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January 18th, 2009 – ONE-DAY
SEMINAR == Dr. MaryAnn Keenan,
head of
surgery and bracing.
Michael
Kossove,
Professor of Microbiology at
about Polio 101.
March 15th,
2009 – Dr. James Scott, neurologist with the Neurology Associates
of
mimic
post-polio.
May 17th, 2009 –
September 20th, 2009 –
November 15th, 2009 –
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CONTENTS
From
Barbara
Tips for
Brain Health
Various
Type of Pain Defined – Pt 2
Easter
Seals Offers Phones
A Keeper
Are you
Suffering from Swelling
Bladder
Matters
No More
Excuses
What is
Heartburn and GERD
Some
Simple Truths about Colds and Flu
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From Barbara
Our January 18th
Seminar is coming up shortly. If you
have not sent in your reservation PLEASE do so as quickly as possible. We have to give a count to the Hampton Inn by
January 10th.
Well, I guess
you want to hear about my latest adventure – the
Once they
announced that our cabins were ready and we went down, I had my first
disappointment…. This handicap room was quite small – in fact, in order to fit
my scooter into the room (you were not allowed to leave them in the hallway),
and my roommate’s walker – they had to take out a small table and a chair. Even with that, you couldn’t turn the scooter
around in the room – I had to back out each time. Additionally, the bed was high – I’m not that
tall (5’1”) and when I take off my brace, have to literally get my good leg
under my polio leg (which is dead weight) and had to “heave” it onto the
bed. One night I couldn’t even manage
that and had to ask my roommate to help me get my polio leg up onto the
bed. Now, that’s embarrassing…. One good point in that room was the bathroom
which was large and almost perfect – I say “almost” because the towel rack (as
is usual) was up above the commode and impossible to reach from a wheelchair or
scooter. The shower seat was padded –
the very first time I ever had a padded seat in the shower.
As to the
rest of the ship, it was very accessible.
The Lido Deck (which was their “cafeteria” style serving deck) was no
problem – in fact, the service people went out of their way to assist not only
me with the scooter, but two of my friends who use walkers (non-polios). Once they got to recognize us they would come
over, show us to a table that would hold the 8 of us, and ask what we
wanted. They would bring over everything
we needed. It was almost as good as
being in the actual dining room. Oh,
by-the-way, both up on the Lido Deck and in the dining room, they fought over
who was going to “park” my scooter – when they realized that it had hazard
lights, headlights, and right and left turn lights, they turned them all
on. Naturally I told them that the scooter
was my Lamborghini.
The entertainment
was excellent – probably the best of any ship I’ve been on. The winner of their Karaoke contest, in my
opinion, could have been a contender in the “America Has Talent” contest. He was superb. Their own singers
and dancers and the comedienne and illusionist they had were top notch.
Our biggest
complaint, besides my room, was that they did not have a card-room for us to
play in. Don’t get me wrong, they did
have card rooms – however, they had a bridge tournament on board which took up
each and every card room. When we asked
them where we could play they basically shrugged their shoulders and couldn’t
give us an answer.
Other aspects
of the cruise – we were about 3 hours out when the ship had to return to Ft
Lauderdale as someone had taken ill and needed more medical attention than you
were able to get on-board. We then
continued on our way but the weather had turned somewhat against us and the
ship was rocking and rolling – one of my friends got seasick at the dinner
table and had to be taken outside to regain her “sea legs”. The following morning we couldn’t go to
Holland-America’s own little island, again due to the weather, and headed out
to the next day’s island,
Will I go on
another cruise – most probably…. BUT, I would first make sure that the handicap
room is large enough to turn around in.
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Reprinted from November/December 2008 Elder Update.
Tips for Brain Health
Cognitive psychologist Dr. Michael Noir and neurologist Dr.
Bernard Croisile, co-authors of Get Your
Brain in the Fast Lane, offer tips on how to take control of your brain’s
health to keep it sharp and active.
1.
Exercise – Regular
exercise can lower the risk of dementia and may even help grow new neurons in
the area of the brain crucial for memory formation.
2.
Diet –
Eating the right foods can have a positive impact on your mind and body. Omega-3 fatty acids found in fish help
improve brain function. Choline, a B
vitamin found in eggs, is believed to enhance memory and minimize fatigue. Other B vitamins may also improve mental
performance and mood.
3.
Mental Stimulation – Brain fitness programs like crossword puzzles and video games stimulate
the brain, improve cognitive function and deter the effects of aging.
4.
Sleep –
Sleep improves memory function. An average of 7 to 8 hours a night is
recommended.
5.
Socialize –
People with strong relationships experience less mental decline and live more
active, pain-free lives.
6.
Enjoy Music –
Music makes listeners feel more relaxed and stimulates the mind. Listening to stories may have the same
effect. (Music lessons are a great way to
keep minds active, regardless of age or prior experience.)
7.
Stay Upbeat – Positive thinking improves brain
health and may enhance the ability to process information.
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Reprinted from San
Joaquin CFIDS/ME/FMS Support Group, August, September 2008 newsletter.
Various
Types of Pain Defined
Continued
from our November/December issue:
Neuropathic Pain
Pain is
often assumed to be caused by physical injuries such as a broken bone or skin
cut and once the injury is healing the pain subsides and eventually
disappears. However, nerves can also
produce pain and this type of pain can be difficult to manage. It is called neuropathic pain.
Pain caused by nerve damage can be
agonising and often fails to improve with time.
It can originate from the peripheral and/or central nervous system. Neuropathic pain is often used as an umbrella
term to include:
·
Phantom limb pain
·
Peripheral neuropathy
·
Post herpetic neuralgia
·
Trigeminal neuralgia
·
Complex Regional Pain Syndrome (CRPS)
With neuropathic pain the nerves may be
damaged or injured and they send incorrect pain messages to the brain. The cause is often difficult to
discover. This sort of chronic pain may
result from conditions such as Diabetes, Shingles, and multiple Sclerosis or
from injury, surgery or amputation.
Although it can also occur without any of these factors.
Nerve
pain is often described as:
·
Shooting
·
Stabbing
·
Burning
·
Searing
These
pains may be accompanied with:
·
Increased skin sensitivity
·
Changes in skin temperature and colour
·
Muscle weakness
·
Loss of Feeling
·
Swelling and stiffness in the affected
joints
In some
types of neuropathic pain the diagram shown below may help to establish the
area of nerve damage or injury.
Phantom Limb Pain
Pain in a limb that no longer exists
is a common phenomenon after amputation.
For some people the phantom limb pain gets better without treatment but
for others the management of this pain can be difficult. Phantom pain is more common after the loss of
an arm or leg but can also occur after the removal of any body part such as an
eye or breast.
To receive the correct treatment for
your condition it is important for your doctor or specialist to determine
whether you are experiencing phantom limb pain or stump pain.
Phantom limb pain: is pain that feels as if it is in the area of
the lost limb.
Stump pain: is pain or discomfort felt at the site of
amputation.
Phantom limb pain is an unfortunate
term as it seems to imply that the pain is a psychological rather than a
physical problem. In fact the pain may
not have a psychological component at all.
Although the longer pain continues it is more likely that physical and
psychological influences are involved.
Contributing factors to phantom limb
pain are thought to be:
·
Nerve damage or injury
·
Existing pain prior to amputation
·
Neuroma, which is a growth containing
nerve cells. This can form on the nerve
endings in a stump after amputation.
If you are experiencing phantom limb pain you may benefit from a pain
management programme.
Peripheral neuropathy
The peripheral nervous
system includes nerves in the face, legs, arms, torso and some nerves in the
skull. It often affects people with
diabetes and auto-immune diseases. Certain
vitamin deficiencies and alcoholism can also damage the peripheral nerves.
Symptoms will depend
upon the cause of a persons’ neuropathy and on which nerve or nerves are
involved.
These
can often begin gradually and are sometimes barely noticeable but for others
the symptoms are constant and may be almost unbearable especially at night.
Symptoms may include:
·
Pain
·
Numbness
·
Tingling
·
Muscle weakness
·
Burning
·
Loss of feeling
·
Sharp, stabbing pain
·
Extreme sensitivity to touch
·
Lack of coordination
If you experience any of these symptoms you should consult your doctor.
For others with a diagnosis but who have poor pain control a pain
management programme may be beneficial.
Post herpatic neuralgia
This type of nerve pain often happens
after a viral infection such as shingles.
The pain manifests itself as listed under neuropathic pain. Consult your doctor if you think that you
have nerve damage or injury caused by a viral infection. If the pain persists you may benefit from a
pain management pro-gramme or a review of your medications by a pain
specialist.
Trigeminal neuralgia
This type of nerve pain affects the
forehead, nose, cheeks, lips, teeth and jaw and can affect the most basic of
daily activities such as eating, swallowing, teeth brushing and face washing.
The cause is not completely understood
although it can occur when the trigeminal nerve becomes irritated or trapped
causing pain to the face. Dental work
has been identified as being the most common trigger for trigeminal neuralgia.
Symptoms include:
·
Sharp, ‘electric shock’ type pain
·
Dull ache
·
Sensitivity to touch
If you
have any of these symptoms you should consult your doctor who will advise you
of the treatment options.
Complex Regional Pain Syndrome (CRPS)
This is a chronic pain condition. The key symptom of CRPS is continuous intense
pain which may appear to be out of proportion to the severity of the
injury. The pain commonly worsens with
time.
CRPS I is often triggered by tissue
injury but has no apparent nerve damage.
CRPS II has the same symptoms but is
also associated with a nerve injury.
Symptoms include:
·
Burning pain
·
Increased skin sensitivity
·
Changes in skin temperature
·
Sweating and swelling of the affected
area
·
Changes in skin colour and texture
·
Changes in nail and hair growth
·
Decreased ability to move the affected
body part
·
Muscle spasm
·
Reduced muscle tone
·
Continuous pain
The cause of CRPS remains
unknown and it is very difficult to diagnose.
Diagnosis is usually achieved by ruling out other conditions.
There is no cure for CRPS but pain can be
reduced or controlled by using a mixture of symptomatic pain manage-ment
therapies. If you have been diagnosed
with CRPS you and your doctor may decide that you could benefit from consulting
a pain specialist. There are many
treatment options available which can help you to gain control over this
disabilitating pain.
http://www.thepainclinic.co.uk
FECPPSG Editor’s Note:- After reading this report,
especially about the CRPS, I think that may be the problem I have with the
swelling and sweating of my polio leg.
That leg is also, usually, colder in the winter months than my non-polio
leg. The Sequential Circulator machine I
use to reduce the “edema” in my polio leg really helps with respect to the
swelling and sweating.
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Easter Seals Offers Phones and
Specialized Communication Devices at No
Charge
Easter Seals, Volusia/Flagler Counties has partnered with
the Florida Telecom-munications Relay, Inc. (FTRI) program to provide
specialized communication equipment to assist individuals who are
hard-of-hearing at no charge. The inventory available for qualified
With FTRI specialized equipment, indivi-duals will discover
the freedom and independence of communication without the frustration
experience not being able to hear on a traditional telephone. The devices are specifically designed for
easy use. The lifestyle-improving
equipment is loaned to qualified residents as long as needed.
To qualify, individuals need to call (877) 255-4568, (386)
255-4568, or TTY (386) 257-3600 and schedule an appointment where they must
provide proof of
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This was sent to me by a friend, Jackie Meyers –
it’s at times like this that I wish I knew graphics, the ones that were sent
with this were beautiful. To me, all of
you, are “Keepers”! I hope you enjoy
this much as I did.
A Keeper
Their marriage was good, their dreams focused. Their best friends lived
barely a wave away. I can see them now, Dad in trousers, work shirt and a hat;
and Mom in a house dress, lawn mower in one hand, and dish-towel in the
other. It was the time for fixing things: a curtain rod, the kitchen
radio, screen door, the oven door, the hem in a dress.
Things we keep.
It was a way of life,
and sometimes it made me crazy. All that re-fixing, re-heating leftovers,
renewing; I wanted just once to be wasteful. Waste meant affluence.
Throwing things away meant you knew there’d always be more.
But when my mother
died, and I was standing in that clear morning light in the warmth of the
hospital room, I was struck with the pain of learning that sometimes there isn’t
any more.
Sometimes, what we
care about most gets all used up and goes away...never to return. So... While
we have it, it’s best we love it... And care for it... And fix it when it’s
broken... And heal it when it’s sick.
This is true: For
marriage... And old cars... And children with bad report cards. Dogs and cats
with bad hips... And aging parents... And grandparents. We keep them because
they are worth it, because we are worth it. Some things we keep, like a best
friend that moved away or a classmate we grew up with.
There are just some
things that make life important, like people we know who are special... And so,
we keep them close!
I received this from
someone who thinks I am a ‘keeper,’ so I’ve sent it to the people I think of in
the same way... Now it’s your turn to send this to those people that are ‘keepers’
in your life. Good friends are like stars... You don’t always
see them, but you know they are always there!
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Our November speakers were from
Are You Suffering
from Swelling?
Living with swelling is inconvenient. Swelling in the arm or hand can affect your
ability to write or use the involved arm for daily activities. Leg or ankle swelling can limit your ability
to wear shoes or clothes, challenge your balance, and impair your walking. In more severe cases swelling cause
cellulitis/infection or open wounds. It
can limit your daily function or cause pain and stiffness. Facial swelling can affect your ability to
eat and swallow… Should I go on?
Two common causes of swelling:
Venous
Insufficiency: Ankle or leg swelling that gets
worse as the day progresses because of poor circulation. This type of swelling is commonly treated
with diuretics. A diuretic is a water
pill prescribed by a physician that helps to reduce swelling. A diuretic is effective with minimal to
moderate swelling; however, as the swelling becomes more severe it is less
effective.
Lymphedema: A collection of protein rich fluid in the tissue space
generally as a result of cancer related surgery/treatment, trauma, poor
circulation, congestive heart failure, or congenital (born with swelling due to
a malformation in the lymphatic system).
It is wise to let your physician assess the swelling and
determine the cause.
Treatment is available for those of you
battling this condition. Unfortunately,
in many cases, the swelling can only be controlled not cured. The treatment of choice by specialists who
treat this condition is Complex Decongestive Physiotherapy which consists of:
·
Manual
lymph drainage (specialized massage)
·
Compression
bandaging for swelling reduction
·
Meticulous
skin care
·
Therapeutic
exercise
·
Education
Once the swelling is reduced, the limb is fit for a
compression garment that is worn thereafter on a daily basis to maintain the
reduction.
Controlling swelling can improve your quality of life! What are you waiting for?
Talk to your physician to determine if this type of
treatment would be beneficial for you or schedule a FREE CONSULTATION with a
certified lymphedema therapist at
FECPPSG Editor’s
Note:- My polio let was not only “swelling” but was
also “sweating” – that is, at the end of the day when I removed my brace the
very bottom of the brace was wet – at it’s worst point, it formed a small
“puddle” --- however, my leg itself was never wet, my knee-high was likewise,
not wet. When I started taping my leg,
after seeing Kristin, the tape at the bottom of the leg itself, had some
dampness. As I’ve mentioned (and
written) before, due to dexterity problems with my right hand (from polio), I’m
not able to use the compression stockings – soooo
Kristin recommended a machine, the Sequential Circulator, that I now use 3 or 4
times a week, that keeps the swelling controlled. At the beginning I used it every night. In addition to the polio leg, I had swelling
on my “good” leg so I also utilized the machine on that leg and the swelling
there is also controlled. When I travel
I take the tapes with me and wrap my legs at night to control the swelling.
Kristin can be reached at 386-761-8711.
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Reprinted
from USA Weekend, June 14-17, 2007, HealthSmart column, by Dr. Tedd Mitchell.
Bladder matters
You can improve your control.
There are some problems that people don’t like to discuss,
even with their doctor. Although
millions of women have bladder control problems, many never seek help, either
because they’re too embarrassed or feel that it’s just part of aging. But research suggests that you can improve
the condition.
If you have bladder control problems, get a checkup. These kinds of issues can arise from a
variety of conditions, some of which could require specific interventions. Also, certain drugs worsen the problem, so
your doctor can review your medications with you. Once you’ve visited your doctor, you can
implement some of these tools to regain your bladder confidence:
Lose some weight. In a study published in February 2006 in Diabetes Care, researchers from the
Do Kegel
exercises. Kegel exercises can improve the
strength of the pelvic floor muscles that support the bladder. While sitting on the toilet, tighten the
muscles you need to stop your urine flow, and hold that tension for as long as
10 seconds. Repeat up to 20 times. If you don’t have time in the bathroom in the
morning, practice them on the way to work, while watching TV or any time that
you are sitting down for a few minutes.
Clean up your
diet. Limit caffeine and alcohol to decrease urine output.
Put yourself on a
schedule. Develop the habit of urinating routinely on a
timetable throughout the day.
Contributing Editor
Tedd Mitchell, M.D., president and medical director of
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Reprinted from our very own FECPPSG news-letter of
November/December 2005. Reprinted from
Polio Heroes of
September 2005. Reprinted from SPIRIT, PPSG, Southeastern, WI, June
2004.
NO MORE EXCUSES!
A powerchair
(not Manual) or scooter is not an instrument of torture. (Although a manual chair can be!) Using a powerchair or scooter will not make you look stupid – at
least not as much as pretending you don’t need one while taking pain meds and
stumbling around, falling down, requiring surgery on hands, elbows, shoulders,
knees, etc.
Using a
powerchair or scooter will give you
more energy because you won’t be using all your energy in trying to accomplish
the impossible (i.e. – looking like you don’t need one). Using a powerchair or scooter will actually be more freeing. You will have the freedom to go where ever
you want, without having to have someone chained to you to push you here and
there – and then go off to look at something else that interests them and leave
you stranded. (Been there, done that!)
Using a
powerchair or scooter will relieve
the strain on overtaxed shoulder muscles and joints that were never meant to be
walked on in the first place, thereby eliminating much of the unnecessary
surgeries which, by the way, will not last
unless you change the way you do things.
You may also find that you don’t need as much or any of the pain meds.
Using a
powerchair or scooter will show that
you are winning the battle! But you need
to define your battles. You already had
polio. No way to change that. You are having post-polio sequelae. Another done deal. These are battles people frequently think
that they need to fight against, but there is no way to win here. It’s happening. Live with it.
But the battle you can win is
the battle for independence! You can be
your own person again. It has been said,
“Fight only the battles you can win”.
Living life on your own terms is possible only if you have the stamina,
the balance, and the heart for it. We
all have the heart for it. . . we are polio survivors! What we don’t
have are the balance and the stamina. A
powerchair or scooter can help.
Do you always
walk to the grocery store 5 miles away?
Do you walk to work? To Church?
Of course not! You use the
technology available to you – a car or public transportation. Do you mix your cake batter with a
spoon? Or do you use an electric
mixer? These are devices that help to
make our lives easier. So are powerchairs and scooters. You are not giving in. . . you’re stepping up
to an easier way of doing things. And Boy! Are they ever fun!
If you are
thinking about it, it is probably past time to do it. And the sooner you start using a power
mobility aid, the longer you might retain the ability to walk and the easier it
will be on your arms and shoulders in the long run. I wish
you well.
(PH of TN Editor’s
Note: This article was not authored by
name. I wish I had written it! It sounds very much like words of Dr. A. C.
Higgins, MD of
FECPPSG Editor’s
Note:- As most of you know, I use a scooter – in
fact, I’m on my third Electric Mobility Rascal.
Whenever I see a polio (or other mobility impaired individual) that
should be in a powerchair or scooter I cringe.
If I question them as to why they’re not using a powerchair or scooter,
they’re answer is usually that they don’t need it – they aren’t that bad. Hopefully, this article will help some
realize that using such an aid will open many doors that have been closed to
them – such as going to the mall, going to theme parks, taking a “walk” with
the grandchildren…. Please, if you need
a powerchair or scooter, look into getting one.
Updated FECPPSG
Editor’s Note:- As mentioned before, this article
first appeared in our Nov/Dec 2005 newsletter – I felt it important to reprint
it now as I was on another cruise last month with friends of mine who are not
polios, but who realize that they required walkers in order to “walk” the ships
we have been on. When I started cruising
there were very few scooters or powerchairs seen on board. Now, however, it is not so uncommon. I would say that on this last cruise there
were at least a dozen other motorized vehicles being used. And, the waiters actually fight over who is
going to “park” the scooter for you and bring it back after you finish your
meal. Many of the cruise lines can put you in touch with companies that will
rent you a scooter – bringing it right to the ship for you and picking it up at
the ship upon your return. In fact, my
two walker friends have said that, very possibly, the next time we cruise that
that is what they will do – and I will encourage them to do so. To be able to walk on your own is wonderful
BUT if you are no longer able to, then use whatever assistive devices you can
to enjoy life. I prefer the scooter over
a powerchair as I have found it’s easier to travel with it – most scooters can
fold up enough to be put under the coach buses that take you to cruise ship
terminals, or even take you cross-country.
I can also place packages on the “floor” and in the basket at the front of
the scooter, which you cannot do with a powerchair.
However, if you need a motorized vehicle full time in your
home, a powerchair would, most likely be more efficient as it turns on a better
circle and allows you to get up closer to places. There are scooters that can be converted into
powerchairs and back into scooters without too much trouble. Depending on what you need, do a thorough
search – don’t settle on the first scooter or powerchair you try.
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Reprinted
from
What is Heartburn and GERD?
Heartburn, or acid reflux, occurs when small
amounts of stomach acid rise up into the esophagus, the “swallowing” tube that
carries food from the mouth to the stomach.
Heartburn that occurs more than twice a week may be considered gastro
esophageal reflux disease (GERD), which can eventually lead to more serious
health problems.
The esophagus, unlike the stomach,
does not have a protective lining, so it can become inflamed and painful when
exposed to the acid. In addition, tissue
damage – scarring on the esophagus – can narrow the esophagus and make
swallowing difficult.
“Properly treating acid reflux is
important to your health,” says Wallace Combs, MD, a gastroenterologist at
The main symptoms of GERD are persistent
heartburn, regurgitation of food, and unknown chronic throat or lung problems.
“While acid reflux is common, there
are many lifestyle changes and medications that can address the condition
successfully,” says
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When you’re feeling
the burn –
If you’re
among the 20 percent of American adults who experience heartburn at least twice
a week, it’s time to see your doctor.
Meantime, check what you know about this condition.
What is
heartburn? Heartburn is a burning sensation in
the chest or throat. This is caused by
acid reflux, when digestive juices and food flow backward into the esophagus
from the stomach through a valve that doesn’t close properly or opens
spontaneously.
When
heartburn occurs more than twice a week, it is considered gastro-esophageal
reflux disease, or GERD. It can affect
people of all ages.
What causes GERD? The condition is more common during pregnancy, in smokers
and in people who are over-weight.
Dietary triggers may include fatty foods, chocolate, peppermint, coffee,
tea, alcohol and carbonated beverages.
Eating a large meal and lying down shortly afterward can also cause
reflux.
What are symptoms of
GERD? Heart-burn is the main symptom. Other signs are a dry cough; asthma symptoms,
such as wheezing and a feeling of tightness in the chest; hoarseness; a burning
sensation in the throat; and trouble swallowing.
How is GERD
treated? Doctors often recommend lifestyle
and dietary changes. If these changes
don’t help, your doctor may recommend an over-the-counter or prescription
medicine. Also, some people may be
helped by surgery.
When GERD
symptoms are frequent, severe or not controlled by treatment, your doctor may
recommend testing for more serious conditions, such as inflammation of the
esophagus from reflux, which can cause bleeding or ulcers, and damaged tissue
that makes swallowing difficult.
Some people
with GERD develop abnormal cells – a condition called Barrett’s esophagus.
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Reprinted from
Some simple truths about colds and flu…
You may have
heard it from your grandma: “Feed a
cold, starve a fever.”
Or “Chicken
soup for colds and flu.”
Appealing as
those ideas are, they have more to do with folklore than reality.
According to
the American Lung Association, the truth of the matter is this: Whether you have a cold or flu, you need to
get plenty of fluids (water and juice), eat enough food to satisfy our
appetite, and drink hot fluids to east your cough and sore throat.
Chicken soup
can be one of those hot fluids, but it won’t cure the flu or a cold. Other common myths about colds and flu
include:
MYTH: If you catch a cold from someone, it
can turn into the flu.
FACT: Only a person infected with the influenza
virus can transmit the flu.
MYTH: Herbal remedies are
good cold remedies.
FACT: Claims have been made that zinc lozenges,
Echinacea and other herbs can cure colds quickly. To date, none of these claims are solidly
supported by scientific studies.
MYTH: Large doses of vitamin C can keep
you from catching the flu or a cold, or will quickly cure them.
FACT: These claims have not been proven. Still, it’s important to your health to
consume the minimum daily require-ment if vitamin C.
MYTH: If you don’t catch the flu by
December, you won’t get it, because the flu season is over.
FACT: The flu season often peaks a late as
February. Getting vaccinated before the
end of the calendar year is the best way to prevent the flu, but the vaccine
can still be effective if you get the shot in January.
MYTH: “Stomach flu” is one kind of flu.
FACT: About one in three people with the
flu may have an upset stomach. But other
viruses, along with bacteria and food poisoning, are more common causes of
nausea, vomiting and diarrhea.
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Looking
forward to seeing you at the Seminar at the Hampton Inn –
If
you have never heard Dr. Mary Ann Keenan give a talk, you are in for quite an
experience. Dr. Keenan travels the world
teaching other orthopedic surgeons about polio surgery.
Additionally,
Prof. Michael Kossove gives an interesting presentation of Polio 101. As a post-polio himself, he knows what we are
going through.
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We are still accepting
registrations to the Seminar…..
FLORIDA EAST COAST POST-POLIO SUPPORT GROUP
12 ECLIPSE TRAIL -
386
676-2435 e-mail:-
bgold@iag.net
SEMINAR MEETING REGISTRATION
DATE: Sunday, January 18th, 2009
TIME: 10:00
AM - Registration -- 5:00 PM
PLACE:
Daytona Beach Hampton Inn
1715 W
International
386-257-4030
SPEAKERS: DR.
MARY ANN KEENAN, Chief Neuro-Orthopedic
Department
of University of PA Hospital,
Dr. Keenan
will be speaking on surgery and bracing.
MICHAEL KOSSOVE, Professor of Microbiology at Touro
College,
NY, will talk about Polio 101.
EARLY REGISTRATION: $20.00 includes meeting material
and lunch.
LATE REGISTRATION: $25.00 – WE WILL STILL TAKE $20. FOR
REGISTRATION….
For Early
Registration please send in by December 15, 2008.
Please feel free to make copies of this form to give to others.
Any questions, call Barbara at 386-676-2435.
The Hampton Inn, 386-257-4030, has put aside a block of 8 handicapped rooms for
us, in addition to 10 non-handicap rooms at the special rate of $99.00 per
night (that includes their Continental Breakfast). When calling to reserve a room, make sure to
tell them that you will be attending the Post-Polio Conference so that you will
get the special rate.
This Hampton Inn is right outside of
the
In order to make it easy for you to
choose your lunch, here is a description of the various choices:-
Chicken Cordon Bleu:-
Grilled chicken breast with baked ham and melted Swiss
cheese. Served open face with
lettuce, tomato, and pickle spear.
Mediterranean Wrap:-
Vegetarian with Hummus or Albacore Tuna with feta
cheese,
lettuce, chopped tomatoes, Greek olives and roasted peppers.
With a
light lemon yogurt and cucumber dressing served on the side.
Chicken Ranch Salad:-
Grilled chicken breast over garden greens with crispy
bacon, shredded Monterrey Jack cheese, hard
boiled eggs, tomato
wedges
and cucumbers, served with Ranch dressing.
Chef Salad:- Strips
of tender turkey breast, baked ham, Swiss and cheddar
cheese,
garnished with carrot strips, ripe tomatoes and hard boiled
eggs. Served over fresh greens
with our own House Vinaigrette, Ranch
or Bleu Cheese.
==================================================================================
January 18, 2009 Seminar Registration
Name: _______________________________
Phone No.: _________________
Address:
__________________________________________________________
Number of People
Attending: ______ Number
in Wheelchair(s):- _______
Lunch Choice: Chicken Cordon Bleu ___ Mediterranean Wrap ___
Chicken Ranch Salad ___ Chef Salad ___
Please make check payable to FL East
Coast PPSG and send to:
FLORIDA EAST COAST POST-POLIO SUPPORT GROUP
12 Eclipse Trail -
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DUES FOR 2009- Please take a look at your mailing label - on
it you’ll see the month and year we received your 2008 dues, i.e., 01/2008 means
it was received in January 2008, so your 2009 dues was due in January 2009. If
your mailing label has the year first and then the
month, i.e., 2008/01 it means that you indicated to us in January 2008 that you
wanted to receive the newsletter but paid no dues. That’s OK as we still believe that anyone who
wants information should receive it – but we do need you to return the tear
sheet with either the “Dues” box checked or the “Keep me on the Mailing List”
box checked.
Your
dues covers the supplies we need to send out the information packets to all
inquiring about Post-Polio Syndrome, any other correspondence we do, and
postage for publicity and for the out-of-country (25) newsletters that we send
out. We’re fortunate in that the “Free
Matter for the Blind and Physically Handicapped” status takes care of the
postage for the over 450 newsletters sent out within the United States. We network with approximately 60 other
support groups throughout the
***********
WHEN YOU MOVE PLEASE be sure to send us your new
address. Sometimes the post-office will
return the newsletter to us with a “forwarding period expired” notice on the
front with your new address but most of the time they are just returned to us
with “address unknown” on it. SO, if you
want to continue receiving the newsletter it is UP TO YOU to make sure we have
your new address.
===================================================
2009 DUES/MAILING LIST
____ Dues Enclosed ____ Keep me on mailing list
If sending dues, please make Check
($5.00) Payable to and Mail to:-
FLORIDA EAST
COAST POST-POLIO SUPPORT
GROUP
12
Eclipse Trail,
NAME:-
__________________________________________________________
ADDRESS:-
_______________________________________________________
E-MAIL
ADDRESS:-__________________________ FAX #:- _______________
TELEPHONE NO:- Home
_______________________ Office ________________
Date of
Birth:-_________________ Wedding Anniversary:- ________________
Name and Date of Birth of
Spouse:-_____________________________________
01/2009