations, the oral vaccine (Sabine’s live virus) is still being given as it is much easier to give to a child, and less expensive than the “shot” (Salk’s dead virus).  I, as a polio survivor have no problem with them giving the children the oral.  However, once this possible “epidemic” is over, they (Yemen and the other Muslim countries) should continue giving the Salk vaccine to babies born thereafter.

 

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FECPPSG Editor’s Note:-  Oddly enough, after I read the above article about polio in Yemen, I opened my e-mail only to find that the Post-Polio of S Florida sent this article.  It should be most interesting to find out exactly how this baby contracted polio, supposedly from an oral vaccine vaccine-tion when, as the article states, really haven’t been given in our country since the CDC “recommended” that only the Salk polio vaccine be used.

 

Minnesota's polio case

is a health puzzler

Maura Lerner, Star Tribune

October 4, 2005

 

How did a baby in central Minnesota contract the virus that causes polio, a crippling disease that was essentially wiped out in the United States a quarter of a century ago.

 

That question has mystified state and federal health officials since tests confirmed the polio virus in an unidentified infant last week.

The case is especially puzzling because the baby, who was born in this country, was somehow exposed to a strain of virus found in oral polio vaccines, which haven't been used in the United States for five years.

"[It] is not a public health concern for the general public," said Kris Ehresmann, chief of immunization at the Minnesota Health Department. "But it is definitely a situation that is of great scientific interest. It's a unique situation."

Investigators now are testing relatives and others who have had close contact with the child to see whether anyone else may have been infected. They suspect that someone contracted the polio virus in another country and unwittingly passed it on.

The baby had no symptoms of polio, Ehresmann said. The virus was discovered during tests while the child was hospitalized for an unrelated immune condition. Officials declined to identify the child's gender or age, saying only that he or she is less than a year old.

The Health Department was asked to run lab tests to find out whether a virus was making the child sick. When no routine viruses showed up, they started looking for obscure ones. And they found the polio virus.

The child hadn't been vaccinated against polio, apparently because of underlying medical problems.

But health experts were astonished at the test results, to put it mildly. It's been 50 years since the polio vaccine was developed, in the midst of an epidemic that paralyzed as many as 21,000 Americans a year at its peak. By 1979, the disease had been wiped out as a natural threat in the United States.

For the next 20 years, virtually the only cases reported in this country -- an average of eight a year -- were caused by the oral vaccine, which used a modified live virus. Five years ago, the U.S. discontinued the oral vaccine and now uses a shot made from a killed virus that doesn't cause illness.

Since then, federal officials say, no one had contracted polio in the United States.

To make sure of their findings, state officials sent samples of the virus to the U.S. Centers for Disease Control and Prevention in Atlanta for more tests. Last week, the agency confirmed that it's polio.

"It's an unusual thing in any country," said Dr. Jim Alexander, a vaccine specialist at the federal agency. "There are many more questions so far than we have answers."

But they learned something remarkable, Ehresmann said. Using genetic finger-printing, the CDC experts discovered that the virus strain had been used in an oral vaccine two years ago.

That means that someone got the oral vaccine elsewhere -- it's still used in much of the world --and inadvertently transmitted the polio virus to someone else.

"You could have somebody who ... would appear completely healthy who could be unknowingly shedding virus," she said. It is transmitted by direct contact with stool (i.e. diapers).

Typically, she said, people can only infect others for about a week. But people with immune problems may harbor it indefinitely.

The baby is still hospitalized.

"I really hope that we'll be able to figure things out," Ehresmann said. "But it certainly is a possibility that there will still be some missing pieces to this puzzle when all is said and done."

 

Maura Lerner can be reached at:

mlerner@startribune.com

 

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Ain't it da truth

Thought I'd let my doctor check me,
'Cause I didn't feel quite right. . .

All those aches and pains annoyed me
And I couldn't sleep at night.

 

He could find no real disorder
But he wouldn't let it rest.
What with Medicare and Blue Cross,
We would do a couple tests.

 

To the hospital he sent me
Though I didn't feel that bad.
He arranged for them to give me
Every test that could be had.

 

I was fluoroscoped and cystoscoped,
My aging frame displayed.
Stripped, on an ice cold table,
While my gizzards were x-rayed.

 

I was checked for worms and parasites,
For fungus and the crud,
While they pierced me with long needles
Taking samples of my blood.

 

Doctors came to check me over,
Probed and pushed and poked around,
And to make sure I was living
They then wired me for sound.


They have finally concluded,
Their results have filled a page.
What I have will someday kill me;
My affliction is OLD AGE!

 

So now I’m going to take a NAP!!

 

 

 

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DUES FOR 2005

 

         Please take a look at your mailing label  -  on it you’ll see the month and year we received your 2004 dues, i.e., 01/2004 means it was received in January 2004, so your 2005 dues was due in January 2005. If your mailing label has the year first and then the month, i.e., 2004/01 it means that you indicated to us in January 2004 that you wanted to receive the newsletter but paid no dues.  That’s OK as we still believe that anyone who wants information should receive it – but we do need you to return the tear sheet with either the “Dues” box checked or the “Keep me on the Mailing List” box checked.

 

                Your dues covers the supplies we need to send out the information packets to all inquiring about Post-Polio Syndrome, any other correspondence we do, and postage for publicity and for the out-of-country (25) newsletters that we send out.  We’re fortunate in that the “Free Matter for the Blind and Physically Handicapped” status takes care of the postage for the over 450 newsletters sent out within the United States.  We network with approximately 60 other support groups throughout the United States, Canada, Australia and New Zealand – some 40 of these reciprocate by sending us their newsletters.  We receive as many dues checks from our out-of-state members as we do from our Florida members.  So, please check your mailing label and return the tear sheet if your date is due.  We really need your support now more than ever.  Just to keep you advised, in addition to the previously mentioned countries, our newsletter goes to England, France, Germany, Israel, Panama, Portugal, Lebanon, South Africa, Sweden, Taiwan and Wales.

 

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WHEN YOU MOVE  PLEASE be sure to send us your new address.  Sometimes the post-office will return the newsletter to us with a “forwarding period expired” notice on the front with your new address but most of the time they are just returned to us with “address unknown” on it.  SO, if you want to continue receiving the newsletter it is UP TO YOU to make sure we have your new address.

 

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FLORIDA  EAST  COAST  POST-POLIO  SUPPORT  GROUP

12  Eclipse  Trail  /  Ormond  BeachFL  32174

 386-676-2435  /  e-mail  address:  bgold@iag.net

 

DATE:                Sunday, November 20th, 2005

TIME:                 1:00 – 4:00 PM

PLACE:              Red Lobster Restaurant

                            International Speedway Boulevard

                            Right off I-95 – Exit 261– Daytona Beach, FL

                            (head EAST for about 1/4 mile)

 

 

PROGRAM:-     Guest Speaker:-   --   An attorney from the law firm of

Hill & Ponton will talk to us about Social Security

Disability and the new Prescription Drug Plan.

 

                                                                       

Cost of the Luncheon is $10.00 all inclusive.   As usual we will have a choice of several different menu items.

 

Please send in your reservation tear sheet and check

no later than September 14, 2005

 

Any questions call Barbara at 386-676-2435.

 

==================================================================================

 

R E S E R V A T I O N   F O R M

September 18,  2005 Luncheon Meeting

  

Name:- _______________________________  Phone No.:- _________________

 

Number of People Coming:- _________ Number in Wheelchair(s):-  ___________

 

Amount of Check Enclosed:-  ________________  @ $10.00 per person

 

Make check payable to and mail same to:

FLORIDA EAST COAST POST-POLIO SUPPORT GROUP

12 Eclipse Trail  --  Ormond Beach, FL  32174


11/2005

 

 

***********************************

 

FLORIDA EAST COAST POST-POLIO SUPPORT GROUP

12 ECLIPSE TRAIL

ORMOND BEACH, FL 32174-4936

386  676-2435            e-mail:- bgold@iag.net

 

       

DATE:                Sunday, November 20th, 2005

TIME:                 1:00 – 4:00 PM

PLACE:              Red Lobster Restaurant

                            International Speedway Boulevard

                            Right off I-95 – Exit 261– Daytona Beach, FL

                            (head EAST for about 1/4 mile)

 

PROGRAM:-         An attorney from the law firm of Hill & Ponton will talk

to us about Social Security Disability and the new

Prescription Drug Plan.

 

 

For further information call:-  Barbara  386-676-2435

 

==================================================================

 

2005 DUES/MAILING LIST

 

____ Dues Enclosed                                                            ____ Keep me on mailing list

 

If sending dues, please make Check ($5.00) Payable to and Mail to:-

FLORIDA  EAST  COAST  POST-POLIO  SUPPORT  GROUP

12  Eclipse Trail,  Ormond  Beach,  FL  32174-4936

 

NAME:- __________________________________________________________

 

ADDRESS:- _______________________________________________________

 

E-MAIL ADDRESS:-__________________________ FAX #:- _______________

 

TELEPHONE NO:- Home _______________________ Office ________________

 

Date of Birth:-_________________   Wedding  Anniversary:- ________________

 

Name and Date of Birth of Spouse:-_____________________________________

 

Support Group I belong to:- ____________________________________________

11/2005