**********************************
***********************************
MEETING NOTICE
SUMMER
VACATION --
played minor league
baseball while wearing braces on
both legs and
using crutches. A motivational speaker
worth listening to.
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CONTENTS
From
Barbara
1
Blood
Type Traits 2
Understanding Muscle Strengths 3
10 Best Nutrition Moves
7
I Forgot (almost) That You
Are
Disabled 9
Friends 10
Exercise Your Brain 10
Query 12
New Coping Skills 13
Dues 14
****************************************
FROM BARBARA
Don’t know about you, but I do almost all of my banking
going through the drive-through window.
Well, while doing this last month, I noticed that the March of Dimes
“shoes” for their Walk-a-Thon were taped on the window. I had a thought and asked the clerk taking
care of me, who was in her early 30’s, if she knew what the March of Dimes was
originally started for. After giving me
a quizzical look, she said: “No, it’s
for birth defects, right?” Well, of
course, I had to tell her that it originally was the National Foundation for
Infantile Paralysis (then told her that was what they called “polio” back
then), and that the phrase “March of Dimes” was coined by comedian Eddie
Cantor, during the depression years, when he basically said: If everyone sends in a dime, we will have a
“MARCH OF DIMES” to get research done. I
remember going every January, ringing doorbells, to collect those “dimes”. After I was married, I became the area
chairwoman for the Mother’s March, which took place every January around the
time of President FDR’s birthday, and getting women to go around and do the
collecting. My girls remember going with
me in the apartment house we lived in – they remember the people opening their
doors, seeing us, and saying:- “Oh, it’s that time of year again.”, but always
giving us some change.
We’re all very thankful that our children,
their children, and future generations won’t have to worry about the scrooge of
polio, but it’s wrong (at least in my opinion) that they don’t know the
background of organizations such as the March of Dimes. I wonder how many other organizations have
fallen by the wayside once their cures or preventatives have been found.
************************************
While I was going
through several boxes of post-polio articles I came across the following which
I thought was quite interesting, so I decided to share it with you. It comes from a December 1995 Daytona Beach
Sunday News-Journal article.
BLOOD TYPE
TRAITS
TYPE A:-
Positive traits:- Orderly, law-abiding, fastidious,
soft-spoken, fashionable, calm.
Negative traits:- Picky, selfish, secretive, pessimistic,
inflexible, reckless when drunk.
Suitable careers:- Accountant, librarian, economist, novelist,
computer programmer, gossip columnist.
TYPE B:-
Positive traits:- Independent, flexible, candid, sensitive,
passionate, persuasive.
Negative traits:- Unpredictable, in-discreet, lazy, impatient,
overbearing, can’t wake up.
Suitable careers:- Cook, hairdresser, military leader, talk
show host, journalist, golfer.
TYPE AB:-
Positive traits:- Rational, calculating, honest,
diplomatic, organized, strong ESP.
Negative traits:- Unforgiving, playboy, easily offended,
too conservative, nitpicker, hard to know.
Suitable careers:- Bartender, attorney, teacher, sales
representative, social worker, witch.
TYPE O:-
Positive traits:- Healthy, idealistic, goal-oriented,
clear-sighted, good at sports, sexy.
Negative traits:- Status-seeking, jealous, greedy, unreliable,
obsessive lover, can’t shut up.
Suitable careers:- Banker, politician, gambler, minister,
investment broker, baseball player.
Well, if you know
your blood type, are these traits accurate.
I’d be interested in having you let me know – you can e-mail me your
answer at: bgold@iag.net.
****************************************
Our thanks, once again, to Mary
Clarke Atwood of the Rancho Los Amigos Post-Polio Support Group for giving us
reprint permission. This article was in
their latest newsletter.
Understanding Muscle Strengths
With
Sophia Chun, M.D.
Chief of Post-Polio Service
Reported by Mary Clarke Atwood
Editorial assistance by
Richard Daggett and Sophia Chun, M.D.
This report is based upon
Dr. Chun’s December 2003 presentation to the Rancho Los Amigos Post-Polio
Support Group in
Manual
Muscle Testing (MMT) is a method to test the strength of a muscle group by an
examiner who provides the opposing force. This method is best used for the
weaker muscles - those that are in the 0-3 range.
The
person being tested is asked to push or pull against the resistance of a
trained examiner. The muscle strength is graded on a 0 to 5 scale. In the past, muscle strength descriptors such
as “fair”, “poor”, and “good” were used.
The meaning of the numbers is explained in the following table.
|
|
|
The muscle
being tested…
|
|
0 |
Zero |
has no muscle twitch. |
|
1 |
Trace |
has some muscle twitch that
can be felt. |
|
2 |
Poor |
is only able to move the limb
when gravity is eliminated. |
|
3 |
Fair |
is able to move the limb
against gravity. |
|
4 |
Good |
is able to provide good
resistance against the examiner. |
|
5 |
|
is as strong as the maximum
resistance provided by the examiner. |
It is
important to note that this scale does not have equal range between each number
such as 1=2=3=4=5. Hence, Grade 1 muscles are less than 5% of normal, Grade 2
muscles are approximately 5 to 10% of normal, Grade 3 muscles are approximately
15 to 20% of normal, and Grade 4 muscles are approximately 40% of normal.
(Beasley WC, Quantitative Muscle Testing:
Principles and Application to Research and Clinical Studies. Arch Phys Med Rehab 42: 398-425, 1961)
In general, at least a Grade
3 muscle is needed to perform usual function because it is able to move a limb
against gravity. However, it is important to know that a Grade 3 muscle does
not have much endurance and will tire easily.
Muscle
grades can also be defined more specifically by adding a plus or minus sign
that designates “something in between”:
Examples:
1, 1+, 2-, 2, 2+, 3- 3, 3+, 4-, 4, 4+, 5.
Muscle
Grade 3+ can resist the force of 2 fingers plus gravity.
Do you
understand the meaning of muscles grades?
Test yourself…Yes
or No
·
4 out of 5 means 80% …………..No
·
3 out of 5 is like getting a “C” in class …………………………..………No
·
5 out of 5 means 100% …………No
·
3 out of 5 for the hip extensor means 20% ………………………….…Yes
Another
way of measuring muscle strength is Torque testing. This method is best used
for testing stronger muscles.
Torque
testing uses a machine (like an exercise machine at the gym) to provide the
opposing force. This testing is performed under the supervision of a trained
examiner. The results in Torque tests are then calculated and the muscle group
strength is graded as a percentage of normal rather than the 0-5 scale of MMT.
There
are 3 reasons why muscle testing is important:
2) To
evaluate a person’s muscle/nerve reserve, i.e. determine his ability to
exercise and help answer the following questions:
·
Which muscles are at high risk for getting weaker with overuse?
·
How much can or should a person exercise?
·
Which muscles can tolerate exercise and which muscles cannot tolerate
exercise?
·
What type of brace and which joint mechanism can substitute
specifically for a given muscle that is found to be too weak to perform its
function during walking?
·
What lifestyle modifications need to be suggested?
·
Could it possibly be time for the “chair”?
A finding of “random patchy
weakness” can be determined by thorough manual muscle strength testing and can
also help establish that the person has a history of having had acute
poliomyelitis. “Random patchy weakness” refers to muscle weakness that does not
follow any specific pattern, e.g. one may have right arm and left leg weakness,
as opposed to left or right sided weakness as seen in stroke.
The criteria for a diagnosis
of post-polio syndrome from the March of Dimes International Conference on
Post-Polio Syndrome Identifying Best Practices in Diagnosis & Care,
2001 are:
“1. Prior paralytic
poliomyelitis with evidence of motor neuron loss, as confirmed by history of
the acute paralytic illness, signs of residual weakness and atrophy of muscles
on neurologic examination, and signs of denervation on electromyography (EMG). [Dr. Chun stated
that EMG might not be necessary.]
“2. A period of partial or
complete functional recovery after acute paralytic poliomyelitis, followed by
an interval (usually 15 years or more) of stable neurologic
function.
“3. Gradual
or sudden onset of progressive and persistent new muscle weakness or abnormal
muscle fatigability (decreased endurance), with or without generalized fatigue,
muscle atrophy, or muscle and joint pain. (Sudden onset may follow a period of
inactivity or trauma or surgery.) Less commonly, symptoms attributed to PPS
include new problems with breathing or swallowing.
“4. Symptoms persist for at
least a year.
“5.
Exclusion of other neurologic, medical and orthopedic
problems as causes of symptoms.”
Results
from manual muscle testing can help a physician advise how much or how little
an individual can exercise. Exercise can help maintain and possibly strengthen
muscles that are Grades 3+, 4, or 5 as long as a person doesn’t over do it, but
exercise can be detrimental/harmful to muscles that are Grade 3 or less. A
Grade 3 muscle can move the limb full range against gravity but it has only 15
to 20% of normal strength so it has very little endurance.
Grade
Grade
2 muscles may need some bracing support, especially in the lower extremities,
because they do not have the strength to overcome gravity.
There are three key muscle groups that are tested in the lower extremities to help the physician determine the most appropriate type of bracing needed to substitute for the weak muscle groups. These muscles groups are called “key” muscle groups because their strength determines whether a person can walk safely or not:
Hip Extensor
muscles (Glutes)
Knee Extensor
muscles (Quadriceps/
Quads)
Ankle Plantar Flexor muscles (Gastrocs or calf muscles)
Experience
at the Rancho Post-Polio Clinic has shown that the calf muscle often is the
first muscle to show signs of overuse weakness in survivors who are walking in
the community. A person with weak calf muscles often substitutes for this
weakness by locking his knees. This
substitution can be functional except that over time, the “locking” of the
knees causes an overuse of the knee extensor muscles (quadriceps) and can also
lead to low back pain. A person with
weak calf muscles can sometimes feel unstable and is not able to stand for very
long.
A
person with symptoms caused by weak calf muscles as described above is at risk
of further overusing the quadriceps muscles, so a physician will prescribe an
AFO (ankle-foot-orthosis) specifically designed to substitute for the weak calf
muscle. The physician prescribing the brace should understand the patient’s
gait and know what type of joint mechanism is needed to substitute for the
muscle weakness found in the manual muscle testing. A “wrong” brace can actually cause further
overuse resulting in more muscle weakness.
There are very specific
joint mechanisms but in general, one should know that a KAFO (knee, ankle, foot
orthosis) is used to substitute for weak quadriceps (knee extensors), and that
an AFO (ankle, foot orthosis) is used to substitute for weak ankle muscles
including the calf muscle. A cane is
often the best support for weak hip muscles.
Range
of motion testing for each joint is often done in conjunction with manual
muscle testing. This testing helps determine the flexibility of the joints and
determines if there are any contractures.
A
contracture is the tightening of soft tissue that results
in a limited range of motion. Not all contractures or limited range of joints
is bad. A good or a “useful” contracture
can act like an “internal brace”, while a bad
contracture puts a person at a mechanically unstable position.
·
An example of a “useful” contracture is Achilles tendon tightness
because it can act as an internal ankle brace (AFO).
·
An example of a bad contracture is knee flexion contracture, i.e. a
permanent bend at the knee. This is a bad contracture because if a person does
not have adequate muscles to extend the knee, the knee contracture can cause
the knee to buckle.
Some
abnormality in range of motion is not always bad. For example, a person who
back-knees may benefit by locking the knee for added stability. However, an
excessive back-knee or (knee hyperextension) can cause pain in the front of the
knee over time.
Assume that none of the persons below have any useful contractures.
Person 1: Hip Extensor Grade 5, Knee
Extensor Grade 4, and Ankle Plantar Flexor Grade 4
Answer:
All key muscles in this person are greater than 4,
therefore he can walk safely without a brace.
Person 2: Hip Extensor Grade 5, Knee Extensor Grade 0, and Ankle Plantar Flexor
Grade 4
Answer: This person has zero
Knee Extensor (Quadriceps); therefore he needs a knee brace (KAFO) to
substitute for the inability to lock his knees.
Person 3: Hip Extensor Grade 4, Knee Extensor Grade 5, and Ankle Plantar Flexor
Grade 0
Answer:
This person has zero Ankle Plantar Flexor (calf muscle); therefore he needs an
ankle brace (AFO) to substitute for his weak calf muscle.
Person 4: Hip Extensor Grade 1, Knee Extensor Grade 0, and Ankle Plantar Flexor
Grade 2
Answer: All key muscles are
less than 3, which are not strong enough to provide support for walking,
especially if they do not have any useful contractures. This person needs to
‘ride’.
Person 5: Hip Extensor Grade 0, Knee Extensor Grade 4, and Ankle Plantar Flexor
Grade 1
Answer: The only muscle that
can help this person walk is the Knee Extensor Muscle (Quadriceps). This person can probably walk, but would need
the assistance of a cane and an ankle brace (AFO).
The information in this
report should help a person with PPS have a better understanding of muscle
testing and what the numbers mean to him. By knowing one’s own muscle grades a
person will have a better understanding of how to protect the strength he has.
Muscle
testing provides good baseline information. It is not necessary to repeat MMT
until a person’s symptoms change. “If you are having new PPS symptoms it means
you need to slow down”, said Dr. Chun.
© Copyright
2004
Mary Clarke Atwood
Reprint permission must be
obtained directly from Rancho Los Amigos Post-Polio Support Group
Dr. Sophia Chun is Chief of Post-Polio Service at
****************************************
This article is reprinted from USA Weekend,
10 BEST NUTRITION MOVES
Every meal can easily include several
points on this
no-nonsense list.
Details about specific nutrients are fascinating. But in tracking down the fine points, don’t
lose sight of the big picture. Here are
10 solid, sweeping actions that will get you the best nutrition bang in 2004.
w Eat seven to nine
servings of fruits and vegetables a day.
Antioxidant-packed,
they can cut your risk of heart disease up to 70%, diabetes 40%, lung cancer
30% and breast cancer 20%, studies show.
Tops in antioxidants: prunes,
raisins, blueberries, black-berries, garlic, kale, cranberries, raspberries,
strawberries, spinach.
w Eat fatty fish two or
three times a week. That provides enough omega-3 fat to help
prevent heart disease, arthritis and brain dysfunction. Fish oil protects brain cells, and suppresses
inflammation and irregular heartbeats. In a new study, eating fish just once a week cut the risk of
Alzheimer’s disease 60%.
Best: salmon, sardines (fresh and
canned), mackerel, herring.
w Restrict red meat to
once or twice a week. Recent evidence ties red meat (beef,
pork, veal, lamb) to increased cancer of the colon, pancreas, breast, prostate
and kidney. Reason: Carcinogens form in meat during cooking. Worst methods: frying, barbecuing. Best:
baking, stewing, boiling, microwaving.
w Eat 25 grams of fiber
a day. Most adults eat less than half
that. Fiber lowers cholesterol and blood
pressure; cuts the risk of heart disease, diabetes and cancer; and helps
control weight. Super sources: All-Bran, Fiber One, oat-bran cereals (check labels),
dried beans, barley.
w Use olive oil
primarily; avoid trans fats. Olive oil is the main choice of people who
live the longest and have the least heart disease, cancer and other chronic
diseases. Deadliest: trans fats in some
margarines and baked goods, such as doughnuts – they clog arteries more than
saturated animal fats do.
w Eat “good” carbs. Slash “whites” – bread, sugar,
potatoes – that causes rapid spikes in blood sugar. Such foods can double your odds of heart
attack, diabetes and certain cancers, and make you fat. Eat carbs that
produce a slow rise in blood sugar.
Best: legumes (including
peanuts); whole-grain, high-fiber breads and cereals; fruits and vegetables.
w Drink three or more
cups of tea a day. “Real” tea (not herbal) helps save
you from heart disease, cancer, osteoporosis, infection, age-related mental
decline, dental cavities and weight gain.
In one study, three cups a day cut the risk of heart attack 11%. Brewed caffeinated green tea has the most
antioxidants; bottled and instant teas have the least.
w Eat nuts every
day. A mere ¾ ounce of nuts (almonds, walnuts, pecans,
peanuts) daily slashed the risk of heart disease and diabetes 30% and
Parkinson’s disease 43% in Harvard studies.
Daily consumption of nuts and peanuts, including
peanut butter, helped control weight in other research.
w Shave portions by
one-third to half. Gigantic portions are a major cause
of weight gain and obesity. In studies,
adults given a large serving ate 30% more calories than when given a small
one. Kids, too, devoured 25% more
calories when served oversized portions.
If it isn’t on the plate, you aren’t tempted.
w Take a daily
multivitamin/mineral pill. It can erase subtle deficiencies
that make you more prone to infections and chronic diseases, including
cardio-vascular disease. Cancer and bone fractures. Many leading authorities now urge all adults
to take a daily supplement.
****************************************
The
following article was written by one of our members – Marion Schoeller.
Thanks,
I Forgot (almost)
That You Are Disabled.
Recently a
new friend in my neighborhood made the above state-ment
to me. We were discussing entertainment venues and I asked if this venue was
accessible. My neighbor said, "I forgot that you are disabled."
Many of us can relate to the fact that
we even forget (at least sometimes) that we have a physical disability
especially if it is a "hidden disability." It is still tough for me to admit I have a
disability even to myself.
As a formerly active person, my
limitations seem to be huge compared to my abilities of just what seems like a
few years ago. I regularly danced, roller skated, rode bicycles and horses,
played tennis and more. I even played
wheelchair tennis when I became less ambulatory but
had to give that up too. Most post-polios have similar
stories.
I've become a spectator rather than a
participant in physical sports (but a darned good one at that!). My senses
however, seemed
to have survived up to this point unscathed. So, I concentrate more in those area. I enjoy live concerts and plays, movies, art,
crafts and music festivals, reading, dining out, relaxing by the pool and
ocean, watching new and old movies I've missed on DVD instead of VCR, and
making a fool of myself with Karoake in public.
I've learned to adapt my life to my
changing physical condition. That
doesn't mean I like it. Still, it is
uplifting when someone says, "I forgot you are disabled."
Marion Schoeller
FECPPSG
Editor’s Note:-
I know just what Marion is talking about
– before PPS made my walking into just
going about 100 yards or so, I was able to do the malls, walk the boardwalk (I
grew up in Brighton Beach, Brooklyn, NY, and walked from the beginning of the
boardwalk all the way past Coney Island, a total of about 5 miles each way), go
up and down the subway steps, etc.
However, I never was able to walk fast, sooooo
every now and then when I would be out with one of my friends (namely, Brenda),
she would, inevitably, wind up several feet in front of me. I would then call to her and ask what the
rush was and her answer to me each time was that she “Forgot (almost) That You Are Disabled”. In talking with her this morning, after
putting
****************************************
Found this among some e-mails that I “saved” to use as
fillers in the newsletter – thought this was a good one.
~~~~~~~~~~~~~~~~~~
"FRIENDS"
Friends are very special people who accept each
other with unconditional caring. They
Recognize each other's
talents and faults, and acknowledge them without judgment.
They are Incapable of turning away when times are tough
and life's problems seem hard to bear.
Instead, they Encourage each other so
they can enjoy the good times and find strength to endure the
bad times. They're Never afraid to say
what they feel and can be honest without causing
hurt or pain. They can Depend on each other because
they have the kind of trust
that allows them to Share the best and worst of their lives with
laughter and without fear.
You are one of those special people,
and I'm glad you are my friend.
-Andrea Hines
****************************************
Reprinted from Polio Epic, Inc.
Newsletter, April/May 2004
EXERCISE YOUR BRAIN
Put your brain to work or it
loses power
The
brain is the center of the identity that makes you uniquely human. Decline in brain function is one of most people’s
greatest fears in regards to aging.
The
severity of age-associated mental impairment can range from forgetfulness to
senility to dementia. Both the aging
process and a variety of disease processes, most that are treatable, can cause
mental decline. But recent research
maintains that age-associated cognitive impairment doesn’t have to be an
inevitable consequence of growing older.
Participating in increased physical and mental activity and following a
healthy diet can improve mental function directly and indirectly by enhancing
overall health.
Here
are the 10 most important things you can do to maintain your mental health,
recommended by Cynthia Green, Ph.D., founding director of the Memory
Enhancement Program at the Mount Sinai School of Medicine, and Paul Takahashi,
M.D., of the Mayo Clinic, a geriatric specialist and expert on cognitive
decline, authors of Total Memory Workout.
Give your mind a daily workout. Just as physical activity keeps your body
strong, mental activity keeps your mind sharp and agile. “It is important to experience new
frontiers,” says Dr. Takahashi. If you
continue to learn and challenge yourself, your brain continues to grow. He recommends that you:
·
Learn to play a musical instrument.
·
Play Scrabble, Catch-Phrase, Tri-bond, Balderdash, chess, bridge, and trivia games.
·
Do crossword puzzles, word puzzles, jigsaw puzzles, and logic
puzzles.
·
Play Bingo, which requires visual skills and memory.
·
Interact with people.
·
Switch careers or start a new one.
·
Start a new hobby, like crafts, painting, biking or bird watching.
·
Learn a foreign language.
·
Take college classes or community ed
classes.
·
Volunteer.
·
Stay informed about what’s going on in the world.
·
And above all – READ.
Engage in physical exercise. Believe it or not, exercise is a big determinant
of mental health. Researcher in the
Dutch
researchers led by Dr. Albertine Schuit
studied 347 men in their 70’s to assess the impact of physical exercise on
cognitive function. Results showed that
the men who exercised for an hour or more each day were by far the least likely
to have impaired mental function. Those
who exercised for less than an hour were two times more likely to have impaired
mental function. Decline among totally
inactive men was about four times greater.
Physical exercise increases blood flow to the brain, which delivers more
oxygen to the brain. It also appears
that regular exercise stimulates nerve cell regeneration and reduces levels of
the stress hormone cortisol.
Eat, drink and be healthy. Consume a diet rich in fruits and
vegetables. They contain antioxidants,
substances that protect and nourish brain cells. These foods also reduce your risk of cancer,
high blood pressure, coronary artery disease, diabetes and osteoporosis. And drink plenty of water. You also want to include long-chained omega-3
fatty acids, (EPA and DHA) found in deep-water fish and algae or in
supplements.
Develop a system of reminders. Information bombards you. So utilize memory triggers to keep in mind
what’s important.
·
Write lists, diaries and calendars.
·
Establish a routine.
·
Complete tasks in the same order.
Take time to remember. Normal aging makes your mind slightly less
efficient in processing new information, but wisdom can compensate for physical
changes. Forgetfulness may indicate
nothing more than having too much on your mind.
Slow down and pay full attention to the task at hand.
Practice relaxation techniques. Stress and anxiety can interfere with
concentration, so it’s important to take time to relax. One technique involves taking a mental break
from the world. Lie down or sit in a comfortable
position with your eyes closed. Then
take a relaxation tour of your body.
Breathe slowly, regularly and deeply.
Once relaxed, imagine you’re in a favorite place or in a spot of beauty
and stillness. After five or 10 minutes,
rouse yourself from the state gradually.
Maintain a positive attitude. “Happiness plays an enormous role in your
outlook on life,” says Dr. Takahashi. It
makes you more alert, and then your senses open up to new information and
experience.
Talk to your doctor. Factor unrelated to aging or genetics can
contribute to memory problems. These
include the use of certain medications, poor vision and hearing, vitamin
deficiencies, fatigue, depression, stress and illnesses unrelated to
Alzheimer’s disease. Depression, in
particular, can cause problems with memory and concentration and often is
mistaken for Alzheimer’s disease in older adults. Depression can be treated, improving memory
and concentration.
Check your levels. Know your blood pressure, cholesterol and
blood sugar levels. Make sure your
thyroid gland is functioning normally.
Tests of levels are relatively easy and are good indicators of what’s
going on inside your body.
Establish fresh goals. Nothing keeps you going better than having goals
– physical, social, creative, intellectual and spiritual. Maintain a forward-looking attitude in each
of those areas.
By the way, you don’t have to worry about
occasionally misplacing your car keys.
It happens to everyone.
****************************************
QUERY
A reader asked if any of our members with PPS
happen to have taken dopamine or related drugs,
either for PPS or another related disorder. If so, what was their
experience with the medication. If you have a response to this, please either write us, call us, or e-mail us.
****************************************
In going over some “old” newsletters, came
across this which is apropos even now, so here it is:-
reprinted from Polio Deja
View, Central VA PPSG, Jan/Feb, 1998.
NEW COPING SKILLS
By Linda VanAken
For
the majority of us, polio struck at an early age. Consequently, we developed unique and
individualized coping skills which helped us to live our lives to the fullest.
As
one fellow polio survivor reminded me, we are taught to push harder…push
further. Sometimes I think our
physicians and therapists all had Marine drill sergeant mentalities. I’ve heard their motto is “pain is good,
extreme pain is excellent.” So, for most
of us, we are conditioned to ignore discomfort and to fight through fatigue
when we are tired. We become very
independent and self sufficient, no matter what level of disability we
endured. Many of us have Type A personalities, and I would suspect we could be considered
over achievers.
Now
with the onset of post polio, we find ourselves in a position where those
coping skills are no longer effective. Suddenly, it is detrimental for us to
push harder and farther. In our 40’s and
50’s, we are having to completely reverse our thought processes and must now
“conserve to preserve.”
For
the first time in our lives, we must “give in” to our disability and “listen”
to our bodies. Often, it is extremely
difficult to make that transition from being Superman or Superwoman, to a
person who is less active and somewhat dependant o others.
We
must teach ourselves new skills. We have
to learn ways to pace our activities and conserve energy. Again, we must accept the need for braces,
crutches and other adaptive equipment.
We need to examine methods that will help us to change our daily lives
by simplifying everyday chores and activities.
The
emotional impact of coming to terms with post polio can be as traumatic as the
physical limitations brought on by it.
Those highly honed coping skills must be discarded and replaced by new
methods and new emotions.
I
am convinced I have made this transition more easily and quickly with the help
of my contacts in our support group. My
fellow members have taught me to be kind to myself. Instead of daily aerobic exercise, my daily
discipline is an afternoon nap. I now
try to avoid activities that cause pain rather than just “enduring.” I’ve discovered it is not only okay to ask
for help or assistance, but wiser when at all possible. So we change, we grow, we redefine ourselves
and our coping skills.
Once
again, the spirit and determination which helped us to overcome the original
affects of polio can help us to develop new skills and methods for living our
lives. We need to recognize that it is
just as good for us to pace, rest and take care of ourselves as it use to be to
push harder, faster and farther. So, as
the New Year approaches, make a pact with yourself to change. Let go of those old worn out ideas and methods
and accept the new and improved and as always…..the uniquely wonderful you.
FECPPSG
Editor’s Note:- What
Linda has said is true. I know how hard
it was for me to adjust to the fact that I wasn’t able to do things I used to
do. Why, I was even co-running a support
group on
By the way, I’ve found a lot of articles in some
of the “older” newsletters that are just as appropriate now as they were
several years ago, soooo – look for some more in the
next few newsletters.
****************************************
DUES FOR 2004:- Please take a look at your mailing label - on it
you’ll see the month and year we received your 2004dues, i.e., 01/2004 means it
was received in January 2004, so your 2003 dues was due in January 2004. If
your mailing label has the year first and then the month, i.e., 2003/01 it
means that you indicated to us in January 2003 that you wanted to receive the
newsletter but paid no dues. That’s OK
as we still believe that anyone who wants information should receive it – but
we do need you to return the tear sheet with either the “Dues” box checked or
the “Keep me on the Mailing List” box checked.
Your dues covers the supplies we need to send out the
information packets to all inquiring about Post-Polio Syndrome, any other
correspondence we do, and postage for publicity and for the out-of-country (33)
newsletters that we send out. We’re
fortunate in that the “Free Matter for the Blind and Physically Handicapped”
status takes care of the postage for the over 450 newsletters sent out within
the United States. We network with many
other support groups throughout the United States, as well as Australia,
Brazil, Canada, England, France, Germany, Israel, Panama, Portugal, Lebanon,
New Zealand, Sweden, Taiwan and Wales –
some 40 of these reciprocate by sending us their newsletters. We receive as many dues checks from our
out-of-state members as we do from our
************
WHEN YOU MOVE PLEASE be sure to
send us your new address. Sometimes the post-office will return the newsletter
to us with a “forwarding period expired” notice on the front with your new
address but most of the time they are just returned to us with “address
unknown” on it. SO, if you want to
continue receiving the newsletter it is UP TO YOU to make sure we have your new
address.
************************************
FLORIDA EAST
COAST POST-POLIO SUPPORT GROUP
12 Eclipse Trail /
386-676-2435 /
e-mail address: bgold@iag.net
DATE:
TIME:
PLACE: Red Lobster Restaurant
Right off I-95 – Exit 261–
(head EAST for about 1/4 mile)
PROGRAM:-
Let’s Just
Talk ---
General “Rap” Session –
Cost of the Luncheon is $10.00 all
inclusive. As usual we will have a choice of several different menu
items.
Please send in your reservation tear sheet and check
no later than
Any questions call Barbara at 386-676-2435.
==============================================================
R E S E R V A T I O N F O R M
Name:- _______________________________ Phone No.:-
_________________
Number of People Coming:- _________ Number in Wheelchair(s):- ___________
Amount of Check Enclosed:- ________________ @ $10.00 per person
Make check payable to and mail same
to:
FLORIDA EAST COAST POST-POLIO SUPPORT GROUP
12 Eclipse Trail
--
05/2004
~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*
FLORIDA EAST COAST POST-POLIO SUPPORT GROUP
12 ECLIPSE TRAIL
386 676-2435
e-mail:- bgold@iag.net
DATE:
TIME:
PLACE: Red Lobster Restaurant
Right off I-95 – Exit 261–
(head EAST for about 1/4 mile)
PROGRAM:- Let’s Just
Talk --- general “rap” session –
For further information call:- Barbara 386-676-2435
============================================================
2004 DUES/MAILING LIST
____ Dues Enclosed ____ Keep me on mailing list
If sending dues, please make Check
($5.00) Payable to and Mail to:-
FLORIDA EAST
COAST POST-POLIO SUPPORT
GROUP
12 Eclipse Trail,
NAME:-
__________________________________________________________
ADDRESS:-
_______________________________________________________
E-MAIL
ADDRESS:-__________________________ FAX #:- _______________
TELEPHONE NO:-
Home _______________________ Office ________________
Date of
Birth:-_________________ Wedding Anniversary:-
________________
Name and Date of Birth of
Spouse:-_____________________________________
05/2004