FLORIDA  EAST  COAST  POST-POLIO  SUPPORT  GROUP - Vol. 16 #6

12 Eclipse Trail  /  Ormond  Beach,  FL  32174  /  386 676-2435

E-Mail:-  bgold@iag.net   -  Web Site:-  home.iag.net/~bgold

MAY /  JUNE   2010

JULY / AUGUST  2010

 

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  WISHING  ALL  OUR  FRIENDS

 

A FLOWER FILLED and LOVING MOTHER’S DAY

A SUNNY MEMORIAL WEEKEND

A FANTASTICALLY LOVING FATHER’S DAY

A   SAFE   AND   HAPPY   FOURTH   OF   JULY

-  and  -

                A   SUN  FILLED   ENJOYABLE   SUMMER

 

**********************************************              MEETING  NOTICE

 

June 13th, 2010 –            Dr. Armand Zilioli, will be back for another general discussion

with respect to post-polio and associative topics.

September 19th, 2010 –   Our own support group member, Daniel Ericson, will tell

                                                us all about his experiences traveling around the world

with a scooter.

November 21st, 2010 –     Wilfred Bisson, another one of our local support group       

                                                members will be our guest speaker.

 

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CONTENTS

From Barbara                                           

Ask a Polio Specialist - #2                      

Florida Post-Polio Clinics                        

Friendship                                                

Brace Maintenance and

          Care Guidelines                           

What is Acupuncture…                                   

My further Adventures in Life                  

Giving Up Chocolate…         

How to Choose an Assistant

          Living Facility                           

How it Feels to Be Old                      

Inner Peace                                    

S.O.S. – Save Our Shoulders       

Universal Laws                                   

 

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FROM BARBARA

 

This newsletter is getting to you later than usual – the reason being that it’s the time of year that I become a procrastinator – I just couldn’t get me to sit down and start working on this newsletter – some may call it “burn-out” – I just call it not wanting to concentrate on anything.  Being it’s late, I decided to make it a double newsletter and give myself the summer off.

Since the last newsletter I’ve been to Long Island twice and also went on a two week Southern Caribbean cruise.   I was a little leery about going on such a “long” cruise, but found that the time just went so quickly it was over before I wanted it to be over.  It was my first time on the Princess line (the Princess Grand) and found it 99% accessible.  As usual the staff was as helpful as could be.  This time we had an outside cabin with a balcony – when we first went into the cabin I saw that there were three ramps… one leading into the bathroom, two leading out onto the balcony (one inside the cabin and one outside the cabin).  Since I’m still able to do some walking and am scared stiff of any kind of incline or decline, I asked the cabin steward to please remove the ramps – this was done within the first half hour we were on board. 

My roomie had rented a scooter for the cruise and it was waiting in the room for her.  For those of you that may not be using a scooter or want to take it on a cruise, be aware that they can be rented.  The company leaves the scooter in the cabin and picks it up in the cabin at the end of the cruise.  If you need help getting onto the ship, you can request wheelchair assistance (like you do at the airport) and they will help you get onboard. 

Now, back to the cruise itself – we stopped at nine (9) ports.  Since the ship actually docked at each port, I was able to get off the ship – except at Puerto Rico and I’ll explain – at one of the earlier ports (and I don’t remember which one) the gangplank going down was all steps, which a scooter cannot do – sooooooo, they use a wheelchair that has a conveyer type bottom that “walks” down the steps.  I took this down but felt very uncomfortable and a little scared.  My scooter they carried down.  Going back onboard, they just reversed the procedure.   As I knew there weren’t any excursions I could take, I decided to stay on the ship when we got to Puerto Rico.  I was able to do one excursion in St. Thomas, which is a US territory.  This was on a converted truck-like vehicle which had a lift on the back.  I’m very content on just being able to get off the ship and going through the duty free shops and flea markets, straw markets that are within accessible areas. 

The only “problem” I had was that my legs, yes, both legs, swelled up – guess it was due to the extra salt content in the food.  But after a few days at home, all was well again.  Don’t know exactly when I’ll be cruising again, but be sure, that I will be cruising again.

 

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Reprinted with the permission of the Rancho Los Amigos Post-Polio Support Group.  This was in their April 2010 newsletter.

 

"Ask a Post-Polio Specialist #2" with Vance C. Eberly, MD can be read at

http://www.polioassociation.org/2010-04_newsletter.pdf 
 
 

Thanks
Mary

Mary C. Atwood, Member
Rancho Los Amigos Post-Polio Support Group
 

 

FECPPSG Editor’s Note:-  This is an excellent article and I recommend that you follow through and request it from Rancho Los Amigos PPSG.

 

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Reprinted from “Post Scripts”, Newsletter of the PPSG of Southern Hillsborough County, FL, May 2010, Volume 5

 

 

FLORIDA POST-POLIO CLINICS

 

Halifax Medical Center/Neuroscience Center

Carolyn Geis, M.D.

201 N Clyde Morris BlvdSte 300

Daytona Beach, FL  32114

386 947-4641

carolyngeis@halifax.org

 

Univ. of MiamiMiller School of Medicine

Khema Sharma, M.D.

Associate Prof. of Neurology

Dept of Neurology

1120 NW 14 Street, 1317

Miami, FL  33136

305 243-7400

Ksharmafg@med.miami.edu

 

Tamar S. Ference, M.D., Assistant Professor

Department of Rehabilitation Medicine

1120 NW 14 Street, 952

P.O. Box 0169060 (C-206)

Miami, FL  33136

305 243-6605 (appointments) 305 243-4569

tference@med.miami.edu

 

Southeastern Rehabilitation Medicine

Post-Polio Evaluation Team of N Central FL

Amy E. Clunn, M.D.

Diana Korneti, MA, PT

3305 SW 34th Cir – Ste 101

Ocala, FL  34473

352 373-4321 (appointments) 352 732-3110

Toll Free – 866 346-8677

 

FECPPSG Editor’s Note:-  The only Post-Polio Clinic that I have been to in Florida is the one at Halifax Medical Center.  Dr. Geis is knowledgeable about Post-Polio and their PT’s are also knowledgeable – I have had PT there on several different occasions for various reasons since the Clinic was opened way back in 1995.  Originally there was a Post-Polio Clinic at the Mayo Clinic in Jacksonville under Dr. Thorsteinsson’s direction. Since he retired, not sure if they still have the clinic.  Will try to find out and let you know. 

 

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My thanks to e-mail friend, Jackie Meyers for the following.

 

FRIENDSHIP

 

I would never trade my amazing friends, my wonderful life, my loving family for less gray hair or a flatter belly.  

 

As I've aged, I've become kinder to myself, and less critical of myself. I've become my own friend.  I don't chide myself for eating  that extra cookie, or for not making my bed, or for buying that silly cement gecko that I didn't need, but  looks so avante garde on my patio. I am entitled to a treat, to be messy, to be extravagant.

  
I have seen too many dear friends leave this world too soon; before they under-stood the great freedom that comes with aging.  Whose business is it if I choose to read or play on the computer until 4 AM and sleep until noon? I will dance with myself to those wonderful tunes of the 60 &70's, and if I, at the same time, wish to weep over a lost love...  I will.


I will walk the beach in a swim suit that is stretched over a bulging body, and will dive into the waves with abandon if I choose to, despite the pitying glances from the jet set.  They, too, will get old.

 

I know I am sometimes forgetful.  But there again, some of life is just as well forgotten. And I eventually remember the import-ant things. 

 

Sure, over the years my heart has been broken. How can your heart not break when you lose a loved one, or when a child suffers, or even when some-body's beloved pet gets hit by a car? But broken hearts are what give us strength and understanding and compassion. A heart never broken is pristine and sterile and will never know the joy of being imperfect.


I am so blessed to have lived long enough to have my hair turning gray and to have my youthful laughs be forever etched into deep grooves on my face.  So many have never laughed, and so many have died before their hair could turn silver.


As you get older, it is easier to be positive. You care less about what other people think. I don't question myself anymore.  I've even earned the right to be wrong.  So, to answer your question, I like being old. It has set me free.  I like the person I have become. I am not going to live forever, but while I am still here, I will not waste time lamenting what could have been, or worrying about what will be. And I shall eat dessert every single day (if I feel like it).

  

MAY OUR FRIENDSHIP NEVER COME APART ESPECIALLY WHEN IT’S STRAIGHT FROM THE HEART!

 

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Reprinted from “Polio Perspectives”, Michigan Polio Network, Spring 2010.  Our thanks to Vera Hazel for e-mailing it to us.

 

BRACE MAINTENANCE AND CARE GUIDELINES

Tamara Treanore CO, ABC, Certified Orthotist

Complete Orthotics (Affiliated with the St John Post Polio Clinic)

13850 East Twelve Mile Rd

Warren, MI 48088

 

Brace maintenance and care will improve the function, extend the life and improve the comfort of the brace. The following guidelines are provided for your use.

 

I. Plastic braces:

-Check for discoloration in the plastic on a regular basis. Discoloration indicates that the plastic in those areas is excessively stressed, creating the possibility of breaking and/or plastic failure with the associated incident of falling or injury. Bring this to the attention of your orthotist!!

 

-Cracks. Look for cracks in the metal joints - esp. around rivets and by any joints. Again, bring this to the attention of your orthotist.

 

Clean plastic with a damp wash cloth using the same soap that you use on a daily basis. Wipe out well. If no padding is present, the brace can be rinsed under water. If pads are present, this is not recommended as the water can become trapped between the materials and cause separation.

 

Wipe pads off in the same manner but do not scrub the pad as it will roughen the surface and cause either friction or further soiling. Alcohol pads can also be used to wipe down the brace/pads.

The brace should be wiped out on a regular basis to reduce the incidence of dermatitis and odor. Using a-sock or interface between your skin and the brace is standard - this will reduce the need for cleansing and protect your skin. Socks should be cotton/polyester blend with low profile seams and no heavy banding, sewn in designs or anti-slip pads. If your leg size precludes you from using standard socks then a section of thermal underwear can be used to cover the calf area.

 

Check your shoes on a regular basis-removing the brace, the insole and shake out any sand, gravel, animal hair, etc. All these can abrade the bottom of the plastic brace and can be the site of plastic fracturing. Shoes should be leather, full cut, removable insole, Velcro or lace closure. There should not be any significant heel and the width of the sole should be appropriate for the size of your foot and the type of stability you need.

 

Avoid man made uppers, avoid heavy seams across the forefoot and make sure the shoe holds your foot into the brace securely. The shoe is a functioning part of your brace - it secures the brace to your foot and aligns your foot/ankle to the ground. Replace when the upper becomes stretched and sloppy - you are reducing the function of the brace and in effect, your safety.

 

DO NOT USE THE FOLLOWING:

Febreeze, super glue, solvents, torches, tinsnips, dremels, hack saws or band saws. Stay out of the tool shed! If you have a problem with your brace or with the function of your brace-

TALK TO YOUR ORTHOTIST OR YOUR DOCTOR! I promise to stay out of your professional field if you promise to stay out of mine.

 

II. Metal and Leather braces:

-Check for cracks in the metal joints on a regular basis especially around the rivets, the knee joints and the ankle joints.

 

 -Check that any moving parts or aligned hinges are moving freely without any halting, binding or squeaking. If concerns are noted, speak to your orthotist.

 

Joints need to be cleaned and lubricated on a regular basis. Remove any fiber or debris out of the hinges with a cloth, a toothpick or with a can of compressed air. Use a dry silicone lubricant on the hinges and wipe off any excess. It is best to lubricate the hinges at night, thus permitting any excess to drain out, hopefully avoiding soiling your clothes. Wipe off the hinges again prior to wearing the brace. If crunching or grinding is heard at any joint, you need to see your orthotist. Parts break, wear out, get out of alignment and get rusty. Most springs or ball bearings can be easily replaced, realignment is a tougher job. A metal hinge requires smooth function in order to move with your leg and to lock/unlock when needed.

 

Do not add anything to your hinges unless your orthotist approves. Materials added to protect clothing can impede the secure locking of the hinge and increase the possibility of falling.

 

III. Straps

-Straps hold the brace onto the leg and provide biomechanical alignment between the brace and your body - each strap has a unique function and needs to be secured in order to achieve the outcome the brace was prescribed for.

 

-Always check the rivet/screw that attaches the strap to the brace for signs of failure. Remove any hair, fiber or debris with fork tines, a toothpick or a comb. The exposed surface of each part of the strap is what determines the contact and security of the strap closure - keep 'em clean so that the straps close securely.

 

If the Velcro becomes worn, it needs to be replaced. Replacing a strap requires measuring, sewing the new strap, removing the old rivet, attaching the new strap and cleaning up the rivet site. The addition of pads can increase the amount of work required. There is a cost associated with this - a prescription can be provided to cover the cost but there is no guarantee of payment by your insurance company. However, just like the tires on your car, the sales on your shoes or the clothes you are wearing-things wear out and need to be replaced. Maintenance has an associated cost.

 

Covering the rivet site inside of the brace with a piece of mole skin or bandage will reduce any skin irritating from the metal. Raised edges must be addressed by your orthotist. Again, please do not hammer, grind, drill or modify your brace in any way. Repairing "repairs" can be costly and sometimes impossible.

Straps can be washed and squeezed dry-use a soft scrub brush if needed and follow the brace wear/care guidelines for additional help.

 

VI. Miscellaneous

-Hold onto old brace for emergencies!!

 

Replacement of braces is covered by insurances based on each companies own protocols. In general, it is once every 3-5 years unless there is a change in function, change in weight, brace breaking or change in physical status. This must be documented by your physician and a certificate of medical necessity provided with the prescription. Again, there is no guarantee of payment by your insurer. We will try our best to verify your coverage, your deductible and your co-payment and will work with you to procure coverage if possible.

 

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The following was a hand-out from Dr. Gaffney when she spoke at our support group meeting.  The information on how to get in touch with her is at the end of the article.

 

What is Acupuncture and Can it Help me?

 

Acupuncture is over 3,000 years old and is used by a large part of the Eastern world.  In most cases, very thin, short needles are inserted in specific points of the body.  They are inserted just below the surface and are left in place for a short time.  The amount of pain felt is usually less than that of a mosquito bite and dissipates rapidly.  You usually feel relaxed and peaceful for the duration of the treatment.

 

Ancient Chinese doctors discovered an energy network that travels just beneath the skin along pathways called meridians.  It is possible to access this network through 1,000 different places on the body.  They found, over many centuries, that stimulating these points caused symptoms, conditions and injuries to heal.  They attributed this action to the QI (Chee) energy moving in the body along these meridian pathways.  The QI energy could be balanced to strengthen weakness, decrease accesses, lower stresses, and regulated body functions.

 

Bruce Pomerantz, A Neurophysiologist at the University of Toronto who has spent the last 20 years studying Acupuncture is convinced he has found a rational explanation for the process.  He states, “There is overwhelming evidence for animal studies that Acupuncture reduces pain by triggering the release of endorphins and other substances by the nervous system.”  His “Neural Theory” states that Acupuncture stimulates the nervous system to release ACTH, a chemical that helps in fighting inflammation and other chemicals that help wounds and injuries to heal faster.  As my Asian teacher says, “It has worked for a thousand years, why does it matter how it works?”

 

The FDA has recently regulated our needles as a medical device, such as surgical scalpels and hypodermic needles.  They are disposable.  We use them on you at one visit and then discard them.  The National Institutes of Health has founded a variety of research projects on Acupuncture and recently released a statement confirming Acupuncture’s thera-peutic effect on postoperative dental pain and the nausea and vomiting associated with surgery and chemotherapy.  The World Health Organization has listed over 40 conditions that Acupuncture can treat with success.

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VOLUSIA CENTER for COMPLEMENTARY MEDICINE

Debra Gaffney, A.P., Ph.D., DCN, C.C.P.A.

339 East New York Avenue

DeLand, Florida  32724

386-734-4126    800-734-4590

FAX 386-736-7556

www.acudebra.com

 

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Here’s another article from our friend Linda Terrill.  Much thanks, Linda – I know your “adventures” and projects are of interest to our members.

                              

My further adventures in life

 

This has been hard to get started but if you remember, I’ve written in 4 previous newsletters about my polio at 18 months old, not expected to live but did.  Then wore braces and used crutches until almost 60.  I spent many months at a time in Shriner’s Hospital from 1953 to 1962 correcting through surgeries the many deformities that polio caused. 

 

I’m now in an electric wheelchair because of a major fall 2 ½ years ago, but am safer now, no more falls.  Also, we were co-founders of an organization where we took wheelchairs and volunteers to many different countries for 8 years from 1998 to 2005.  What an adventure. I’ll share more in the next newsletter.

 

But today I want to share what I’m doing this summer.  My son built a deck out back for me about 5 years ago (Colorado Springs, CO) and a container garden on the outside of the rail.  After the fall he rebuilt it and put it in front of the rail so I could reach it.  I’ve had 4 years of beautiful flowers and beautiful, warm sunshine where we are at 6500 feet above sea level, 60 miles south of Denver. 

 

This summer I’m going to plant hummingbird flowers, and am excited.  Also my son and husband are making a raised veggie garden bed for me out back so I can reach the veggies and participate in that too.  I love fresh veggies, tomatoes, cucumber, onions, lettuce, and zucchini, what ever will grow here.

My husband and son have made the adjustment to this wheelchair much easier than it could have been.

 

We all need to find something that encourages us and brings joy into our lives.  Look around and begin to dream again.

 

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The following was sent to us by Beverly Schroll – our thanks to her….  I think we all know that “Giving up Chocolate” is not good for us and this just proves it.

 

Giving Up Chocolate

I was walking down the street when I was accosted by a particularly dirty and shabby-looking homeless woman who asked me for a couple of dollars for dinner.


I took out my wallet, got out ten dollars and asked, 'If I give you this money, will you buy chocolate with it instead of dinner?'

'No, I had to stop eating chocolate years ago', the homeless woman told me.


'Will you use it to go shopping instead of buying food?' I asked.


'No, I don't waste time shopping,' the homeless woman said. 'I need to spend all my time trying to stay alive..'


'Will you spend this on a beauty salon instead of food?' I asked.


'Are you NUTS!' replied the homeless woman. I haven't had my hair done in 20 years!'


'Well, I said, 'I'm not going to give you the money. Instead, I'm going to take you out for dinner with my husband and me tonight.'


The homeless Woman was shocked. 'Won't your husband be furious with you for doing that? I know I'm dirty, and I probably smell pretty disgusting.'


I said, 'That's okay. It's important for him to see what a woman looks like after she has given up shopping, hair appointments, and chocolate.'

 

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This was originally in our July/August 2005 newsletter – it is reprinted from Daytona Beach News-Journal, Health Section, June 12, 2005.  I felt it

a good time to reprint it as we are not five years older and, who knows, may need to know …..

 

HOW TO….

Choose an Assisted Living Facility

Services ease transition from living on your own.

 

          If you or a loved one suddenly has a need for an assisted living facility there are a lot of options to consider before making a selection.

 

          First, it is important to understand that assisted living is not a nursing home, but a bridge to that step from living on your own.  Assisted-living residences are designed to meet special personal services and housing needs, and sometimes healthcare needs as well.

 

          When selecting a facility, choices can include single or double rooms and sometimes even suites and apartments.

 

          Typical services that may be provided include meals, assistance with daily living activities such as bathing and dressing, help with medications, housekeeping, laundry, transportation and shopping.

 

          When the time comes to make that transition, research is the best way to ensure that you make the right selection for your loved one.

 

          It is a good idea to visit several assisted-living residences before making a choice.  Ask those who live in the community to be sure the facility and the owner or sponsor have a good reputation.  Talk with residents about life in the facility.  Be sure the staff is respectful and friendly.  Also, make sure the activities are appropriate for your individual needs.  Find out how much input you will have in your daily life and care, and how much flexibility there is in the schedule.  For example, if you need assistance with bathing, will you be able to choose when and how often?

 

          Requirements for staff and administrators for assisted-living facilities vary from state to state.  Many assisted-living facilities have very minimal hiring standards.  Some of these may include:

·        Administrator must be at least 18 years of age.

·        Workers may have a high school diploma or GED.

·        Some previous experience working with the aged.

 

When you begin your search, consider the following questions as a starting point::

·        What kinds of services are available and are services provided by the facility’s employees, or are arrange-ments made with other agencies?

·        What types of accommodations are there?

·        Do family and friends have unlimited and/or convenient visitation?

·        What is included in the daily or monthly rate?  What services are available for extra charges?

·        Can furniture and other personal items be brought from home?

·        What kinds of activities and recreation are available and how often?

·        What happens if you need additional assistance later on?  Do you have to move, or can the facility provide the care you need?

 

In addition, pay attention to physical aspects of the facility, including cleanliness.  Look for features designed for safety, such as well-lit stairs and halls, handrails in bathrooms, exits that are well marked, and a way to summon help if needed.

 

Another major consideration when selecting an assisted-living facility is cost.  Depending on the services and accommodations offered, costs could range from $1,800 a month to $3,200.  Some states have funding available for those who cannot afford assisted living.

 

Check to see if your state has an American Association of Homes and Services for the Aging (AAHSA) affiliate. 

 

~*~*~*~*~*~*~

CONSUMER  TIPS

 

ONE:-  Talk with residents about life in the facility.  Be sure the staff is respectful and friendly.

 

TWO:-  Look for features designed for safety, such as well-lit stairs and halls, handrails in bathrooms, exits that are well marked, and a way to summon help if needed.

 

THREE:-  Make sure the activities are appropriate for your individual needs.

 

FOUR:-  Find out how much input you will have in your daily life and care, and how much flexibility there is in the schedule.

 

FIVE:-  If cost is an issue, check to see if your state has funding available.

 

FECPPSG Editor’s Note:-  Another point to remember is to be sure that the facility is fully handicap accessible.  Under “Consumer Tips” number “Two” – where it mentions handrails in bathrooms, make sure that there are “handrails” – or – “grab bars” attached to at least two sides of the shower or bathtub, as well as on the side of the commode.

 

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The following “gem” was also originally in the July/August 2005 newsletter sent by e-mail (of course).

 

HOW IT FEELS

    TO BE OLD

 

The other day a young person asked me how I felt about being old.   I was taken aback, for I do not think of myself as old. Upon seeing my reaction, she was immediately embarrassed, but I explained that it was an interesting question, and I would ponder it, and let her know.


Old age, I decided, is a gift. I am now, probably for the first time in my life, the person I have always wanted to be. Oh, not my body!  I sometime despair over my body – the wrinkles, the baggy eyes, skin spots and bumps, and the sagging butt. And often I am taken aback by that old person that lives in my mirror, but I don't agonize over those things for long.


I would never trade my amazing friends, my wonderful life, and my loving family, for less gray hair or a flatter belly. As I've aged, I've become more kind to myself, and less critical of myself. I've become my own friend. I don't chide myself for eating that extra cookie, or for not making my bed, or for buying that silly cement gecko that I didn't need, but looks so avant garde on my patio. I am entitled to overeat, to be messy, to be extravagant. I have seen too many dear friends leave this world too soon; before they understood the great freedom that comes with aging.

 

Whose business is it if I choose to read until 4 AM, and sleep until noon? I will dance with myself to those wonderful tunes of the 50's, and if I at the same time wish to weep over a lost love, I will. I will walk the beach in a swim suit that is stretched over a bulging body, and will dive into the waves with abandon if I choose to, despite the pitying glances from the bikini set. They, too, will get old.

 

I know I am sometimes forgetful. But there again, some of life is just as well forgotten -- and I eventually remember the important things. Sure, over the years my heart has been broken. How can your heart not break when you lose a loved one, or when a child suffers, or when a beloved pet gets hit by a car? But broken hearts are what give us strength and understanding and compassion. A heart never broken is pristine and sterile and will never know the joy of being imperfect.


I am so blessed to have lived long enough to have my hair turn gray, and to have my youthful laughs be forever etched into deep groove on my face. So many have never laughed, and so many have died before their hair could turn silver. I can say "no," and mean it. I can say "yes," and mean it. As you get older, it is easier to be positive. You care less about what other people think. I don't question myself anymore. I've even earned the right to be wrong.

 

So, to answer your question, I like being old. It has set me free. I like the person I have become. I am not going to live forever, but while I am still here, I will not waste time lamenting what could have been, or worrying about what will be.

 

And I shall eat dessert every single day.  (And enjoy it!!!)

 

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All I can say is “Thanks” to all our e-mail support group members and friends.  This one is from local member Conrad Garlo – Thanks, Conrad.

 

 

Inner Peace...

this is so true


If you can start the day without caffeine,

If you can always be cheerful, ignoring aches and pains,

If you can resist complaining and boring people with your troubles,

If you can eat the same food every day and be grateful for it,

If you can understand when your loved ones are too busy to give you any time,

If you can take criticism and blame without resentment,

If you can conquer tension without medical help,

If you can relax without liquor,

If you can sleep without the aid of drugs,

 

Then You Are Probably The Family Dog!

 

 

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S.O.S.

Save Our Shoulders

A Guide for Polio Survivors

 

I now have 15 of these guides available –

This guide was written with the assistance of Dr. Mary Ann Keenan and Dr. Alberto Esquenazi.

 

The purpose of the manual is to help polio survivors become more aware of the behaviors that can cause shoulder overuse and some of the treatment options that are available.

 

If you would like one, please contact me either by e-mail (bgold@iag.net), phone 386-676-2435, or letter and it will be mailed out to you.

 

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This was sent to us by our member, Conrad Garlo.  Thanks, Conrad

 

UNIVERSAL LAWS

1. Law of Mechanical Repair - After your hands become coated with grease, your nose will begin to itch and you'll have to pee.
2. Law of Gravity - Any tool, nut, bolt, screw, when dropped, will roll to the least accessible corner.
3. Law of Probability -The probability of being watched is directly proportional to the stupidity of your act
4. Law of Random Numbers - If you dial a wrong number, you never get a busy signal and someone always answers.
5. Law of the Alibi - If you tell the boss you were late for work because you had a flat tire, the very next morning you will have a flat tire.
6. Variation Law - If you change lines (or traffic lanes), the one you were in will always move faster than the one you are in now (works every time).
7. Law of the Bath - When the body is fully immersed in water, the telephone rings.
8. Law of Close Encounters -The probability of meeting someone you know increases dramatically when you are with someone you don't want to be seen with.
9. Law of the Result - When you try to prove to someone that a machine won't work, it will.
10. Law of Biomechanics - The severity of the itch is inversely proportional to the reach.
11. Law of the Theater and Hockey Arena - At any event, the people whose seats are furthest from the aisle, always arrive last.  They are the ones who will leave their seats several times to go for food, beer, or the toilet and who leave early before the end of the performance or the game is over. The folks in the aisle seats come early, never move once, have long gangly legs or big bellies, and stay to the bitter end of the performance.  The aisle people also are very surly folk.
12. The Coffee Law - As soon as you sit down to a cup of hot coffee, your boss will ask you to do something which will last until the coffee is cold.
13. Murphy's Law of Lockers - If there are only two people in a locker room, they will have adjacent lockers.
14. Law of Physical Surfaces - The chances of an open-faced jelly sandwich landing face down on a floor, are directly correlated to the newness and cost of the carpet or rug.
15. Law of Logical Argument - Anything is possible if you don't know what you are talking about.
16. Brown's Law of Physical Appearance - If the clothes fit, they're ugly.
17. Oliver's Law of Public Speaking - A closed mouth gathers no feet.
18. Wilson's Law of Commercial Marketing Strategy - As soon as you find a product that you really like, they will stop making it.
19. Doctors' Law - If you don't feel well, make an appointment to go to the doctor, by the time you get there you'll feel better. But don't make an appointment, and you'll stay sick.

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Looking forward to seeing you at the June 13th meeting.

Barbara

 

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FLORIDA  EAST  COAST  POST-POLIO  SUPPORT  GROUP

12  Eclipse  Trail  /  Ormond  BeachFL  32174

 386-676-2435  /  e-mail  address:  bgold@iag.net

 

DATE:            Sunday, June 13th, 2010

TIME:                 1:00 – 4:00 PM

PLACE:              Red Lobster Restaurant

                            International Speedway Boulevard

                            Right off I-95 – Exit 261– Daytona Beach, FL

                            (head EAST for about 1/4 mile)

 

SPEAKER:         Dr. Armand Zilioli, will be back for another general discussion

                             with respect to post-polio and associated topics.

 

Cost of the Luncheon is $13.00 all inclusive.   As usual we will have a choice of several different menu items.

 

Please send in your reservation tear sheet and check

no later than June 8th, 2010

 

Any questions call Barbara at 386-676-2435.

 

  

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R E S E R V A T I O N   F O R M

June 13th, 2010 Luncheon Meeting

  

Name:- _______________________________  Phone No.:- _________________

 

Number of People Coming:- _________ Number in Wheelchair(s):-  ___________

 

Amount of Check Enclosed:-  ________________  @ $13.00 per person

 

 

Make check payable to and mail same to:

FLORIDA EAST COAST POST-POLIO SUPPORT GROUP

12 Eclipse Trail  --  Ormond Beach, FL  32174

06/2010


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DUES FOR 2010-  Please take a look at your mailing label  -  on it you’ll see the month and year we received your 2009 dues, i.e., 01/2009 means it was received in January 2009, so your 2010 dues is due in January 2010.  If your mailing label has the year first and then the month, i.e., 2009/01 it means that you indicated to us in January 2009 that you wanted to receive the newsletter but paid no dues.  That’s OK as we still believe that anyone who wants information should receive it – but we do need you to return the tear sheet with either the “Dues” box checked or the “Keep me on the Mailing List” box checked.

          Your dues covers the supplies we need to send out the information packets to all inquiring about Post-Polio Syndrome, any other correspondence we do, and postage for publicity and for the out-of-country (25) newsletters that we send out.  We’re fortunate in that the “Free Matter for the Blind and Physically Handicapped” status takes care of the postage for the over 400 newsletters sent out within the United States.  We network with approximately 60 other support groups throughout the United States, Canada, Australia and New Zealand – some 40 of these reciprocate by sending us their newsletters.  We receive as many dues checks from our out-of-state members as we do from our Florida members.  So, please check your mailing label and return the tear sheet if your date is due.  We really need your support now more than ever.  Just to keep you advised, in addition to the previously mentioned countries, our newsletter goes to England, France, Germany, Israel, Panama, Portugal, Lebanon, South Africa, Sweden, Taiwan and Wales.

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WHEN YOU MOVE  PLEASE be sure to send us your new address.  Sometimes the post-office will return the newsletter to us with a “forwarding period expired” notice on the front with your new address but most of the time they are just returned to us with “address unknown” on it.  SO, if you want to continue receiving the newsletter it is UP TO YOU to make sure we have your new address.

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2010 DUES/MAILING LIST

 

____ Dues Enclosed                                                            ____ Keep me on mailing list

 

If sending dues, please make Check ($5.00) Payable to and Mail to:-

FLORIDA  EAST  COAST  POST-POLIO  SUPPORT  GROUP

12  Eclipse Trail,  Ormond  Beach,  FL  32174-4936

 

NAME:- __________________________________________________________

 

ADDRESS:- _______________________________________________________

 

E-MAIL ADDRESS:-__________________________ FAX #:- _______________

 

TELEPHONE NO:- Home _______________________ Office ________________

 

Date of Birth:-_________________   Wedding  Anniversary:- ________________

 

Name and Date of Birth of Spouse:-_____________________________________

 

Support Group I belong to:_______________________________________

06/2010